Search found 14 matches

by harpgirl
Mon Aug 02, 2010 4:05 pm
Forum: General Discussion
Topic: Had to give up Masters degree to MS..
Replies: 9
Views: 1909

I finished my Master's before the MS really kicked in. But I did change course. Was pursing a pedagogy/literature degree in vocal music. Wanted to be a college voice teacher. I didn't know at the time why I didn't have the stamina. I changed due to that fact. Don't regret getting one in Early Childh...
by harpgirl
Mon Aug 02, 2010 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1639137

I have a friend with the Marburg variant form of MS. He is very bad off and being taken care of by his family. He was diagnosed when I was in 2001 and 41 like me. His neuro (head of the Neuro Science institute has pretty much given up on him.) He does no treatments other than glyconutrients that his...
by harpgirl
Tue Jul 27, 2010 11:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Iron in the Brain
Replies: 2
Views: 1672

So would a low fat diet help the iron relationship?
by harpgirl
Sun Jul 25, 2010 2:42 pm
Forum: Drug Pipeline
Topic: Summary of the pipeline
Replies: 432
Views: 169383

Just read it all, and to everyone, AWSOME, just Awsome!
by harpgirl
Thu Jul 22, 2010 7:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154668

Thank you so much for this thread. Following it with great interest. I have many friends who have had amazing results, seen nothing to the contrary. I live with a lot of pain, periodic twitching, burning, fatigue and sleeplessness. Other than that no real problems. CCSVI excites and scares me all at...
by harpgirl
Tue Jul 20, 2010 6:39 am
Forum: Low Dose Naltrexone
Topic: LDN Users...Help
Replies: 18
Views: 9679

I am off pain meds and cymbalta because of LDN. The pain meds and cymbalta sedated me, so glad to have more of my life back.

It isn't a cure all, but because I could get rid of things that were harming me and not helping all that much, I am so much happier.
by harpgirl
Tue Jul 20, 2010 6:32 am
Forum: Low Dose Naltrexone
Topic: Experiences with Low Dose Naltrexone
Replies: 70
Views: 59732

I take 3 mg before bed and love the results. I am off my pain meds (still struggle with pain-not as much, but don't like the sedating effects of the pain meds.) Off cymbalta too. I will say taking LDN is a delicate balance as everything pretty much seems to interfere with it. If I have a little bit ...
by harpgirl
Mon Jul 19, 2010 2:15 pm
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 70837

I too would like to know if I can mix in water. I ordered powdered tumeric over the internet to use in foods. Have lots and wonder if it will benefit me to ingest via water.
by harpgirl
Sun Jul 18, 2010 2:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 154668

Thank you for this thread. Going to be following it.
by harpgirl
Sun Jul 18, 2010 2:16 pm
Forum: Parents with MS
Topic: Hello
Replies: 9
Views: 5777

I love this topic too. I am part of other mom groups on facebook, but no one can relate to what I am facing with the MS. So I keep to myself, and relate to them in their world. My name is Cindy but go by harpgirl as I am learning to play the harp. I have two boys 10 and 4, and am 41 years old. I had...
by harpgirl
Sun Jul 18, 2010 2:08 pm
Forum: Exercise and Physical Therapy
Topic: Running with MS
Replies: 21
Views: 21888

Thanks Alexandra, I have all those supplements. Where did get the booklet "Running with MS.? Would love to read it.

You guys have given me much to think about. I really appreciate it.

I like the rotating concept.
by harpgirl
Sat Jul 17, 2010 7:53 pm
Forum: Exercise and Physical Therapy
Topic: Running with MS
Replies: 21
Views: 21888

Those of you that run, do you struggle with spasticity? I have painful spasticity and work hard at keeping it under control. I tried running this week, just a little then walked mostly. Want to start a running plan for myself, but not sure the spasticity mixes well with that idea.
by harpgirl
Sat Jul 17, 2010 7:42 pm
Forum: Copaxone
Topic: Copaxone - daily vs. every other day???
Replies: 26
Views: 11747

I faithfully injected every day for eight years. Did great, but then started having some issued I just couldn't live with (had to fight against it.) I started on LDN and feeling and doing better while still taking Copaxone. So, now I forget to take my shot, and probably take my shot twice a week. Re...
by harpgirl
Sat Jul 17, 2010 7:33 pm
Forum: Copaxone
Topic: loss of appetite on copaxone
Replies: 5
Views: 5607

No. Are you sure it is the Copaxone? Are you taking Vitamin D, it can cause appetite loss, especially at a significant dosage.