Search found 187 matches

by shucks
Sun Jun 10, 2012 2:01 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 50055

Re: My CtrlAltDel - Status

Kevin, congrats, and please keep us up on your recovery.
by shucks
Sun Jun 10, 2012 6:19 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 50055

Re: My CtrlAltDel - Status

Way to go Asher. Please keep us posted. I am very grateful for the insight.
by shucks
Sun Jun 03, 2012 6:37 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 40137

Re: 2 Years Post HSCT And MS Still Stopped

It has been pretty lonely around here Potts. My job and position make me unlikely to join the Facebook page, and since It is members only, I can't lurk.
by shucks
Sun Jun 03, 2012 6:30 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: HiCy in Europe
Replies: 8
Views: 5949

Re: HiCy in Europe

Any time you get a neuro outside of crab drugs, my experience is that they get shifty pretty quickly. I think that doing your own research about treatments is the only way to go. I have been looking into hsct for the last year and a half, as my research led me to that as the most effective treatment...
by shucks
Sat May 19, 2012 4:13 pm
Forum: Stem Cells
Topic: Insurance gave me tHe final no for Burt trial.
Replies: 1
Views: 1788

Insurance gave me tHe final no for Burt trial.

So I got my final no from bcbssc on dr Burt's trial. I have pulled out all of the stops on the appeals, and now I only have the option of appealing to the state insurance board, who can order them to pay since it is a state health plan. Just thought you Guys thinking of hsct in the Burt trial should...
by shucks
Sun Apr 15, 2012 2:09 pm
Forum: Stem Cells
Topic: Article responses on hsct?
Replies: 26
Views: 3981

Re: Article responses on hsct?

When I met with dr Burt, they told me that I didn't have any active lesions, but the lesion load has increased substantially, so I guess the inflammatory stage can be diagnosed in either of those ways.
by shucks
Thu Apr 12, 2012 3:42 am
Forum: Stem Cells
Topic: Article responses on hsct?
Replies: 26
Views: 3981

Re: Article responses on hsct?

The main reason I posted the article was the startling differences in the progression rates in the study compared to what I have read elsewhere. I always learn a ton when you science guys get rolling on these topics. It is always. Good to see Dave around TIMS. I know I am coming in late (work has be...
by shucks
Tue Apr 03, 2012 5:57 pm
Forum: Stem Cells
Topic: Article responses on hsct?
Replies: 26
Views: 3981

Article responses on hsct?

by shucks
Mon Mar 26, 2012 5:13 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 40137

Re: 2 Years Post HSCT And MS Still Stopped

Lisa is one of the folks who started me on the journey to try to get this treatment (along of course with You guys around here) and she is a great lady. I wish her the best.
by shucks
Wed Mar 21, 2012 1:03 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 40137

Re: 2 Years Post HSCT And MS Still Stopped

What i was told was that a relapse usually occurs in those that get the "fever that no one can explain" during the Lympho ablative. That is just what I take from my meeting with NWM.
by shucks
Wed Mar 21, 2012 1:00 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 50055

Re: My CtrlAltDel - Status

I just got the news that my insurance pre approved all of the "pre HSCT testing" while not promising anything about the procedure. Even better, NW is allowing me to get most of the list of tests done at home, over 1k miles from chicago, and send the results to them. COuld this be a sign that they wi...
by shucks
Sun Mar 18, 2012 3:54 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 50055

Re: My CtrlAltDel - Status

Good luck Kevin! I will lurk the hsct fb page, but. The nature of my job requires that I keep my health stuff close to the vest. Here at least, it is semi anonymous. I have talked to many of you through pm and email, but public forum might cause me some issues. Thanks for all of the advice, and I wi...
by shucks
Fri Mar 16, 2012 3:46 am
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 50055

Re: My CtrlAltDel - Status

Its really enlightening to hear a frank but optimistic perspective. I hope you reach your every goal with the treatment. I am still fghting insurance to get into Dr Burts study. You packo and George are real assets. I have been corresponding with someone who had the non myleabltive about the same ti...
by shucks
Sun Mar 04, 2012 1:15 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 40137

Re: 2 Years Post HSCT And MS Still Stopped

Way to go George.
by shucks
Sun Feb 26, 2012 6:15 pm
Forum: Stem Cells
Topic: 2 Years Post HSCT And MS Still Stopped
Replies: 167
Views: 40137

Re: 2 Years Post HSCT And MS Still Stopped

HUD, did your fever lead to a mild relapse? Dr Burt told me that that was the biggest risk with the nutripenic fever.