If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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ThisIsMS Upgrade
Replies: 9
First post
Greetings,
We have recently upgraded the ThisIsMS forum software to the latest version of phpBB. We are still working on the site to fix any of the...
Last post
Some of you may have noticed that the forums are now displaying relative dates for posts, e.g., 2 moths ago, instead of the actual date and time of...
- 9 Replies
- 291 Views
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Last post by NHE
5 days ago
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New treament forum - Medical Marijauna
Replies: 6
First post
We now have a new forum focusing on discussion of medical marijuana in the treatment of MS.
Last post
Hi
Are you using edibles for the spasms? What dose is working for you? or do you find relief with smoking it?
tiff
- 6 Replies
- 5578 Views
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Last post by Tif
6 months ago
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New treatment forum - Ocrevus
Replies: 3
First post
We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.
Last post
Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus...
- 3 Replies
- 6864 Views
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Last post by Kheuer
2 months ago
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Site registration problems
Replies: 2
First post
We are currently experiencing problems with our email system sending out activation emails. If you have tried to register, but didn't receive the...
Last post
If you use a temporary email service and your activation notice email bounces back as undeliverable, then the associated account will likely be...
- 2 Replies
- 23374 Views
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Last post by NHE
2 months ago
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New treatment forum - Biotin
Replies: 17
First post
We now have a new forum dedicated to the discussion of MedDay's new biotin treatment for SPMS called Cerenday.
Last post
that was one single food actually (the rest just come along with the source link) in response to the 'red herring' comment...
- 17 Replies
- 12894 Views
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Last post by jimmylegs
1 year ago
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Scalarwave Lasers - Have you used one?
Replies: 6
by
ElliotB »
7 months ago
First post
I am seeing a doctor who has this device and tried it out a few days ago. Frankly don't know if it can help me but it is not overly expensive and may...
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I have been using the laser for about a week and a half. I think it is helping me with my nerve pain but I don't know for sure. It is going to take...
- 6 Replies
- 779 Views
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Last post by ElliotB
6 months ago
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- 0 Replies
- 567 Views
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Last post by Patraw
6 months ago
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- 0 Replies
- 630 Views
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Last post by frodo
6 months ago
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Mono Virus Linked to 7 Serious Diseases Including MS
Replies: 1
First post
HI FRIENDS PLEASEREAD
regards
seeva
Last post
HI FRIENDS PLEASEREAD
regards
seeva
Thanks. Mono virus is the Epstein-Barr virus (EBV), and I would say that nobody anymore doubts about its...
- 1 Replies
- 835 Views
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Last post by frodo
6 months ago
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- 0 Replies
- 539 Views
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Last post by frodo
6 months ago
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For the newly diagnosed - from a (sorta) old timer
Replies: 4
First post
This post is for the newly diagnosed. I remember being where you are and feeling scared as hell, thinking that my life as I knew it was over. My...
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This is far from a scientific observation, but the people I have known who did not take any DMT have not fared well.
Many people who do not take...
- 4 Replies
- 656 Views
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Last post by Zyklon
6 months ago
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New MAB: Ublituximab Completely Reduces MS Lesions
Replies: 6
First post
Report about a new monoclonal antibody (MAB): Ublituximab Completely Reduces MS Lesions. It seems that is a anti-CD20 MAB, that reduces B-cells...
Last post
Silica gel crystals are hydrophilic. That means they love water. They soak it up until they are bloated. It's like wearing a wet rag around your neck...
- 6 Replies
- 871 Views
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Last post by 1eye
6 months ago
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Geneuro
Replies: 3
by
watoo75 »
6 months ago
First post
Biotech Showcase™: GeNeuro homes in on ancestral viral genes to treat autoimmune diseases
Focusing on an idea that many autoimmune diseases are...
Last post
Gnbac1 is the key.
- 3 Replies
- 659 Views
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Last post by watoo75
6 months ago
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- 0 Replies
- 672 Views
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Last post by frodo
6 months ago
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EFAs (essential fatty acids)
by
ElliotB »
6 months ago
I get newsletters from a company I order food from and while they are all excellent, this current one discusses a subject of extreme importance when...
- 0 Replies
- 579 Views
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Last post by ElliotB
6 months ago
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RE:GUT INFLUENCES NEUROLOGIG DISEASE, M.S
Replies: 1
First post
HI FRIENDS PLEASE READ FROM U.K HOSPITAL
regards
seeva
Last post
HI FRIENDS PLEASE READ FROM U.K HOSPITAL
regards
seeva
this thing on microglia astrocytes activation etc may all be true and the gut may produce...
