This Is MS Multiple Sclerosis Knowledge & Support Community

I wish patients, doctors, and everybody a merry Chrismas

Dear DrSclafani, I suggest you come to Lyon and try "tablier de sapeur".
A food specialty you would enjoy !

Thank you for the precious information you give us.

You want to have access to ccsvi treatment in Canada, so do we in France and many other countries. Legal action is one way, among others, such as lobbying, self-education.... Lobbying or self-education, are not powerfull enough to make our rights being respected. I agree we cannot suit doctors for d...

Hi Tracker ! I think stents are still not very safe to be used in the IJV. Risk of thrombosis, clotting, migation...it depends of the venous obstruction and the physicians.... Thank you Cece for reminding us in a synthetic way, what we know about MS and CCSVI. Business applied to science, leads to c...

nice !

Hi Questor ! I have been diagnosed for CCSVI, but don't want to be treated until diagnose and treatment of CCSVI are well established. The way things are going, i may wait for some time .... Some hospital or doctors have offered and offers the "liberation treatment". Anyone has to be caref...

Hi Gardenia and 1eye ! It is now 20 years since I was diagnosed. I have always looked for informations about MS research on the net, I tryed many things to escape this disease. What is the more difficult is not MS, it is to understand that nothing is done to help patients (eventhough good doctors ex...

Hi David ! The pharma industry doesn't serve patients interests, and corrupt scientific research. Many treatment are dangerous, don't help patients, and are expensive. Doctors themselves prefer "working" for the parma industry rather than patients care. False information is given to patien...

@ britanyspores : I couldn't understand clearly what you wrote for my english is not so fluent !! Who are you and what do you want to do ?

@ Norm : thank you for the link, i'll check it soon !

It's difficult to obtain rigourous and effective scientific research about CCSVI . Much information has been published about multiple conflicts of interest and actions contrary to the interests of patients.

Does anyone think to legal action to enforce our rights? In the US or elsewhere...

Very nice interview ! What did your hair-dresser is really naughty. Fortunately your still so cute !!

My hands and feet are always ice cold. When I'm cold i shake a lot.

it's a shame to waste money for such an useless study.

site to help funding BRAVEDREAMS project :

http://bravedreams.ccsvi-sm.org/en

Here is a link to access to Pearltree. This network aims at gathering any site related to MS and CCSVI. Anyone can help building this network by addind more websites, or translating in its own langage. Please, if you're interested in this network and have any idea to make it better, contact me throu...