Search found 78 matches

by Moom9335
Sun Mar 12, 2017 1:19 pm
Forum: General Discussion
Topic: Progress?
Replies: 18
Views: 1284

Re: Progress?

Glad that I was able to supply an impetus for a really good discussion.
My wishes to all of you for relief and hopefully, less MS.
As for George, it doesn't really matter anymore, does it?
He knew what he did and did not want. What a man...miss him all the time.
by Moom9335
Sun Mar 12, 2017 10:33 am
Forum: General Discussion
Topic: Progress?
Replies: 18
Views: 1284

Re: Progress?

Vesta, Thank you for your input. It would take me an entire page to delineate the treatments that George tried for extended periods of time. His disease was progressive from the start. He did all of the things you have mentioned and many, many more. Yes, MS is a complicated disease and varies with t...
by Moom9335
Tue Mar 07, 2017 6:11 am
Forum: General Discussion
Topic: Progress?
Replies: 18
Views: 1284

Progress?

It's been four years since The Greek from Detroit died. He suffered from PPMS. I come back every so often to see what is new, and you know what is so sad? Nothing is new. There are no cures, no clue as to cause and constant progression for most. Unlike the HIV world wide groups, not enough unified p...
by Moom9335
Tue Aug 11, 2015 12:25 pm
Forum: General Discussion
Topic: "End Stage MS"
Replies: 50
Views: 30319

Re: end stage MS

Leesuh, Depending on your family's wishes and the state in which you live, your Mom can be brought home. Hospice can come in and keep her comfortable, pain free. Hospice does not come just if people are dying, but incapacitated and in degenerative condition. Speaking with a social worker may help cl...
by Moom9335
Tue Apr 28, 2015 1:13 pm
Forum: General Discussion
Topic: Medtronics Pain Pump
Replies: 0
Views: 857

Medtronics Pain Pump

VERY IMPORTANT NEWS Health | Mon Apr 27, 2015 6:58pm EDT Related: HEALTH Medtronic to halt manufacture of pain drug pump -U.S. regulators BY SUSAN KELLY (Reuters) - Medtronic Plc has agreed to stop manufacturing and distributing its SynchroMed implantable drug pump, U.S. regulators said on Monday, ...
by Moom9335
Wed Mar 04, 2015 7:37 am
Forum: General Discussion
Topic: George Bokos Tribute
Replies: 7
Views: 1400

Re: George Bokos Tribute

Two years since George, thegreekfromdetroit.com died. PPMS and still no answers, true management, cure or clue as to what disease this might be and where it comes from. Instead, our country leaders fight over meaningless personal agendas that help no one except their rich friends. So sad and so many...
by Moom9335
Sun Dec 28, 2014 10:27 am
Forum: General Discussion
Topic: "End Stage MS"
Replies: 50
Views: 30319

Re: nLamb2003

Be very proactive in asking why extractions are needed. Sometimes, extreme measures are taken when minimal care can suffice. Often, the shock of such treatments is very detrimental to the person, and, they suffer needlessly. Do not be shy about asking questions as well as refusing treatment you thin...
by Moom9335
Thu Apr 10, 2014 5:41 pm
Forum: Daily Life
Topic: Help in the morning to get ready for work?
Replies: 2
Views: 1950

Re: Help in the morning to get ready for work?

John,
When my son needed assistance for all the tasks you mention, he hired help from the internet.
There are a number of sites that have people looking for this kind of work.
I do not think that I can name them here, but if you PM me, I will
name them for you.
by Moom9335
Tue Apr 08, 2014 5:52 pm
Forum: General Discussion
Topic: Does this offer hope for PWMS who have spinal lesions
Replies: 8
Views: 1240

Re: Does this offer hope for PWMS who have spinal lesions

Would be wonderful. But, does the degenerative and progressive nature of MS preclude such a response?
by Moom9335
Wed Mar 05, 2014 6:18 pm
Forum: General Discussion
Topic: In Memory
Replies: 7
Views: 1269

Re: In Memory

HappyPoet,
I am proud and happy that George continues to inspire and encourage.
Believe me, he was just born a good and kind man.
We only gave him love and permission to be who he was.
So sorry, truly, for your hurt and suffering.
George's Mom
by Moom9335
Tue Mar 04, 2014 12:36 pm
Forum: General Discussion
Topic: In Memory
Replies: 7
Views: 1269

Re: In Memory

Dear Happy Poet, I thank you for all the research and the poem for George. He was born in April, so how apropos. He, however, did not make it to his 45th birthday. To add to your information, George never had relief from his spasticity once he had the Baclofen pump put in his body. The three surgeri...
by Moom9335
Sun Mar 02, 2014 12:00 pm
Forum: General Discussion
Topic: In Memory
Replies: 7
Views: 1269

In Memory

For all of you who followed the blog, Thegreekfromdetroit.com, I would like to have you remember that one year ago, March 3, 2013, George left this world of suffering. I have written a tribute that describes the man he was before MS. May all of you find healing, and may a cure be found so that MS wi...
by Moom9335
Tue Nov 12, 2013 12:06 pm
Forum: General Discussion
Topic: "End Stage MS"
Replies: 50
Views: 30319

Re: very progressive MS

VisionofVenus....NO ONE, and I mean NO ONE who is not experiencing what you and your daughter are can even begin to understand or relate to your lives. My son also had an aggressive, progressive case of MS. He tried EVERYTHING to heal himself. I will not go into any more detail,, but you can read hi...
by Moom9335
Wed Nov 06, 2013 4:46 pm
Forum: General Discussion
Topic: George Bokos Tribute
Replies: 7
Views: 1400

Re: George Bokos Tribute

Thank you all for your responses.
Your kind words regarding George are truly appreciated.
by Moom9335
Mon Nov 04, 2013 4:52 pm
Forum: General Discussion
Topic: George Bokos Tribute
Replies: 7
Views: 1400

George Bokos Tribute

The Myelin Repair Foundation has created a video honoring George Bokos, Thegreekfromdetroit.com. It was done for their September research conference in California. It is being shown on You Tube. He suffered and struggled so much from MS. Sad but glad his story and its impact is told. It is titled To...