Search found 12 matches

by roadaction13
Mon Jun 27, 2011 5:13 pm
Forum: General Discussion
Topic: MS docs in NYC?
Replies: 3
Views: 1039

MS docs in NYC?

I'm relocating to NYC this week and will be looking for new care provider who is highly collaborative with his/her patients (rather than just telling them what to do), who is supportive of complementary therapies, and who is part of a comprehensive clinic. I have RRMS and am on tysabri, though I'll ...
by roadaction13
Thu Mar 17, 2011 5:05 pm
Forum: Natural Approach
Topic: klenner protocol
Replies: 46
Views: 20556

just started klenner protocol

thanks to the information on this thread, I collected the supplies and started last week.

I'm hoping it will help my neuropathy. I've decided to stick it out for three months.

thanks everyone.
by roadaction13
Wed Mar 09, 2011 10:07 am
Forum: Gilenya
Topic: Switching from Tysabri to Gilenya
Replies: 4
Views: 4627

Thanks so much for this information.

Did either of you do the switch?

I am considering it.

It seems to me that fingolimod has a narrower method of immunosuppression than natalizumab, plus I do not want to risk PML.
by roadaction13
Mon Feb 28, 2011 1:41 pm
Forum: Low Dose Naltrexone
Topic: Do the dreams subside?
Replies: 1
Views: 3256

Do the dreams subside?

I have been on LDN for about 3 months, but at first was also taking 20 mg/night of amitriptyllne, which is sedating. I'm working on getting off the amitriptyline, and am now down to 10 mg. It's been about 2 weeks on the lower dose, and I've found that the vivid dreams that started when I started the...
by roadaction13
Sat Feb 05, 2011 4:50 pm
Forum: General Discussion
Topic: The impact of parasite infections on the course of multiple
Replies: 12
Views: 2368

sure, everything helps!
by roadaction13
Sat Feb 05, 2011 4:36 pm
Forum: General Discussion
Topic: The impact of parasite infections on the course of multiple
Replies: 12
Views: 2368

yeah well that's the thing - I want off of tysabri - tested positive for JC virus, going in for infusion #7 or 8 next week... but the wormsellers say that you should stay on your treatment and slowly reduce the dose over 3 months - which makes me think they havent' dealt much if at all with tysabri,...
by roadaction13
Sat Feb 05, 2011 4:22 pm
Forum: General Discussion
Topic: The impact of parasite infections on the course of multiple
Replies: 12
Views: 2368

Do you know if there are any MS patients who have started helminth therapy while on tysabri?
by roadaction13
Fri Feb 04, 2011 6:30 pm
Forum: General Discussion
Topic: The impact of parasite infections on the course of multiple
Replies: 12
Views: 2368

Re: The impact of parasite infections on the course of multi

Thank you for this information. I'm confused by the language - is this a good or a bad thing: "Helminth-infection control was associated with significant increase in clinical and radiological MS activities." Do they mean that controlling the infection - i.e. giving anti-parasite treatment to those 4...
by roadaction13
Sat Jan 15, 2011 12:03 pm
Forum: General Discussion
Topic: POST-postpartum relapse stats
Replies: 0
Views: 1228

POST-postpartum relapse stats

If someone had no flares or only minor flares (sensory symptoms only), and has their first or first significant flare post-partum, is there ANY data about how likely it is they would continue to have major flares vs. not have flares or have only minor ones? I am currently on tysabri, which I started...
by roadaction13
Sat Jan 15, 2011 11:58 am
Forum: General Discussion
Topic: postpartum relapse stats
Replies: 9
Views: 2870

my postpartum flare

i think the stats are something like 80% chance of postpartum flare in first 6 months, 30% if breastfeeding. I breastfed, ate healthy, all of that - and had a bad flare (for me, having only had flares with sensory symptoms before) with a lot of pain, trouble walking, weakness, tremors, swallowing pr...
by roadaction13
Sat Jan 15, 2011 11:37 am
Forum: Regimens
Topic: Helminthic therapy(treatment using hookworms)
Replies: 139
Views: 33173

concurrent treatment with helminths?

hi all - thanks so much for this fascinating and informative thread. I have RRMS and am currently on tysabri (infusion #6 was yesterday)... but I want to get off in the next 6 months or so, since I have tested positive for the virus that causes PML and I don't want to risk getting it. So I've been l...
by roadaction13
Sat Jan 15, 2011 11:03 am
Forum: Low Dose Naltrexone
Topic: Side Effects while on LDN...
Replies: 54
Views: 76944

Side effects on LDN

"I had side effects while on LDN treatment for Multiple Sclerosis. I am ___ years old I am ___ (male/female) I have RR/SP/PP/PR MS for ___ years I tried LDN for ___(days/months/years) long (if multiple times, provide info on latest attempt) I took 4.5 mg's per night I obtained my LDN from Bayview Ph...