- 1 Replies
- 775 Views
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Last post by Leonard
6 months ago
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Interesting Information About Lectins
Replies: 7
by
ElliotB »
8 months ago
First post
I know I am affected by gluten. I am pretty sure that I also have issues with lectins and, as such, have stopped eating vegetables (and most fruits)....
Last post
Truly glad it is working for you!
- 7 Replies
- 902 Views
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Last post by ElliotB
7 months ago
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Tysabri and sunburn?
Replies: 5
by
koneall »
7 months ago
First post
I don't spend much time outdoors. An hour or so at lunchtime spent jogging is about it. So why do I have a rather deep tan and constant peeling...
Last post
Thanks for the replies. One concern with tysabri is JC virus, benign in most people but dangerous to anyone with MS. That suggests it's having a...
- 5 Replies
- 642 Views
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Last post by koneall
7 months ago
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my blog
Replies: 8
Hello, everybody :-)
I have not been on this forum for a long time. It is not because I prefer facebook. In fact I do not consider myself one of the...
- 8 Replies
- 1052 Views
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Last post by 1eye
7 months ago
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Google War on My "ms cure" Site.
Replies: 5
First post
It appears my site MSCureEnigmas has engendered a conflict between the « censor » who wishes to discard it entirely and a « guardian » who works to...
Last post
Neither Canada nor the US is anymore a democracy. They are technocracies. We are ruled by the iron hands of technology, technologists and money. FDR...
- 5 Replies
- 1018 Views
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Last post by 1eye
7 months ago
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If have to discontinue Tysabri
Replies: 5
by
odin1243 »
7 months ago
First post
Hello, My doctor is concerned about my staying on Tysabri. I have been on it for over nine years, but have been doing well. I am JC positive. Has...
Last post
If I were JC positive, and on Tysabri, I would not go cold turkey. I don't know what I'd do. Good luck. Don't listen to me.
- 5 Replies
- 812 Views
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Last post by 1eye
7 months ago
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- 0 Replies
- 640 Views
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Last post by ElliotB
7 months ago
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Gut microbes and the brain
Replies: 6
First post
Gut microbes and the brain: paradigm shift in neuroscience.
J Neurosci. 2014 Nov 12;34(46):15490-6.
The discovery of the size and complexity of...
Last post
Adjunctive probiotic microorganisms to prevent rehospitalization in patients with acute mania: A randomized controlled trial.
Bipolar Disord. 2018...
- 6 Replies
- 1156 Views
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Last post by NHE
7 months ago
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miRNA Exosomes Promote Myelination
Replies: 2
First post
What are exosomes and how can they be used in multiple sclerosis therapy?
Expert Rev Neurother. 2014 Apr;14(4):353-5.
Current treatment options...
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Environmental Enrichment Stimulates Immune Cell Secretion of Exosomes that Promote CNS Myelination and May Regulate Inflammation.
Cell Mol...
- 2 Replies
- 642 Views
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Last post by NHE
7 months ago
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has anybody heard about Bryostatin?
It seems that it is a new drug on trials. Has anybody tried it?
Bryostatin-1 as a macrolide and marine natural product has been selected as a...
- 0 Replies
- 692 Views
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Last post by frodo
7 months ago
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Right to Try Act
Replies: 3
by
David1949 »
7 months ago
First post
New legislation known as the Right to Try Act will allow terminally ill patients to try drugs that might help them even though the drugs have not...
Last post
In Australia we have compassionate grounds laws which allow access to unapproved treatments, and you don't need to be terminally ill to have access...
- 3 Replies
- 665 Views
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Last post by David1949
7 months ago
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Travel to US and flaxseeds?
Replies: 3
by
pawel96 »
7 months ago
First post
Hi,
I know this is slightly off topic - but maybe you guys can help a little and give some hints.
There is a chance I will be travelling to US in...
Last post
Whole foods stores are located through out the US and have high quality flaxseed oil and flaxseed. If you are looking for organic cold pressed...
- 3 Replies
- 663 Views
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Last post by californiadreamin
7 months ago
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How did your walking issues start? Trouble with walking
Replies: 7
First post
Hi All,
I have been having issues with walking over the last 6-8 months. The main symptoms started when I walked 6k's or more, then slowly the...
Last post
How did your walking issues start?
They started probably 8-10 years ago with my legs feeling heavy like I was dragging them through a foot of...
