This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks for all the replies everyone. Much appreciated. A couple of thoughts from doctors.... I emailed the clinic where I had the procedure done, and they thought that the pain was likely to be psychogenic since it is still occurring more than 4 weeks post-procedure. I'm not sure what to make of thi...

Dr. Sclafani, Thank you for all the work you have put into answering our questions. I just wanted to ask one thing. I had balloon angioplasty of my left jugular vein in July 2010. I still have pain in that area on and off, every few days, particularly when I'm tired. I'm considering going back for a...

Hi everyone, I underwent balloon angioplasty of my left jugular vein in July. I am still experiencing pain in the same area that the angioplasty was carried out. It's not constant but comes and goes and has done since July. I am considering going back for a checkup next month, with the option of fur...

Hi Blossom Thank you so much for the reply. It really encouraged me. I had hoped it was a good thing too and think what you've said makes sense. I just couldn't understand why the sensations were so strong. My left jugular was 70%blocked pre-procedure so maybe the changes in bloodflow are even more ...

when i said good or bad feeling, your first post was clear as to what youir current situation is. so i wasn't too sure if you were feeling new sensations (warmth) that you haven't felt in awhile. any colour change? coldness? where did you get your treatment done? any post op. meds? Thanks. My warmt...

good or bad feeling? do you have the use of your legs? Just a weird feeling! I would say bad more than good though... I think it would be best to not be able to feel anything? Yes, my legs are generally not too bad. Some cramping and weakness but I am still walking and my symptoms are invisible.

Hi everyone, I am four weeks post-procedure and am noticing strange sensations in my calves, and wanted to check if anyone else is experiencing the same thing.... I'm finding it hard to find a doctor here to take CCSVI seriously so I don't hold out much hope for advice there! Basically, it feels lik...

Cool! I'll be the 30ish year old chap with his mum and sister!

don't tell me you're on the 6 am Ryanair flight too![/quote]


We're taking a couple of flights to get to Katowice, but yep we leave sometime around 6 am! We'll probably be the groggy looking couple in the hotel!

Hi Ozi, I'm also flying out on Friday and have the same schedule as you - hopefully ballooning on Monday too! Can't believe how soon the whole thing is. See you there! That's great, see you there! I'll probably be in my wheelchair. How will i recognise you? I have long blonde hair and am in my late...

Hi Ozi,

I'm also flying out on Friday and have the same schedule as you - hopefully ballooning on Monday too! Can't believe how soon the whole thing is. See you there!

Hi everyone, Just wanted to post my experience with LDN so far. I have just finished my first month of it. A little background.... I was diagnosed with MS in July last year after a very sudden onset of symptoms. Most cleared up pretty well (walking difficulties, speech problems, co-ordination etc) b...

Thank you so much pinksapphire. Overall cost seems good, and accommodation price is amazing, but the cost of diagnosis seems like a lot?

Thanks.

Hi everyone,

I'm new here too but got provisional dates for Bulgaria in Sep/ Oct. Very excited! Just wondering, would anyone have an outline of costs for there?

Thanks