This Is MS Multiple Sclerosis Knowledge & Support Community

Thank you Dr. Sclafani! Yes, I was sent to a good hematologist. There were 4 points of inflammation found that would lead to hyper coagulation, however, after my 3rd procedure those went down to normal levels within about a month. That was the first time I had it tested, and I did so just for the re...

Hello, Brief history, I was treated at AAC in Towson. I was the very first patient treated there for CCSVI on January 10, 2011. AT the time 18mm balloons were used which i believe damaged the endothelium and thrombosis occurred in my left IJV. I have had 4 procedures (3.5 actually as once only one v...

Hi Marc, I truly appreciate your blog. Especially thank you for that article on the insanity virus. I have a sister that has schizophrenia and I, as you know, have MS. I also have inflamation in my blood. I think MS is really a combination of venous insufficiency and what is actually in the blood, l...

:D The actual term "troll" comes from the fishing term of the same name. The fisherman puts out the "bait" and then moves his line slowly through the water till a fish bites, then the fight begins and the fisherman has "got" the fish. :) here is a video that illustrates...

Physical Therapy as follow up to treatment for CCSVI Dear Dr. Sclafani, Thought I would try this in the public thread :) As you know, I was treated originally on January 10th, had thrombosis of the left IJV . . so that was cleared out on Feb 4th, I'm on coumadin. doppler showed some clotting again y...

Please try it again. I just clicked on it and it went right to the page. It contained the following information. List of PML diseases under Tysabri (January 2011) After the re-approval of Tysabri® (Natalizumab), there were the expected/feared PML disorders. I have generated a table with the main ava...

Continuous updated PML case list

http://chefarztfrau.de/?page_id=716


Please make this a Sticky.

A group has been started by Declan Walsh, husband of Natalie who now has PML due to use of Tysabri. If you know of someone affected by PML due to Tysabri, please send this link to them. The friends and family of three people (Angela, Marla and Natalie), who now have PML due to Tysabri. Are united on...

No offense but this thread is about Tysabri. I was just making an off handed flip remark and it was really not my intention to troll off topic. If people want to start a thread on the dangers of angioplasty, it would be more appropriate to discuss it in a thread having that particular topic dangers ...

That was due to a stent, not angioplasty. The man was not allowed to be treated in his country because he had the angioplasty and a stent done in Costa Rica (far from his home). Blood clotted around the stent, he could not get treated quickly. Any danger seems to be related to stents, not angioplast...

Two in October 2010 http://www.reuters.com/article/idUSN2024384420101020 Five in November 2010 http://au.advfn.com/news_Biogen-5-More-Cases-Of-Brain-Infection-In-Tysabri-Patients_45285816.html I have MS. A dear friend is one of the Five in November (she was diagnosed October 21, 2010, so i don't bel...

Hello, I am attempting to reach out to anyone local to the Maryland area. We have a Facebook group called Maryland USA MS CCSVI Group. I am founder of the group and am meeting all kinds of good people here in our state and nearby. I am also in contact with and connect people with Dr. Ziv Haskal who ...

Hi Dr. Sclafani! First I wish to thank you so very much for all of your care, compassion and hard work. I am so very grateful for real doctors like you who are actually interested in helping make things better. Please forgive me if you have answered this before. I have MS, and it is mind blowing (at...

It should be adapted to show no change but with all the other information. What type of MS, when diagnosed, treated . .etc . . . that is what i was getting at. There is not information with details on it at all. Up to you but would be better to be a bit more descriptive. Leave out what is not releva...

Hello all, I've not had angioplasty yet, although doppler showed reflux in both jugular veins. I am awaiting my date. There are a lot of posts to this thread that are responses. I am interested in a real compare results thread. I suggest a thread be made that mirrors the positive CCSVI Tracking proj...