Search found 89 matches

by Jaguar
Mon Oct 11, 2010 4:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nervous a little...?
Replies: 7
Views: 1961

I think you'll find that people with the mildest symptoms seem to get the best results from the procedure.
by Jaguar
Tue Oct 05, 2010 6:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone had any problems with Clexane?
Replies: 15
Views: 3934

I started Plavix in May. No side effects at all.

I won't be going off it anytime soon on advice of IR here.
by Jaguar
Fri Jul 09, 2010 12:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local MS sufferes throw support behind Reformed MS group
Replies: 26
Views: 4853

After speaking with my neurologist about these funding grants, I realize that there are many neuros who are also very dissatisfied with the grants and feel that the MS Society may have done more damage with badly chosen research projects
by Jaguar
Fri Jul 09, 2010 11:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local MS sufferes throw support behind Reformed MS group
Replies: 26
Views: 4853

Couldn't agree more
by Jaguar
Fri Jul 09, 2010 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local MS sufferes throw support behind Reformed MS group
Replies: 26
Views: 4853

Livabird-Rick Sorry to hear about Jayne. This is not easy for her. My MS has progressed since the procedure in Poland, but I have always been a skeptical believer, so it doesn't surprise me. I am not ready to believe that I have restonosed, or that blood is clotting my stent. I don't see why I shoul...
by Jaguar
Thu Jul 08, 2010 3:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local MS sufferes throw support behind Reformed MS group
Replies: 26
Views: 4853

Just a further note on the above In Canada the MSS put an average $9 for every MS sufferer in the country into CCSVI research, over 2 years. That's $4.50 per year. I know I gave them more than that last year!!!!!! In the States it's just a little over $5 (I sure hope that's not over 2 years, but I f...
by Jaguar
Thu Jul 08, 2010 2:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Local MS sufferes throw support behind Reformed MS group
Replies: 26
Views: 4853

Personally, I find the constant reference to 2.4 million dollars for CCSVI research by the MS Society reprehensible and insulting. The MS Society of Canada provided $700,000 - over 2 YEARS, yet they consistently try to convince everyone (quite successfully) that they have invest 2.4 mil. And the MS ...
by Jaguar
Wed Jun 30, 2010 1:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6140

As far as I know - we have absolutely no idea. Some of us who are "liberated" come to TiMS, many of us don't. You hear bits and pieces of info, but no clear picture exists. That's why there does need to be studies - we really have no idea what's going on. We think (and feel) that this procedure is t...
by Jaguar
Tue Jun 29, 2010 4:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6140

Mila, that would be a lot easier for you than for me! I would go to Ameds for the checkup... why not? Unless it is prohibitively expensive, which I would doubt. I'm off to my neurologist today - he has no time for CCSVI. He'll be suggesting that I start with cyclophosphamide, something I don't want ...
by Jaguar
Mon Jun 28, 2010 7:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: NO improvements after procedure
Replies: 24
Views: 6140

Hi Mila I too have worsened since i saw you in Katowice. I don't believe that the procedure has anything at all to do with it. I was already declining and that hasn't changed. I'll be back at the end of October - who knows what they'll see. It's not like I can get checked here in Montreal... In the ...
by Jaguar
Mon Jun 28, 2010 4:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Simka told me i had both jugular occluded! Only balloned
Replies: 7
Views: 2276

Barbara
I'm glad all went well. Enjoy Krakow.
Paul
by Jaguar
Fri Jun 25, 2010 12:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Montreal friends ... post-liberation (help)
Replies: 6
Views: 1967

No pain. I stayed in the hospital/clinic for the night (didn't sleep)

Then just needed a good night's sleep and I was good to go.

The only thing to watch out for is exerting yourself at the beginning - it seems only common sense not to raise your blood pressure (if you have a stent).

p
by Jaguar
Fri Jun 25, 2010 11:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Montreal friends ... post-liberation (help)
Replies: 6
Views: 1967

Le Saint Sulpice is perfect. It's not far from the center of the jazz festival (Ste Catherine and Jeanne Mance) Are you mobile and able to do a lot of walking? You are right beside a fabulous museum (archeological) of Montreal called Pointe a Callieres. It's not big and is a quick visit - well worth...
by Jaguar
Thu Jun 24, 2010 6:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My Montreal friends ... post-liberation (help)
Replies: 6
Views: 1967

Hahaha! What to do? the whole city has gone crazy starting today. You're coming just as our Jazz Festival starts... Hands down best Jazz Fest in the world. Music in the streets, in the bars, in concert halls. A huge area right downtown is closed off with stages on the street corners. Free music with...
by Jaguar
Sun Jun 13, 2010 12:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is the MS Society of Canada becoming irrelevant to MSers?
Replies: 13
Views: 2745

Yves Savoie said that the MSSC is "probably" a house divided. This is a great part of the problem- a reluctance to actually see what is really going on. It most certainly IS a house divided. I have lost all faith in the MSSC due to their handling of the CCSVI issue. As the only real source of resear...

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