- 7 Replies
- 958 Views
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Last post by NHE
7 months ago
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- 2 Replies
- 1200 Views
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Last post by NHE
8 months ago
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Going though a relapse
Replies: 18
by
81Charger »
1 year ago
First post
Hi all I'm going through a relapse which I'm sure some feel is no big deal. This my third relapse in the last ten years and my question is, what else...
Last post
Greetings: I stopped my first big attack with a Shiatsu massage which apparently released the vein's smooth muscle spasms and the blood flow. An...
- 18 Replies
- 1938 Views
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Last post by vesta
8 months ago
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Creeping Paralysis
Replies: 7
by
Karazhan »
7 years ago
First post
I thought this was morbidly interesting. It's from the New York Times, August 28th, 1910 (click on view full article )
Last post
That one worked.
Thanks
- 7 Replies
- 6253 Views
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Last post by THX1138
8 months ago
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Heat and excessive sweating
Replies: 5
First post
Hi everyone. I'm a 33 year old female, diagnosed with MS in March 2015. I had two relapses back to back, but haven't had any relapses since May 2015....
Last post
I know how you feel I've suffered from excessive random sweating for 5 years now.It can be really embarassing at times and gets me quite depressed....
- 5 Replies
- 4292 Views
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Last post by Jeannie110
8 months ago
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Cheap Provigil alternative?
Replies: 3
by
CureOrBust »
3 years ago
First post
A number of people use Modafinil (ie Provigil) to reduce symptoms. Some wish to use it, but find that it is too expensive. I recently stumbled across...
Last post
I've tried Modafinil, Vyvanse, Dexedrine, Adderall, and Ritalin and for the most part, the only thing I got from these drugs was a feeling of being...
- 3 Replies
- 1435 Views
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Last post by Kiyaan
8 months ago
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MS & Dr. Wheldon
Replies: 2
by
MyChlamydiaAndI »
8 months ago
First post
Hi!
It's been a while I do not post into this site, I use to post in CPn Help.org, though...
I was MS diagnosed in September 2016.
I have been...
Last post
I was MS diagnosed in September 2016.
What was your diagnosis?
- 2 Replies
- 713 Views
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Last post by ElliotB
8 months ago
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- 0 Replies
- 702 Views
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Last post by seeva
8 months ago
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Cognitive changes
Replies: 3
by
Cometsmom »
8 months ago
First post
Does anyone experience difficulty learning new information? I just started a new job and have been training for three weeks. I just can't seem to...
Last post
interestingly, it makes sense that gluten free diet would help. digesting gluten creates a drain on zinc status. without gluten inputs, the body can...
- 3 Replies
- 766 Views
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Last post by jimmylegs
8 months ago
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Constipation
Replies: 18
by
shinyredsparkles »
8 months ago
First post
Hi everyone! I was diagnosed with relapsing remitting MS just under 10 years ago. I'm currently taking gilenya daily which has been great for me -...
Last post
Hi,
We could discuss this till we're blue in the face. I always eat bananas that are quite ripe. A vast quantity of bananas are not actually ripe....
- 18 Replies
- 1236 Views
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Last post by Scott1
8 months ago
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- 0 Replies
- 668 Views
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Last post by NHE
8 months ago
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Vasectomy and MS ? Antibody Problems ?
Replies: 6
First post
I have MS and I am thinking of getting a vasectomy.
One thing concerns me however.
When a man has a vasectomy, his body continues to produce...
Last post
Hi,
That theory is rubbish. However, you will be given a general anesthetic. Tell the anesthetist that you have MS. There are some drugs we just...
- 6 Replies
- 2926 Views
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Last post by Scott1
8 months ago
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Effects of Vasectomy
Replies: 6
First post
Just had a vasectomy and then read some unsupported theory that said having sperm with no where to go can increase the immune response. There are...
Last post
I have a vasectomy scheduled for later this week and just started reading about potential link between vasectomy and negative auto-immune response....
- 6 Replies
- 1454 Views
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Last post by DonnyD
8 months ago
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Treating Disease with EFAs/Omega-3
Replies: 1
by
ElliotB »
8 months ago
First post
EFAs (Essential Fatty Acids) are called essential because they have been deemed necessary for good health. These EFAs must be consumed and cannot be...
Last post
For a lot of additional reading (over 2 million results), do a Google search for
treatment of disease with omega 3
or
treatment of disease with...
- 1 Replies
- 720 Views
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Last post by ElliotB
8 months ago
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MS and ozone
by
koneall »
8 months ago
I use ozone in my veterinary practice and I have MS so the idea of ozone treatment in Multiple Sclerosis is intriguing. I do personal DIV 20 gamma...
