Search found 9 matches

by AJMcE
Tue May 03, 2011 11:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 24 Hours Post CCSVI, I feel Horrible ! Please Comment
Replies: 26
Views: 6087

Doesn't sound good. I had a minor blockage which was ballooned. Just after the procedure I started shivering and shaking. The IR thought it was an allergic response, so gave me steroids. Stopped shaking, but stayed horribly alert and ratty for the next 24 hours, also had high temperature the followi...
by AJMcE
Sun May 01, 2011 11:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1817204

i speculate that the valves are often elongated and may just end up adhering to each other. However they could also be formed long and tubular. Opening such veins might lead to long trailing leaflets that might eventually come in contact and ultimately fuse. BUt i am not stating fact. I suspect tha...
by AJMcE
Sun Apr 24, 2011 10:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MULTIPLE PROCEDURES ON VALVES
Replies: 5
Views: 1705

As far as we know, the veins are tolerant of multiple balloonings. Some intimal injury is unavoidable anytime a procedure is done, even a guide wire going through can cause this. Best way to know if your jugular has returned to how it started is to get a cheap and easy ultrasound done. What stands ...
by AJMcE
Sun Apr 24, 2011 4:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MULTIPLE PROCEDURES ON VALVES
Replies: 5
Views: 1705

MULTIPLE PROCEDURES ON VALVES

I had a balloon angioplasty procedure in December 2010. The only problem found was a slight flow impairment (50%) in the valve in the LIJV, this was ballooned. After the procedure I felt really good, better balance and coordination, with much less fatigue. However, the improvements appear to have wo...
by AJMcE
Mon Jan 24, 2011 5:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: book
Replies: 18
Views: 3725

It seems like an absolutely brilliant idea.

It will be good to read about the impact that MS has on a highly responsible demanding career.

Will you be talking about CCSVI?, a degree in psychology may be useful in discussing the behaviour of neurologists.

Best Wishes
by AJMcE
Sun Dec 26, 2010 6:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Have we been thrown dust into our eyes?
Replies: 17
Views: 3894

EJC has made the point that CCSVI has to be worth a shot, I totally agree. At the moment there isn't anything else that gives symptom relief, for any time period at all. I had balloon angioplasty in Warsaw on the 17th Dec, I wasn't entirely certain that it was the right thing to do, but things were ...
by AJMcE
Tue Dec 14, 2010 8:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poll *Do you have headaches? often?*
Replies: 16
Views: 4808

I get headaches every week, with a migraine once a month. My Neurologist and MS nurse insist they are nothing to do with MS.
by AJMcE
Sun Dec 05, 2010 7:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does your Neurologist know about CCSVI?
Replies: 11
Views: 2805

The Neurologists I have spoken to know little about CCSVI, and are absolutely determined not to find out about it. The voting options should include outright hostility as well as differing levels of knowledge of CCSVI.
by AJMcE
Tue Nov 09, 2010 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Our favourite reference story: the ulcer conqueror
Replies: 5
Views: 1480

I have not posted before, but here goes. I am so pleased that the parallels between the Barry Marshall ulcer work and CCSVI have been pointed out. He spent a lot of time fighting against the then accepted medical view, that surgery was always required. He had to go to the extent of dosing himself wi...

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