Search found 48 matches

by Alexandra
Fri Apr 21, 2017 11:55 pm
Forum: Undiagnosed
Topic: MS or another disease? Too many symptoms, 19 years old
Replies: 6
Views: 1654

Re: MS or another disease? Too many symptoms, 19 years old

Hi My sister has a similar issue as the one mentioned. She has symptoms similar to MS such as numbness and weakness of limbs, paresthesia, optical neuritis but the MRI does not show lesssions and the oligoclonalbands are coming negative in the blood tests. The doctors suspect her of antiphospolilidi...
by Alexandra
Sun Feb 22, 2015 12:08 am
Forum: Regimens
Topic: Helminthic Therapy
Replies: 1
Views: 2431

Helminthic Therapy

Dear All, I am on Gylenia since September 2014 and I would like to start the Helminthic Therapy but I am worried that since I am already under an immuno supressant medication I may be exposing myself to too many risks as my body immune response to any other viruses/ cancer would be completly incapac...
by Alexandra
Sat Jan 12, 2013 9:41 am
Forum: Introductions
Topic: Ayurveda treatment for MS
Replies: 20
Views: 12296

Re: Ayurveda treatment for MS

Could you share with the other members on the forum with which doctors and in which places you obtained good results?
by Alexandra
Tue Feb 07, 2012 9:58 am
Forum: General Discussion
Topic: Weird kind of Numbness
Replies: 8
Views: 1416

Re: Weird kind of Numbness

Hi there,

I had the exactly same sensation on my legs 3 weeks ago. My neuro said it is called paresthesia and he wasn't sure if it was due to an attack or not. I am scheduled for an MRI to figure that out.

Do you have this sensation all the time or it comes and goes?
by Alexandra
Mon Jan 16, 2012 11:43 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Successful phase III results for Alemtuzumab (Lemtrada(TM*))
Replies: 14
Views: 6846

Re: Successful phase III results for Alemtuzumab (Lemtrada(T

HI Raven,

What was the protocol you followed with Campath?

Do you know in general which are the results of the patients? I've been reading on the internet that the efficiency is around 48%. Which is your view over it?
by Alexandra
Sat Nov 19, 2011 12:21 am
Forum: Drug Pipeline
Topic: Betaferone in Dubai
Replies: 5
Views: 2952

Re: Betaferone in Dubai

Hi there,

You can go any neurologist in Dubai and the hospital will arrange the betaferon for you.

I prefer 3 hospitals in UAE: neurospinal, city hospital and welcare hospital.

Just book an appointment with a neurologist and ask for betaferon prescription.
by Alexandra
Sun Oct 02, 2011 5:13 am
Forum: Avonex
Topic: Avonex side efects two times in the week
Replies: 2
Views: 4431

Re: Avonex side efects two times in the week


I had the same problem on Avonex. She should discuss with her neurologist first and do a 6 months follow up MRI to see if Avonex is working or not. The side effects will reduce in time, for me it took about 5 months. I never felt really good on Avonex so eventually I changed to another CRAB.
by Alexandra
Fri Sep 16, 2011 1:20 am
Forum: Rebif
Topic: rebif & hair loss
Replies: 5
Views: 4056

Re: rebif & hair loss

I had the same problems on Avonex and Betaferon. However, the hair fall reduces after about 4-6 months. My doctor changed my multivitamin to one that has iron too and prescribed me an anti hair fall product from the market, from pharmacies (Vichy). It did help.
by Alexandra
Mon Aug 15, 2011 11:31 am
Forum: Avonex
Topic: Avonex, Betaferon or Rebif?
Replies: 19
Views: 12512

Avonex, Betaferon or Rebif

Hi Marcia,

I live in Dubai since 2007 and the medical services are very good and so are the doctors. The company will provide you an insurance that will fully cover your medication. Getting Rebif in UAE is not a problem at all.

Good luck
by Alexandra
Tue Jul 12, 2011 10:41 pm
Forum: General Discussion
Topic: What are your STRANGEST symptoms?
Replies: 9
Views: 1615

Strange symptoms

HI Dr. Diana, I had severe hair loss last year on Avonex to the point that I almost got bold. Then the hair growth started. This year, on Betaferon, I am again having bad hair loss. So I am not sure if it is the interferons or the MS. Another symptom that bothers me a lot is that if I talk on the ph...
by Alexandra
Tue Jul 05, 2011 10:17 am
Forum: Stem Cells
Topic: 18 month post-HSCT and still going strong
Replies: 16
Views: 5694

Post transplant

Hi George, You are an example for all of us. I am also in the initial stages of RRMS with 4 brain lessions and 3 spinal ones and a zero EDSS score. I contacted Heidelberg and plan to visit them soon as mentioned before. Can you tell me if you recommend me to the procedure now or wait? Wish you lots ...
by Alexandra
Sat Apr 16, 2011 3:36 am
Forum: General Discussion
Topic: Are there any other citizens of Limbo Land?
Replies: 1
Views: 1414

limbo land

A neurologist should run a few tests: Brain and cervical MRI, preferably 3Tesla, lumbur puncture, blood tests to make sure no other condition could cause the same symptoms. McDonald Criteria for MS sais you eitehr have 9 lessions and 2 consecutive attacks of different types, or lessions and the olli...
by Alexandra
Mon Apr 04, 2011 9:03 pm
Forum: General Discussion
Topic: Insurance coverage for MS in Holland
Replies: 0
Views: 1071

Insurance coverage for MS in Holland

I am currently living in Dubai and planning to move to Holland with work, as I can no longer tolerate the summers in the desert. Please let me know if MS treatments are covered in Holland and how the insurance and medical system functions.
by Alexandra
Mon Mar 21, 2011 12:31 am
Forum: Avonex
Topic: starting avonex
Replies: 8
Views: 4843

Stem cells

Dear Georgegoss, I had a discussion with my neurologyst yeasterday about stem cells transplant and although against it at the beginigng, he listened to me. He had some questions and hope you can help us with obtaining the answers: - did you perform an MRI post transplant, after the one year period? ...
by Alexandra
Sun Mar 20, 2011 9:32 am
Forum: Avonex
Topic: Avonex efficiency
Replies: 0
Views: 2722

Avonex efficiency

So my one year of Avonex finished and went for MRI. First, did the brain MRI that showed no new lessions: what a happiness. Then, did the cervical MRI and surprise: 3 new lessions. One 8mm, one 8.5mm and 1.2cm. I am so so scared...what does this mean? Is Avonex not working properly for me? So I aske...

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