Search found 221 matches

by SandyK
Tue Oct 04, 2011 12:07 am
Forum: General Discussion
Topic: Insurance
Replies: 7
Views: 1209

Re: Insurance

Hi. I had to wait my 2 years and finally was put on Medicare this past July. During my waiting period I was not able to go on Medicaid because I made too much money on disability. The only thing I could do was drop my doctor and pray. It was a worrisome wait but I made it through to the other side. ...
by SandyK
Mon May 16, 2011 11:22 pm
Forum: Regimens
Topic: Deep Brain Stimulation
Replies: 1
Views: 2720

Deep Brain Stimulation

Has anyone had this surgery performed? I will be seeing someone in a few months for a Q&A. I don't even know if I qualify.
by SandyK
Sat May 07, 2011 10:06 pm
Forum: Regimens
Topic: Tremors
Replies: 1
Views: 1625

Tremors

Any advice about something to help with these annoying and embarrassing tremors? I take 100 mg of Primidone twice a day but things just keep shaking!
by SandyK
Sun Mar 27, 2011 8:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154240

Cece...this was Dr.McGukin in Tukwila,WA and he doesn't do US. I'd be willing to try again if $$ dropped from the heavens.
by SandyK
Sun Mar 27, 2011 8:25 pm
Forum: Friends and Family
Topic: partner ended our relationship
Replies: 11
Views: 6580

Hi Bacon. 10 years ago I met a great guy who happened to live in Florida and I lived in Washington state. I was going on year 7 with my MS shadow and told him often how I wouldn't put him through wheelchairs and the like. We maintained a long distance relationship for almost 7 years. I did everythin...
by SandyK
Thu Mar 17, 2011 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154240

The tremors weren't like this before. Everything else is crap normal, but the tremors are awful.
by SandyK
Wed Mar 16, 2011 4:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154240

My procedure was January 3, 2011 in Tukwila, WA. I had two days of improvement and then it all went away. I can now no longer hold silverware so either someone had to feed me or it's all food I can hold with two hands. I look like a Parkinson patient from the tremors.
by SandyK
Thu Feb 17, 2011 8:38 pm
Forum: General Discussion
Topic: How did you find out?
Replies: 7
Views: 7116

I found out by my neuro trying to eliminate other diseases first. She tested for Lyme, arsenic poisoning, and lots of other diseases I can't spell before we finally did the spinal to confirm what the MRI showed. I was lucky though, I only had 3 months of weeding out other possibilities. Good luck to...
by SandyK
Thu Feb 17, 2011 8:27 pm
Forum: General Discussion
Topic: Help/advice please
Replies: 2
Views: 1302

I know of a couple patients who went to the ER for IV roids. Good luck!
by SandyK
Thu Feb 17, 2011 8:12 pm
Forum: Introductions
Topic: Hi Everyone!
Replies: 4
Views: 1203

Welcome Jamie. Research Tysabri before going on it. Don't just listen to what your doc tells you.
by SandyK
Sun Jan 16, 2011 9:37 pm
Forum: Friends and Family
Topic: Partner with MS
Replies: 6
Views: 5064

Ask her to come on board. I think there's a lot of us who were diagnosed at her age. We'd love to talk with her.
by SandyK
Thu Jan 13, 2011 4:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment in Tukwila, WA
Replies: 5
Views: 2277

Hey GinaB. I am facing an uphill battle. I have so much damage from this disease that it is going to take time to recover. I have noticed much more stamina. I don't peter out like before. I didn't experience a dramatic change but I have had this so long I am past dramatic improvements. There is no s...
by SandyK
Thu Jan 13, 2011 4:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vascular Access Centers
Replies: 6
Views: 2118

I had my procedure done at the Tukwila, WA clinic. Dr. McGuckin did come in from PA. He has done over 60 procedures across the US.
by SandyK
Wed Jan 05, 2011 12:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment in Tukwila, WA
Replies: 5
Views: 2277

CCSVI treatment in Tukwila, WA

Hi. I was treated on January 3rd. My husband wrote up a short note he posted to friends and family on Facebook and I'm sharing it with you. I will post updates again shortly. I don't know the percentages of stenosis yet. I do know at least a 16 mm balloon was used. I'll have more info when I get the...
by SandyK
Thu Dec 30, 2010 6:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 20343

HFogerty said it perfectly for me. I can tell you where every bathroom in Kitsap County is! The tremors are horrible. I won't eat in front of people because of them. I can't even take a sip w/out looking foolish. A friend of mine describes herself as feeling detached from life. You're a watcher of l...