Search found 200 matches

by MegansMom
Thu Apr 19, 2012 2:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The numbers do not lie. Congratulations Professor Sclafani
Replies: 12
Views: 3272

Re: The numbers do not lie. Congratulations Professor Sclafa

I know I used to post a lot. My daughter had just been diagnosed (Aug2010) and treated and there was lots to learn and share. She was treated 1 month after her MS diagnosis. A real early intervention which freed her of 12 symptoms and if it wasn't for her MRI's you would never know she has MS now 18...
by MegansMom
Sat Apr 14, 2012 4:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Has anyone been treated by Dr. Arslan?
Replies: 12
Views: 1558

Re: Has anyone been treated by Dr. Arslan?

I have not been treated by Dr Arslen but I have met him a few times. And I know a few patients of his. You would find them on CCSVI FLORIDA Facebbok. Go to youtube and put in "ccsvi Barbara" I think he is a very good choice with good experience. I am an RN and the mom of someone with MS (35) who had...
by MegansMom
Fri Jan 13, 2012 3:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How are you doing since treatment??
Replies: 35
Views: 4212

Re: How are you doing since treatment??

I am going to post for my daughter Megan. She still has a tiny bit of denial, although since she is doing so well who could blame her? She was treated 1 month after her MS diagnosis Sept 21, 2010. Her symptoms were: Severe fatigue Headache, Blurry vision, L'hermittes sign Numb thighs Cog fog Insomni...
by MegansMom
Thu Dec 29, 2011 6:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI with a trach?
Replies: 6
Views: 1032

Re: CCSVI with a trach?

Although there are more things to consider besides a trach in someone paralyzed from the neck down for the physician to consider, I would think someone with a trach has less risk than a paralyzed person without a trach. A tracheostomy ensures a patent airway by removing the normal neck structures so...
by MegansMom
Wed Dec 28, 2011 12:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, cause or symptom?
Replies: 128
Views: 11120

Re: CCSVI, cause or symptom?

One must remember the routes of the blood emptying are varied depending on position of the body ( upright vs prone/supine) AND location and severity of the anomalies that partially block normal flow. (mal formed valves, webs, etc- each has a unique flow impeding %) these are quite variable. You are ...
by MegansMom
Wed Dec 28, 2011 10:45 am
Forum: General Discussion
Topic: I really need help, am I having symptoms of MS?
Replies: 4
Views: 1285

Re: I really need help, am I having symptoms of MS?

I would find an Interventional Radiologist that treats CCSVI and get tested for that first. Go to www.ccsvi.org and read up on it.
by MegansMom
Wed Dec 21, 2011 2:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Open letter: Dear Insurance Carriers,
Replies: 2
Views: 1090

Open letter: Dear Insurance Carriers,

Last year, in September 2010, my daughter was found to have CCSVI. In latter May 2010 she went on a cruise. She felt fine. She was for intents and purposes feeling great. Over June and July she was plagued with odd symptoms. In looking back her first symptom was a fall in the shower due to imbalance...
by MegansMom
Fri Sep 09, 2011 3:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heavy legs
Replies: 14
Views: 6842

Re: Heavy legs

Just go to the YouTube videos and put in "CCSVI before and after" and watch many with "heavy legs". The angioplasty helps improve many. Not all, but many.
by MegansMom
Tue Aug 23, 2011 5:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Syndrome by Team ZAMBONI - Key Papers
Replies: 67
Views: 11069

Bumping this post up...

It should be a sticky
by MegansMom
Tue Aug 23, 2011 2:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Understanding the BRAIN - resources & IPAD IPHONE APPs
Replies: 3
Views: 1081

I emailed them and asked them to add the venous system in the next version. Hope they do it.

I like how you can easily review what function different areas perform and visualize the pathology. They did a great job.

The other resources below the brain atlas are also quite good and they are free.
by MegansMom
Mon Aug 22, 2011 6:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: re: progressive MS not assoc, with CCSVI
Replies: 5
Views: 2166

If you think that this study is valid,you have not looked at the PPMS people on YouTube or on CCSVI tracker.

It's not a study but for these scientists to state as if their results are a fact is BS!

It was just a fact in this study.

It's not a fact it's a finding.
by MegansMom
Mon Aug 22, 2011 4:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: heterogeneity and perivenous MS
Replies: 6
Views: 1509

The perivenous areas are the ones that seem to have more iron deposits, much like the reflux causes turbulence in that area, but according to SWI MRIs the iron is also higher in the entire brain than normal controls. It's just concentrated at the verivascular areas. Also there are a few things going...
by MegansMom
Thu Aug 18, 2011 1:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Understanding the BRAIN - resources & IPAD IPHONE APPs
Replies: 3
Views: 1081

Understanding the BRAIN - resources & IPAD IPHONE APPs

This website http://www.finr.net/ has a few great resources for understanding the brain and brain injury. I love the iPad iphone app of 3d spinning brain model. I think it can help many people understand basics of anatomy and injury. The resources section is on the right margin and it's quite good. ...
by MegansMom
Thu Aug 18, 2011 7:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: another jig saw piece? Cholinergic system
Replies: 15
Views: 3053

This is even further interesting because the Hippocampus is extremely vulnerable to hypoxic injury.it's considered one of the most easily damaged Brain parts. And since "CCSVI caused hypo-perfusion/hypoxia " may be intermittent and chronic it's a definite fit of another piece of a very complex puzzle.
by MegansMom
Tue Aug 09, 2011 5:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No Cerebral or Cervical Venous Insufficiency in US Veterans
Replies: 21
Views: 3297

My daughter is ex- military. She did 5 active duty years. One was spent in Korea, she also served time in Saudi Arabia besides her time states side. She had CCSVI ( left IJV and Azygos) via venography. I truly question these testers. Too many folks who were tested with MRV, or Doppler and deemed Not...