- 0 Replies
- 622 Views
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Last post by koneall
8 months ago
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MS pain
Replies: 9
by
jerrygallow »
9 months ago
First post
I know this topic may stir up the proverbial hornets nest. But I have had multiple sclerosis now for nearly 12 years. Other than some initial optic...
Last post
i'm curious - what are serum mag and serum d3, @HUD?
- 9 Replies
- 858 Views
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Last post by jimmylegs
8 months ago
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Bacterium Clostridium perfringens may be MS trigger
Replies: 9
by
slghmevp »
5 years ago
First post
We have isolated Clostridium perfringens type B, an epsilon toxin-secreting bacillus, from a young woman at clinical presentation of Multiple...
Last post
The bacteria is common but the problem is supposed to be the toxin created by this bacteria.
They found 43% of MS patients were carrying antibodies...
- 9 Replies
- 2687 Views
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Last post by cervocuit
9 months ago
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Massage Chairs - MUCH more than a vibrating chair
Replies: 32
First post
A while back, I was at a big furniture store and I sat down and one of their automatic massage chairs. This was a chair that gave back and foot...
Last post
Thanks. :-D
The thing that makes my massage chair less than easy to get into is the foot massage unit in front of it.
But, like I said, with the...
- 32 Replies
- 3329 Views
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Last post by THX1138
9 months ago
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Purple Foot!
Replies: 9
by
dansmail26 »
9 months ago
First post
How many people have a purple foot? I had one and after a ccsvi procedure it went away. I waas just reading the biotin thread here and someione said...
Last post
If it's only one foot, it's probably MS. Terry Wahls talks about this symptom in her book.
The two times it happened as part of an exacerbation is...
- 9 Replies
- 839 Views
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Last post by Snoopy
9 months ago
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New award-winning documentary about MS now available.
Replies: 3
by
mattembry »
9 months ago
First post
I wanted to let everyone know that the new award-winning documentary about MS, Living Proof , is now available at www.seelivingproof.com.
Living...
Last post
Thanks for the following video on the MSSC.
In 2015, the NMSS spent 33.7% of its income on salaries and 44.2% on grants. The CEO Cynthia...
- 3 Replies
- 760 Views
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Last post by NHE
9 months ago
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- 2 Replies
- 774 Views
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Last post by koneall
9 months ago
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Dr. Ebers' disturbing interview about MS drugs and FDA
Replies: 2
by
mattembry »
9 months ago
First post
Below is an important scene from the recent award-winning documentary about MS, Living Proof . I suggest that anyone with MS watch this. Dr. George...
Last post
I don't get the point of the video. Sure, blame the FDA for being careful and say they're in league with the drug companies. All I know if I've been...
- 2 Replies
- 842 Views
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Last post by koneall
9 months ago
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Psoriasis?
Replies: 2
by
koneall »
9 months ago
First post
I was diagnosed with MS ten months ago and put on tysabri. No relapses since the original event. But I've got a scaly spot on the 4th finger of both...
Last post
The body gives 'signals' when it is not functioning correctly, psoriasis is possibly a common indicator of this.
According the the all knowing web:...
- 2 Replies
- 620 Views
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Last post by ElliotB
9 months ago
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- 0 Replies
- 685 Views
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Last post by gristy56
9 months ago
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Temporary paralysis - ten second flashes
Replies: 14
First post
Hi to all,
I have a question. For about a month I'm getting partial temporary paralysis to my left hand and parts of my face - mostly lips, chin and...
Last post
I have that too did u find diagnosis?
- 14 Replies
- 7297 Views
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Last post by Bright
9 months ago
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- 0 Replies
- 607 Views
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Last post by jimmylegs
9 months ago
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Do lesions grow bigger or do they stay the same size?
Replies: 5
First post
I had my second MRI done last week and compared to the one done the beginning of November there are several new multiple lesions. There is a larger...
Last post
Hi,
OK, that makes sense. Your symptoms must be mild if he wants a lumber puncture. The issue is one symptom doesn't definitely mean MS. The test...
- 5 Replies
- 879 Views
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Last post by Scott1
9 months ago
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testosterone?
Replies: 1
by
koneall »
9 months ago
First post
Since it's more common in women than men, I wondered whether testosterone might be the reason. I found this abstract:
Arch Neurol....
Last post
a history of related posts may contain items of interest:
- 1 Replies
- 616 Views
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Last post by jimmylegs
9 months ago
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