A board to discuss the Multiple Sclerosis modifying drug Betaseron
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Last post by NHE
Sat Jul 16, 2016 11:23 pm
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Should I
Replies: 7
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MnRdunck » Sat Nov 18, 2017 7:08 am
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I have been diagnosed with MS by a neurologist who said he did so by my exams and the MRI was just proof. Another neurologist told me it wasn't. My...
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no need to apologize!! re magnesium EXACTLY - the normal range includes all kinds of sick ppl. sort of like how the normal range for IQ includes both...
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Last post by jimmylegs
Wed Nov 22, 2017 7:56 pm
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How do you get Betaseron without insurance?
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surfbird » Wed Jun 06, 2012 5:02 am
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Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount...
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Look here but be quick
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Last post by MnRdunck
Sat Nov 18, 2017 7:57 am
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One good story for Betaseron
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David1949 » Wed Dec 21, 2016 11:35 am
Personally I don't take any of the DMD drugs. But a woman I know who got MS about 25 years ago had this to say. She was on Betaseron since she was...
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Last post by David1949
Wed Dec 21, 2016 11:35 am
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Betaferon/betaseron side effects
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nomisz » Fri Feb 26, 2016 6:52 pm
Hello guys,
I'm new to this forum, actually I'm very new to this forum. I have a question about my medicine. I am injecting myself every other day...
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Last post by nomisz
Fri Feb 26, 2016 6:52 pm
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Consequences of missing doses?
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Sailorlal » Wed Nov 25, 2015 12:02 pm
So, I've been on Betaseron for 9 years. Thus far, I've done pretty well with it- I have no disability, and relatively light symptoms of the disease....
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Last post by Sailorlal
Wed Nov 25, 2015 12:02 pm
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What are the benefits of Betaseron?
Replies: 8
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David1949 » Wed Aug 25, 2010 2:55 pm
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From what I understand Betaseron and similar drugs are touted as reducing the number of relapses. Is that correct or can they slow disease...
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David1949, can you update us as to what you ended up doing? I saw you indicated your current condition in a recent post but you gave no indication as...
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Last post by ElliotB
Sat Aug 15, 2015 2:32 pm
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Last post by MSUK
Thu May 21, 2015 6:23 am
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Last post by MSUK
Fri May 15, 2015 7:47 am
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After 5 months, should I feels so 'icky' on beteserone??
Replies: 5
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chowder1 » Sat Nov 23, 2013 6:53 am
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Hi
History: Had chemo for breast cancer last year. JC positive. This limits the MS drugs I can take.
This question dawned on me late last night so...
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There is a fascinating study about Interferon B (which I think Betaseron may be a type of?) and Vitamin D.
If you haven't read up about vitamin D3...
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Last post by ThisIsMA
Mon Mar 03, 2014 11:40 am
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Scared - any advice?
Replies: 7
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surfbird » Sun Aug 29, 2010 10:08 pm
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I am submitting my application tomorrow to start Betaseron. My doctor said I technically have CIS but since I am at such a high risk for developing...
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My advice...if you decide to quit, titrate DOWN.
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Last post by Slumby
Sat Oct 19, 2013 8:41 pm
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Betaseron & Cessation of Kidney Stones on Treatment!!
Replies: 3
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MrsMomTo6 » Tue May 28, 2013 8:46 pm
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I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do...
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you might also find it worthwhile to look up research on the vitamin E connection to kidney stones.
vitamin E may be protective against kidney...
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Last post by jimmylegs
Sun Sep 22, 2013 2:06 pm
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MS Interferon Drugs -- Brain Atrophy and Other Problems
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Rebecca » Sat Mar 06, 2010 10:41 pm
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There are two very important studies of which everyone needs to be aware. The first shows that the use of interferons such as Betaseron results in...
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What is the MOST discouraging about this is:
1-I never knew it, or found such research when I said 'yes' to taking betaseron.
2-No Neuro reads the...
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Last post by MrsMomTo6
Tue May 28, 2013 9:01 pm
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Betaseron & Lupus Risk !!!! ???
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MrsMomTo6 » Tue May 28, 2013 8:54 pm
I was on Betaseron from August 2011-June 2012.
