This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Mila, thank you for sharing your experience. You had a lot of courage ! You're a hero ! I'm sad that this happened. Just one question: Could it be a relapse from the MS and did you get cortisone or are you just waiting - sitting it out. - certainly with the bloodthinner ! Please keep us informed ...

My hearing ist also super sensitive, so you are not alone

Thanks Tmrox, thanks sbe487, sbr487, I have bain lesions :D and MS :D and I'm thinking of checking my vens but I'm felling good in the moment. I had one check of my vens but the doc didn't know anything about CCSVI. He didn't find anything. But he didn't use the zamboni or Haacke protokoll. It was q...

Hi,

do somebody know if there is somebody without MS but with CCSVI on this board ?
Ist there a special site / forum / facebook site for this people ?
Or how many there are till now ?

fliege

But how do we know how much had been liberated ? Is CCSVI a disease which must bee reported from the Doctors ? I know that there are some (I don't know how many) people who got the diagnose and treatment just by asking there doctors. These are people who heart something about CCSVI or there Doctors ...

thanks,

25 plus means that 25 are only the person you know because they say it here in thisisms oder the ccsvi-forum in Germany ?

Because I think 25 is not much for Germany.

So perhaps there is a estimated of unknows figures.

And nobody from Italy (Zamboni is living there) ?

Hi,

I'n really new here. It is my first post but I'm reading here for a long time.

Do anybody know, in which country how many liberation treatment are done till now ?

Is there a "central" collection map or something like this ?

Thanks a lot for this forum !!


Fliege