Search found 124 matches

by aliyalex
Sat Oct 08, 2011 10:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Yawn stretch
Replies: 20
Views: 2200

Re: Yawn stretch

10 years ago I realized that when I took a deep breath I would feel a tingle in my fingertips. I questioned whether there was a circulation issue. Now that I am much more disabled, if I take a deep breath or yawn, I have a boost of energy. For example, when I am typing and very weak, the delete butt...
by aliyalex
Sat Mar 19, 2011 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117922

wow. interesting timing.
by aliyalex
Fri Mar 18, 2011 9:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117922

Hello cece, Dr. Sclafani worked on me for three hours and he said that he couldn't do it all in one sitting, that I would have to come back in a few months or would be too much work at once. most of what we talked about during the procedure is a blurr now. I have to review my records and unfortunate...
by aliyalex
Fri Mar 18, 2011 7:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

Dearest dearest Holly,

Thank you for being the organizer and the gatekeeper for my work with Dr. Sclafani. May all the wonderful contributions that you made to us come back to you triple fold. Fondly, aliyah
by aliyalex
Wed Mar 16, 2011 1:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117922

hello cece, I was treated by Dr. Sclafani February 4. I have quite a lot of discomfort in both jugulars. I went today for an ultrasound and the tech actually disclosed her findings. she found nothing that obstructed the flow. I was very relieved and a little bit surprised. She said that the main sym...
by aliyalex
Tue Mar 08, 2011 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

OMG! that's fabulous!
by aliyalex
Mon Mar 07, 2011 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

your happiness is contagious!
by aliyalex
Fri Feb 18, 2011 8:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

mavis, actually dr s did not say specifically that i would get a stent next time, just more work on the valve. his Comment about this stent was more thinking about future interventions. It was not so concrete nor was it impending. I hope I'm being clearer. realize that this conversation transpired w...
by aliyalex
Fri Feb 18, 2011 8:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

CeCe, in my opinion, dr S had already been working on me almost 3 hrs when he was having trouble w/ an azygous valve. he spent time trying to work w/ the errant valve and said he'd have to go in again in a few more months. realize that the respective illnesses are advanced in this subject, CCSVI and...
by aliyalex
Thu Feb 17, 2011 10:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

I went in the beginning of February. it was also not a secret. I wish I could have taken notes, but I couldn't. I heard words like elastic recoil, but I frankly don't remember where that was referring to. Perhaps the azygos. I remember of valve giving Dr. S problems in my azygos and I remember him s...
by aliyalex
Sun Jan 30, 2011 7:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117922

CeCe, i could ditto pretty much your whole story, except i heard about Dr S. from Marc, instead of Bestadmom. I go to brooklyn for a much needed follow up and more complete treatment in 4 days and a snow storm is expected in 3 days. Oh dear. So glad after all this time, we are finally being treated ...
by aliyalex
Fri Jan 28, 2011 12:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 117922

YEA!!!!!!!!!!!!!!!!! happy w/c dance.
by aliyalex
Wed Jan 26, 2011 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

That is way too much pressure for any human. Remember, you are merely an instrument.

And we patients have much skill in selecting our instruments.
by aliyalex
Mon Jan 24, 2011 2:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

I am settling for lovenox at $700 with Medicare without prescription drug coverage–out of pocket. Just for people's information.
by aliyalex
Mon Jan 17, 2011 1:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 34338

does anybody know the mailing address for holly and dr sclafani? thanks.

nevermind. i have it.