Search found 110 matches

by bigfoot14
Wed Aug 24, 2011 8:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Neuro Sense Poll
Replies: 14
Views: 1725

"all of the above" is now 57%

How did that happen?? :twisted:
by bigfoot14
Thu Jul 14, 2011 1:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: National MS Society one year studies update
Replies: 5
Views: 1773

In some cases they have also found that some participants who were contacted to go into the next phase of scanning informed the investigators that they had gotten the venoplasty procedure, which made them ineligible to continue in the study.

I guess some people couldn't wait......
by bigfoot14
Thu May 12, 2011 5:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who has had angioplasty and stopped drug treatment?
Replies: 26
Views: 4497

My wife stopped taking DMD's years ago, she tried both Beta-seron and copaxone, and neither one did anything for her. She had the procedure on Feb 23, 2011, and just had a follow up ultrasound yesterday, everything is still wide open and flowing. She is getting stronger and stronger...and is up to w...
by bigfoot14
Wed Mar 02, 2011 4:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is anyone comparing ultrasound vs. venogram?
Replies: 10
Views: 1944

Cece wrote:Bigfoot, doesn't he need to have the pre-procedure imaging to serve as indication or justification for the insurance company to go forward with the procedure? (I imagine he doesn't, since he's doing it that way!)
He uses your symptoms as indicating veinous compression....
by bigfoot14
Wed Mar 02, 2011 2:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is anyone comparing ultrasound vs. venogram?
Replies: 10
Views: 1944

The Dr my wife used doesn't suggest ultrasound or MRV....he said that if we wanted them he would order the tests, but for CCSVI diagnosis, considered them a waste of time & money

He does, however, use ultrasound as a follow-up, just to make sure the blood is flowing
by bigfoot14
Wed Mar 02, 2011 7:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 299848

Posted for my wife CCSVI TRACKING [Please use date format MM/DD/YYYY] MS HISTORY Name Susan Male/Female: F Age: 56 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): Dx 1988 RRMS moved to SPMS 2009 Lesion locations (most affected side, if known), number: mostly cervical with...
by bigfoot14
Mon Feb 28, 2011 4:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Word of caution
Replies: 19
Views: 5119

Dr. Cumming, glad to see you here on TIMS today! I've been meaning to ask in your thread if you've given up lovenox entirely for plavix instead? Is this due to what you'd been saying after ISET, that there wasn't much consensus on what anticoagulation if any? I'm interested in this as well....my wi...
by bigfoot14
Mon Feb 28, 2011 3:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Denied CCSVI table at MS Walks
Replies: 39
Views: 6638

Back on topic.....Zanne why don't you just have a bunch of T-shirts printed up for you and your friends to wear with something like

"Ask Me About CCSVI"


Then have some informational brochures with you to hand to anybody that asks
by bigfoot14
Fri Feb 25, 2011 1:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question about blood thinners
Replies: 0
Views: 1074

Question about blood thinners

My wife had her procedure on Wednesday....left Jugular was 70% blocked, right jugular 50% and the azygos 40% The azygos was the hardest to open, the Dr had to go to a 16mm balloon anyway, she is on 60mg of lovenox twice a day, and will be for 5 more days and it seems to wear her out... has anybody b...
by bigfoot14
Fri Feb 25, 2011 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Word of caution
Replies: 19
Views: 5119

I know of two doctors, when using Plavix, who start the Plavix 5 - 7 days ahead of the procedure. Seems smart to me. There was a video on the link? It didn't show up for me. :oops: My wife's Dr is one of them..plavix for 5 days before, (not the day of) and 6 weeks after lovenox the day of and for 7...
by bigfoot14
Tue Feb 22, 2011 9:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for the women
Replies: 4
Views: 1658

bluesky63 wrote:Don't guys have pubic hair too? :-)

By the way, I believe at least one physician does *not* shave. The patient, I mean.

Best wishes to you both. :-)
yes we do, and I shaved when I had my vasectomy.......I'm to manly to get waxed :P
by bigfoot14
Tue Feb 22, 2011 6:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Question for the women
Replies: 4
Views: 1658

Question for the women

My wife is having her procedure tomorrow, and wants to know if she should go get a bikini wax today to make the nurses job easier

Thanks
by bigfoot14
Mon Feb 21, 2011 12:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Thanaporn's mouse model of CCSVI!!!
Replies: 70
Views: 14540

Patientx posted this on another site

http://www.ncbi.nlm.nih.gov/pmc/article ... 41/?page=1

this study used rats, and lasted one week, I wonder what the results would be if the study went on for say 3-4 months
by bigfoot14
Sun Feb 20, 2011 4:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: chicago doc
Replies: 1
Views: 1418

Cece
I don't know..I'll ask him on Wed when my wife has her procedure....if he has I'll post it here

Now I'm going to CCSVI Locator to see what they're saying
by bigfoot14
Sat Feb 19, 2011 4:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Recommended diet for CCSVI Patients?
Replies: 7
Views: 2483

Re: Recommended diet for CCSVI Patients?

i read the ccsvi.org site 'helping myself' section and it promotes avoiding red meat and procesased foods/fats but as the site doesnt mention it, does anyone see a problem with consuming Dairy and Gluten? thanks My wife is having her first procedure on Wed. and we have been trying to get healthier ...

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