Search found 44 matches

by Kate_PghPA
Thu Mar 21, 2019 11:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Low Blood pressure issues post angioplasty.....anyone else?
Replies: 23
Views: 9953

Re: Low Blood pressure issues post angioplasty.....anyone else?

off topic . . . have just come on here after long while...IS anyone getting "liberation; from ccsvi in 2019?

please kindly pm me where u had liberation done ..thanks !!
by Kate_PghPA
Thu Apr 10, 2014 6:11 pm
Forum: General Discussion
Topic: Copaxone for 10+ years?
Replies: 6
Views: 1277

Re: Copaxone for 10+ years?

MS diagnosed in 2000, after 'failing' avonex & rebif I've been on Copazone for c.11 yrs. no side effects EXcept I get
Pain at injection site ONLY in upper arms...so I don't inject there... God bless us all !! k.
by Kate_PghPA
Mon Nov 21, 2011 10:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Expo with Dr. Zamboni, Joan Beal, Dr. Sclafani & more!
Replies: 11
Views: 2651

Re: CCSVI Expo with Dr. Zamboni, Joan Beal, Dr. Sclafani & m

Just found out about this 'CCSVI Expo' 2011 ... Great Idea!!!

For those Tech challenged like me...here it is online
...
by Kate_PghPA
Mon Oct 03, 2011 7:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Re: MS is multifactorial and may need more than one treatmen

Hello Kate, I am pleased that you are recovering. It is important to record that you received IV steroids as well as physical therapy and hospitisation (rest) as well as further CCSVI treatment. Others seem to discount all treatments apart from CCSVI treatment, which is unwise in a complex disease ...
by Kate_PghPA
Thu Sep 15, 2011 6:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Re:

Greetings from the epicenter of the earthquake. I am so, so sorry to hear of your troubles. If your flow was decent earlier this year, who knows what is going on now? There is so much to unravel. I also had a dramatic downturn several months after angio, and thought the worst. The good news is that...
by Kate_PghPA
Wed Sep 14, 2011 7:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 113591

Re: Who are the BIG names in CCSVI ?

~ at last a Pittsburgh,PA 'performer' who's out in the Open ( AND he's associated with Hubbard Foundation Ccsvi Registry... ) Vascular Access Center of Pittsburgh Robert Worthington-Kirsch, MD 128 North Craig Street #100 Pittsburgh, PA 15215 (412) 683-4504 vascularaccesscenters.com ( Note: this Doc....
by Kate_PghPA
Wed Sep 07, 2011 6:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Re: Restenosis or SUPER Exacerbation or???--Please READ

Saw Vascular Surgeon in Pittsburgh today--this same Dr. did 'liberation procedure' ...opened up narrowed Jugular Veins in neck...Good news: all is still well per testing: Doppler Ultrasound ala Zamboni ! so why did I have MS flare up? God knows...so much is to be yet learned about MS and blood circu...
by Kate_PghPA
Fri Sep 02, 2011 4:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Finally Dr.back from vacation...

Finally Dr.back from 3 weeks ' vacation...


Sept. 7 Dr. X. Pittsburgh Vas.Surg. -original 'Liberator'
F/u appt Doppler US
ala Zamboni then Dr.visit...

gratefully, my insurer will pay for this... I hope!

thank you! kate
by Kate_PghPA
Thu Sep 01, 2011 4:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

update

...things are looking up... I'm walking around apt. without walker today! Exercising 3x day! really helps! still feel/look like "Herman Munster' in 'my unique gracefulness' Flaccid, spastic muscles are finally leaving!! Praise GOD! so my balance is much better!! thanks for your supportive listening/...
by Kate_PghPA
Mon Aug 29, 2011 6:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

update

confirmed: my 'liberator' MD IS out of the Country until Sept. 6

am trying to get D-dimmer test / Ultrasound ordered

what timing...GOD help me, please!

thank you all for your input
by Kate_PghPA
Wed Aug 24, 2011 2:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

t.c. to Pittsburgh 'liberator'

t.c. to Pittsburgh 'liberator' no call back after calling Fri. Aug. 19, t.c. again today explained situation ...no return call...:( Dr. may be at a loss as to what to do, if anything == actually doubt if I'm clotted: Plavix, ASA...may be neuro. flare up AND ortho??? bad back after 30+yrs. of nursing...
by Kate_PghPA
Tue Aug 23, 2011 1:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Dr S on vacation

well it seems my local Vas. surg AND Dr S. on vacation now... perhaps I've got my answer-- no rush for ReTreatment now... some things ARE out of our control... thank you all for being SO SUPPORTIVE...sincerely! oh, and today I got a Denial letter from insurer re: Acute Inpatient hospitalization--The...
by Kate_PghPA
Sun Aug 21, 2011 6:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

thank you all!

thank you for all your kind words and wishes--

I would love to get to Dr Scalafani asap== my generous sis in Jersey would
need more convincing to take me...she IS Skeptical

thank you so very much, kate
by Kate_PghPA
Sun Aug 21, 2011 1:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Restenosis or SUPER Exacerbation or???--Please READ
Replies: 38
Views: 5511

Restenosis or SUPER Exacerbation or???--Please READ

I have no pride. I am SO scared and indecisive!! was angio'd in Dec 2010, local Vas Surg...did pretty well--several improvements until 08 -18-11 new numbness that within days rendered me ambulatory ONLY with Walker--previously I used NO Ambulatory APPLIANCES! Hospitalized...MRI showed New 'Lesion' o...
by Kate_PghPA
Thu Dec 30, 2010 9:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 1/2 way 'liberated'?--RIJV ballooning- intense Head Pressure
Replies: 11
Views: 2421

@ Hannakat...thanks Trish...only problem was That Intense Head Pain...I'm hearing from a few pwMS that THIS is NOT that RARE...but Pain Immediately subsided with balloon deflation...and no more Head Pain :) ! We do have much MUCH more to learn about this Treatment! surprising, I am able to list seve...