Search found 7 matches

by dee522
Fri Aug 13, 2010 4:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 244046

What to do, what to do, that is the dilemma

I had CCSVI surgery on June 10th of this year and saw zero results. I went to Dr Gary Siskin in NY and he said I should wait a few more years to see if my symptoms worsen since the entire medical community is just researching CCSVI and there are no concrete answers as to why some see immediate resul...
by dee522
Mon May 24, 2010 8:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Message for Out218
Replies: 6
Views: 2869

CCSVI in Atlanta

Where can I go to get pre-screened in Atlanta? In fact... where can I get the pre-screening AND the CCSVI treatment in Atlanta. I Know the vascular surgeons do the treatment, but how would I go about finding them? I'd rather go in the country rather than international because I'd stll need monitorin...
by dee522
Mon May 24, 2010 8:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Message for Out218
Replies: 6
Views: 2869

CCSVI in Atlanta

Where can I go to get pre-screened in Atlanta? In fact... where can I get the pre-screening AND the CCSVI treatment in Atlanta. I Know the vascular surgeons do the treatment, but how would I go about finding them? I'd rather go in the country rather than international because I'd stll need monitorin...
by dee522
Wed May 12, 2010 4:04 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri and fertility
Replies: 21
Views: 10187

I know this topic was being talked about a while back on this forum but it is something I have worried about ad nauseum and I really don't want to say I won't EVER have children now BECAUSE I've been on Tysabri for 4 infusions! The last MRI was in April and there was shown to be zero activity and ze...
by dee522
Wed May 12, 2010 3:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Caution.....
Replies: 22
Views: 11175

I have been getting what I have termed 'the 3-day headache' because from time to time I get these severe migraine-type headaches that last for 3 - 6 days then go as quickly as they came. No rhyme or reason, just gone :roll: The headaches have been going on for about 3years now, and I just started Ty...
by dee522
Wed May 12, 2010 3:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Caution.....
Replies: 22
Views: 11175

What is a 'doppler' vs. a 'venogram'. Please educate me on this. Did they start out with doing only on or the other and now Dr Simka is/has done both as well :?:
by dee522
Wed May 12, 2010 1:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Simka (Poland)
Replies: 436
Views: 156700

Info on CCSVI treatment

Greetings MS family and friends I'm new to this blogspot and was hoping to gleen some info as to how I can get CCSVI done and whether Dr Simka's office does the MRV scans, or whether I would need to do them here (US) and then take them to Poland I need to know how to get in touch with his clinic and...

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