Search found 58 matches

by jean-la-grenouille
Sat Dec 22, 2012 10:34 am
Forum: General Discussion
Topic: merry chrismas !!
Replies: 2
Views: 868

merry chrismas !!

I wish patients, doctors, and everybody a merry Chrismas :X
by jean-la-grenouille
Mon Oct 29, 2012 1:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1620780

Re: DrSclafani answers some questions

Dear DrSclafani, I suggest you come to Lyon and try "tablier de sapeur".
A food specialty you would enjoy !

Thank you for the precious information you give us.
by jean-la-grenouille
Thu May 31, 2012 8:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

Re: legal action anyone ?

You want to have access to ccsvi treatment in Canada, so do we in France and many other countries. Legal action is one way, among others, such as lobbying, self-education.... Lobbying or self-education, are not powerfull enough to make our rights being respected. I agree we cannot suit doctors for d...
by jean-la-grenouille
Wed May 30, 2012 2:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'improvements never seen before'
Replies: 3
Views: 1253

Re: 'improvements never seen before'

Hi Tracker ! I think stents are still not very safe to be used in the IJV. Risk of thrombosis, clotting, migation...it depends of the venous obstruction and the physicians.... Thank you Cece for reminding us in a synthetic way, what we know about MS and CCSVI. Business applied to science, leads to c...
by jean-la-grenouille
Fri May 25, 2012 12:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

Re: legal action anyone ?

Hi Questor ! I have been diagnosed for CCSVI, but don't want to be treated until diagnose and treatment of CCSVI are well established. The way things are going, i may wait for some time .... Some hospital or doctors have offered and offers the "liberation treatment". Anyone has to be carefull with s...
by jean-la-grenouille
Thu May 24, 2012 8:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

Re: legal action anyone ?

Hi Gardenia and 1eye ! It is now 20 years since I was diagnosed. I have always looked for informations about MS research on the net, I tryed many things to escape this disease. What is the more difficult is not MS, it is to understand that nothing is done to help patients (eventhough good doctors ex...
by jean-la-grenouille
Wed May 23, 2012 2:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

Re: legal action anyone ?

Hi David ! The pharma industry doesn't serve patients interests, and corrupt scientific research. Many treatment are dangerous, don't help patients, and are expensive. Doctors themselves prefer "working" for the parma industry rather than patients care. False information is given to patients. In Fra...
by jean-la-grenouille
Tue May 22, 2012 10:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

Re: legal action anyone ?

@ britanyspores : I couldn't understand clearly what you wrote for my english is not so fluent !! Who are you and what do you want to do ?

@ Norm : thank you for the link, i'll check it soon !
by jean-la-grenouille
Tue May 22, 2012 8:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: legal action anyone ?
Replies: 16
Views: 2511

legal action anyone ?

It's difficult to obtain rigourous and effective scientific research about CCSVI . Much information has been published about multiple conflicts of interest and actions contrary to the interests of patients.

Does anyone think to legal action to enforce our rights? In the US or elsewhere...
by jean-la-grenouille
Sat May 12, 2012 12:03 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I was interviewed on CBC News regarding CCSVI and FDA
Replies: 18
Views: 2524

Re: I was interviewed on CBC News regarding CCSVI and FDA

Very nice interview ! What did your hair-dresser is really naughty. Fortunately your still so cute !!
by jean-la-grenouille
Tue Mar 06, 2012 9:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are your hands and/or feet cold?
Replies: 29
Views: 7487

Re: Are your hands and/or feet cold?

My hands and feet are always ice cold. When I'm cold i shake a lot.
by jean-la-grenouille
Tue Feb 28, 2012 12:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: neurologists fail to dissuade patients
Replies: 5
Views: 1068

Re: neurologists fail to dissuade patients

it's a shame to waste money for such an useless study.
by jean-la-grenouille
Mon Feb 20, 2012 11:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: pearltree
Replies: 1
Views: 681

Re: pearltree

site to help funding BRAVEDREAMS project :

http://bravedreams.ccsvi-sm.org/en
by jean-la-grenouille
Mon Feb 20, 2012 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: pearltree
Replies: 1
Views: 681

pearltree

Here is a link to access to Pearltree. This network aims at gathering any site related to MS and CCSVI. Anyone can help building this network by addind more websites, or translating in its own langage. Please, if you're interested in this network and have any idea to make it better, contact me throu...