Search found 3 matches

by Briggie
Tue Sep 28, 2010 6:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is "Liberation" the correct name ?
Replies: 16
Views: 5212

I've never been crazy about the term "Liberation" from the beginning, because it just sounded cheesy to me. But as I told a friend today, if I was the dr who came up with it, I could name it whatever I wanted. LOL But the idea that neurologists would be more behind it if it were called som...
by Briggie
Mon Sep 27, 2010 1:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tysabri patients..if you were asked..?
Replies: 2
Views: 2155

Hi, I was diagnosed almost 4 years ago. I spent almost 3 years on ReBif, and my neurologist wasn't happy the last year of it w/ my MRI scans, and I was getting worse, so he talked me into Tysabri. I've been on it a year now. Honestly, I hate being on Tysabri. It's not a problem w/ getting the IV's. ...
by Briggie
Thu Jun 17, 2010 7:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and "other neurological conditions"?
Replies: 4
Views: 2866

CCSVI and "other neurological conditions"?

I have MS. I'm waiting for a call back from Dr. Siskin and plan to travel to Albany to be treated. I also have a brother w/ MS. However, I also have a sister who has been in a wheelchair for 10 years because of Spinal Cerebellar Disease. When they finally gave her this diagnosis, my interpretation o...

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