Search found 5 matches

by 10yearsafter
Fri Aug 27, 2010 3:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MRI-No new lesions-But...
Replies: 14
Views: 6448

vivianne - no MRI of spine, just head and neck - yet they say 'no spinal stenosis' - go figure!

TYA
by 10yearsafter
Thu Aug 26, 2010 2:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MRI-No new lesions-But...
Replies: 14
Views: 6448

jamit,

I don't know about lesion load, probably because I have spent very little time in front of a neuro since my dx in 1999. Mostly because I refused drug therapy from the get go.

I would like to know if any one has seen a reduction in lesions? Or is it even possible?

Thanks! TYA
by 10yearsafter
Tue Aug 24, 2010 6:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MRI-No new lesions-But...
Replies: 14
Views: 6448

Wow marcstk!

Lesion load and disablity have never been explained to me before.

Unfortunately 'disability progression' is not part of my fantasy.

Thanks for the lesson.

TYA
by 10yearsafter
Mon Aug 23, 2010 5:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MRI-No new lesions-But...
Replies: 14
Views: 6448

New MRI-No new lesions-But...

Hi all, I was dx'd with MS in 1999. I just had an MRI with no active lesions. Yet my ability to walk continues to diminish [weak knees, lots of pain in calves, thighs]. So I have to ask 'if no new lesions, why is it harder to walk]??? I have looked at Mays Thurner and Vertebrobasilar Insufficiency. ...
by 10yearsafter
Wed Mar 17, 2010 11:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Iron metabolism panels should be a first
Replies: 89
Views: 17926

merylyn - this iron metabolism situation rings true to me! So much so I feel compelled to add my voice, instead of lurking here as I have done for about 4 months. I seem to be post-menopausal now but the last 15 years leading up to menopause were increasingly more painful. Sometimes, about 2 years b...

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