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I have a question, do you and your valuable employees already tried to search after a muscle compression ? if you are convinced of the translated study, will you perform this investigation in your future and your former patients (with unsuccessful dilation) ?.
I am not convinced at this time that compressions should be treated. Today i had a patient who had compression in J3 at the level of the stylohyoid compression. When the patient flexed the neck the compression went away. When he coughed it also went away.
At this time i would defer to a university center that is performing this surgery.
Thank you
When I turn my head to the left there is blood flow in the jugular but when my head is streight there is no blood flow ( stop flow ) and this is not a normal condition.
I can not walk around with the head turned to the left to have blood flow
I hope to have soon the oppurunity to explore this issue
I have a question, do you and your valuable employees already tried to search after a muscle compression ? if you are convinced of the translated study, will you perform this investigation in your future and your former patients (with unsuccessful dilation) ?.
I am not convinced at this time that compressions should be treated. Today i had a patient who had compression in J3 at the level of the stylohyoid compression. When the patient flexed the neck the compression went away. When he coughed it also went away.
At this time i would defer to a university center that is performing this surgery.
Thank you
When I turn my head to the left there is blood flow in the jugular but when my head is straight there is no blood flow ( stop flow ) and this is not a normal condition.
I can not walk around with the head turned to the left to have blood flow
I hope to have soon the opportunity to explore this issue
There is another possibility; it involves the styloid process blocking the carotid sheath [which contains an artery]. The neurosurgeon who removed the bone spur on my C1 related that he had a patient who would pass out when his neck was rotated in a certain direction. He removed the styloid process and the patient no longer would pass out.
I would strongly suggest a 3D cat scan of the upper neck/base of skull to get an image of what might be involved.
Cece wrote:Any other strategies or concepts on the docket to be explored in 2012?
1. 12 month followups of patients treated in 2011
2. Development of CCSVI Centers of Excellence at American Access Care
3. Dural sinus and deep cerebral vein pressure measurements with IVUS before and after treatment
4. A Bigger and Better Symposium
5. PwMS talent show at the symposium
6. Greater networking worldwide
7. publishing, publishing, publishing
This is from some time ago but I don't remember if anything ever came of #3? Are there differences in dural sinus or deep cerebral vein pressure measurements with IVUS before and after treatment? If there are, does that establish CCSVI as a hypertension?
I started this thread because i saw some misinformation regarding CCSVI and its treatment being shared by two patients. I felt compelled to set the record straight and this led to an outpouring of expressions of interest and curiosity. I found myself answering questions on many threads and was getting lost. Thus i created DrSclafani answers some questions where patients and their caregivers could share concerns and questions and hopefully find some answers.
We are all learning about this as we go along. I hope that I am helpful to the cause.
drsclafani wrote:Cece, I think that the more patients understand of the details, the more their physicians will look at the details.
There was a paper presented once that showed that when pictures of the face of the patient were included with the images of the CT scan, the reports were more detailed. My goal is to have patients put an educated face forward, with the hope that they will get a more committed response.
Dear Dr Sclafani,
congratulations from a long-time "lurker" from Germany for this very helpful thread and for taking your time for explanations! Please stick to your most appreciated commitment for patients and CCSVI!
Thank you very much and best wishes
- Marcus
Oh my, see how fast time can fly !
Your thread of gold is close to four years old !!
Thanks so very, very much for all the help you've given us !!!
SPECIAL NOTE: In honor of DrS' thread reaching 1,000,000 views, NHE and Cece created the sticky index thread called Dr. Sclafani's CCSVI Case Studies located at the top of the CCSVI sticky section.
HappyPoet wrote:SPECIAL NOTE: In honor of DrS' thread reaching 1,000,000 views, NHE and Cece created the sticky index thread called Dr. Sclafani's CCSVI Case Studies located at the top of the CCSVI sticky section.
I first learned of the project from you, HappyPoet, so credit is due to you as well!
MSandI wrote:Thank you for your reply. I do have 2 burning questions. Are you the Dr in Albany, NY? And why is it in Canada they will not do the dopler xray if you have ms? Any suggestions? Thanks
Ann
Hi Dr Sclafani,
My mother have been discussing ccsvi, in in doing so a subject was brought up by my mom. She told me while she was pregnant with me she got sick and was put in the hospital for the last few months of pregnancy. She told me that the doctors told her she had toxemia (preeclampsia today). I started to google it and it seems that when the mother gets toxemia the is a shortned supply of blood flow to the baby via the placenta. Does that make someone like me (rrms), a good candidate for ccsvi?
Ann http://www.hmhb.org/virtual-library/int ... eclampsia/
