Search found 119 matches

by Music
Thu Jul 23, 2020 6:06 am
Forum: General Discussion
Topic: Baclofen- friend or foe?
Replies: 11
Views: 718

Re: Baclofen- friend or foe?

Hi David, I take magnesium bisglycinate...have for several years. Helps me with my bowels, relaxes me and helps me sleep at night. If I miss a day or 2, I might get a cramp in a lower leg from a spasm. Magnesium Chloride gel also helps if I have burning heels at night. I sometimes put it on my hands...
by Music
Thu Nov 28, 2019 8:17 am
Forum: Daily Life
Topic: Robocalls
Replies: 4
Views: 591

Re: Robocalls

I've had 21 calls this morning starting at 7:30 and it's only 9am. We never answer numbers we don't know. No messages so far.

Okay, here's number 22........
by Music
Tue Oct 01, 2019 7:44 am
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 1674

Re: balance and gait improvement

Yes, I know about Montel and Helius. He has tried manyyyy things for his MS. I'm not a fan of his. Who really knows which or if all has helped him in some way. Good on him tho for being a go-getter. He does have the money so why not. And maybe he has a milder case???
by Music
Tue Oct 01, 2019 7:25 am
Forum: General Discussion
Topic: Just approved for Ocrevus
Replies: 8
Views: 1662

Re: Just approved for Ocrevus

Yes, I think alot of us are wondering why did "I" get MS when everyone you are related to drank lots, smoked and did drugs...and still do these things while you didn't and voila! They are still up and running and you aren't. Oh and you aren't related to anyone with MS or whatever. Lots of questions....
by Music
Mon Sep 30, 2019 7:12 am
Forum: General Discussion
Topic: balance and gait improvement
Replies: 13
Views: 1674

Re: balance and gait improvement

Thanks for letting us know about the PoNS zen. Montel Williams was just here promoting this and the clinic that uses it in our city. Said it REALLLLY helped him...in whatever city he used it. Hmmmm....
by Music
Thu Sep 12, 2019 8:36 am
Forum: Introductions
Topic: Medication
Replies: 12
Views: 1484

Re: Medication

Hi Jerry, Dxed in 1996, took Baclofen for 2 yrs...did nothing but gave me extreme insomnia but otherwise no MS medications. Probably b/c they didn't know what type of MS I had. In a w/c part-time by 1999...full-time by 2003. Stress was my big factor. I was stable till 2018. I really question whether...
by Music
Fri Sep 06, 2019 7:10 pm
Forum: General Discussion
Topic: Magnesium Oil is a Muscle’s Best Friend
Replies: 9
Views: 1967

Re: Magnesium Oil is a Muscle’s Best Friend

I use magnesium chloride gel on my feet before I go to bed at night to help with burning heels and so my feet stay relaxed all night...with a rolled hand towel between my feet. I also take 400mg of magnesium bis-glycinate a day.
by Music
Tue Jul 30, 2019 9:31 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 2602

Re: Swollen ankles and feet

Do you have closed toed or open toed stockings? I have open as they don't hurt me. To me they are easier to get on?? You can buy something called a Sleeve or special gloves to put the stockings on. My husband and the caregivers that I've had just struggled at first but it got easier. We never used a...
by Music
Tue Jul 30, 2019 7:16 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 2602

Re: Swollen ankles and feet

Hi Robbie,

Sorry, only saw this now. I have my husband or caregiver put them on me early in the morning and my hubby pulls them off at night. I can't use my hands that well anymore.

Terry
by Music
Mon Jul 29, 2019 11:33 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 2602

Re: Swollen ankles and feet

Hi Robbie,

Try wearing your stockings from before 11am till evening every day. Also put your feet up for a bit too during the day. I wear
a 20 - 30 compression. Wear what you can find until you can get assessed. Yes, I dream that I am walking alot.

Take care.........

Terry
by Music
Sat Jul 13, 2019 7:45 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 2602

Re: Swollen ankles and feet

Hi Robbie, Have you tried compression stockings? Maybe I've missed it. Not perfect but they help quite a bit! I also use the foot machine that you used too...on my second one...and a recumbent bike. I think you and I are pretty much similar. My day consists of a shower, getting dressed, breakfast an...
by Music
Wed Mar 06, 2019 12:29 pm
Forum: General Discussion
Topic: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD
Replies: 11
Views: 1400

Re: RE; MS STUDY SUPPORTS HITTING MS FAST AND HARD

Anunymouse,

I too was told "how lucky I was to have MS now" back in 1999. Whatever... Did we have the same neuro?? (jk)

Take care!
by Music
Sat Jan 19, 2019 2:19 pm
Forum: General Discussion
Topic: Neck/Back Pain
Replies: 3
Views: 818

Re: Neck/Back Pain

Hi,

I used to have this neck pain and tried a Nucca chiropractor. Treatment is painless. Don't think it was MS related tho. I had fallen a few years before and my core and neck had started to twist slightly.

Take care!
by Music
Sat Oct 06, 2018 4:09 pm
Forum: General Discussion
Topic: Not enough sunlight?
Replies: 5
Views: 683

Re: Not enough sunlight?

Hi elaine747, I had lots of sun when I was younger. I know someone in Texas that has MS too. Friends from The Philippines say there is lots of vitamin D deficiency there. An acquaintance from Africa says who really knows if there is no MS there as they don't have as much technology there as we do. S...
by Music
Wed Sep 26, 2018 8:08 am
Forum: General Discussion
Topic: Desatascador An informal, totally unscientific 'test'
Replies: 54
Views: 5942

Re: Desatascador An informal, totally unscientific 'test'

I have been using the desatascador since August 2. While I do not have big vision problems, I am feeling weaker and stiffer every day physically.

Any thoughts?

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