Search found 5 matches

by helloworld
Sun Jan 08, 2012 5:49 pm
Forum: Antibiotics
Topic: Starting ABX for PPMS
Replies: 9
Views: 3676

Re: Starting ABX for PPMS

Hi Sarah,
Thank you for the info, I will let you know when I hear back.
Hope you had a wonderful weekend.
Sangita
by helloworld
Wed Jan 04, 2012 10:05 am
Forum: Antibiotics
Topic: Starting ABX for PPMS
Replies: 9
Views: 3676

Re: Starting ABX for PPMS

Hi Sarah, I just had a few dr appointments (one with an infectious disease dr) and they are pretty much clueless. I'm looking forward to being in touch with the Chicago dr. Thank you for not forgetting about me! From what I've read of your posts here and on cpn and your story on your husband's site,...
by helloworld
Thu Dec 29, 2011 8:10 pm
Forum: Antibiotics
Topic: Starting ABX for PPMS
Replies: 9
Views: 3676

Re: Starting ABX for PPMS

Hi Sarah, that totally makes sense about Doxy. I have a long road ahead of ahead, so I should consider all things. Another question, what do you think of Metronidazole vs Tinidazole? From what I've read of patient experiences on CPN.org, maybe better to start with tinidazole? What did you do? Thank ...
by helloworld
Wed Dec 28, 2011 7:44 pm
Forum: Antibiotics
Topic: Starting ABX for PPMS
Replies: 9
Views: 3676

Re: Starting ABX for PPMS

Hi Sarah, I really appreciate your response. I would love to be in touch with the dr in Chicago+the person with PPMS. One question I have for you was from your standpoint if I had the choice between rifampin or doxy which one should I go for given that my PPMS has progressed very rapidly? (2 years f...
by helloworld
Tue Dec 27, 2011 5:08 am
Forum: Antibiotics
Topic: Starting ABX for PPMS
Replies: 9
Views: 3676

Starting ABX for PPMS

Hello everyone, I have PPMS and live in NYC. My neuro and internist are supportive of me starting ABX treatment, but I can not find anyone who has prescribed the protocol before and who is comfortable with the stages and/or side effects. First question- have you heard of a dr that treats in Manhatta...

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