My new neuro has informed me that Betaseron use has a risk of producing Lupus!!
But, a secondary...
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Last post by MrsMomTo6
Tue May 28, 2013 8:54 pm
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Male Reproduction
Replies: 1
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hudson101 » Sun Mar 24, 2013 7:44 am
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Greetings!! I hope this is does not come across as me being rude or anything. I am A 35 beteseron guy! The wife and I are trying to conceive. I have...
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hi & welcome, i answered you out in the general discussion area :)
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Last post by jimmylegs
Sun Mar 24, 2013 4:52 pm
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Benefit seen with interferon lasts into progressive MS
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MSUK » Wed Nov 16, 2011 2:11 am
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Patients with primary progressive multiple sclerosis (PPMS) who took interferon-beta-1b for two years in a randomized trial continued to show...
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Here is an even better recent abstract about the role of inflammation in MS.
I don't know whether interferon beta's ability to calm inflammation is...
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Last post by CaliReader
Sat Feb 16, 2013 6:17 pm
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Betaseron costs
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AudreyRose » Tue Nov 24, 2009 7:53 pm
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Has anyone found a generic version of this drug, to bring the costs down? Also, any tips on betting subsidized? We are trying to arrange some support...
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Clin Ther. 2012 Sep;34(9):1966-76. doi: 10.1016/j.clinthera.2012.07.010. Epub 2012 Aug 18.
Long-term cost-effectiveness model of interferon beta-1b...
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Last post by MarkW
Fri Feb 15, 2013 5:09 am
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Last post by RDowling
Mon May 07, 2012 8:46 am
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Betasaron....Joint Pain
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melissa7 » Sat Mar 24, 2012 8:33 am
Has anyone else on here experienced joint pain with Betasaron. After a few injections I started hurting on the same leg my foot drop had previously...
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Last post by melissa7
Sat Mar 24, 2012 8:33 am
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It's not so bad
Replies: 8
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surfbird » Tue Sep 21, 2010 8:34 am
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I wanted to post this in case any one starting on Betaseron or considering it needs some positivity...especially after seeing my Scared and Yowza!...
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Anyone note differences between Tylenol an ibuprofen?
Yes. I was on Avonex for 10 years. Tylenol was nearly useless. I took Tylenol with my first...
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Last post by NHE
Thu Feb 23, 2012 2:20 am
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Betaseron overseas?
Replies: 4
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surfbird » Fri Jul 29, 2011 11:56 am
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Has anyone living in the US ever had to order Betaseron while traveling overseas? If so, how did you get it in another country? Is it cheaper in...
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oops - i meant customs at the post office/shipping facilities, not at the airport. from what i understand you can go through customs at the airport...
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Last post by surfbird
Tue Oct 11, 2011 1:00 pm
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Knots after injection
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FUMS » Sat Sep 10, 2011 3:22 am
I get a lot of knots after I inject. I take Ibuprofen an hour before I inject, I use the Betaject and I massage the area right after, but I get these...
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Last post by FUMS
Sat Sep 10, 2011 3:22 am
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An icy subject
Replies: 5
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Kamy » Fri Jan 05, 2007 11:43 pm
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I just started my betaseron treatment about a week ago. I've taken 4 shots so far and I am much happier with it compared to avenox. My side effects...
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Before and after injection, i use a heating pad, thanks to this thread. Years ago, when i was taking Avonex, I used ice. But now, I think of using...
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Last post by Slumby
Fri Sep 02, 2011 4:18 pm
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Necrosis?
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FastBenz » Fri Oct 08, 2010 12:51 pm
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I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...
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I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...
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Last post by NHE
Fri Jul 29, 2011 5:40 pm
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Post-injection pain?
Replies: 5
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surfbird » Tue Oct 19, 2010 5:46 am
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I am still working my way through all my injection sites, and the last 8 of 10 injections have caused what feels like my muscle to be very sore at...
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Hi everyone,
Just wanted to post a follow-up to this now that many months have gone by. One night after an indulgent happy hour, I had to do my...
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Last post by surfbird
Fri Jul 29, 2011 11:46 am
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New Betaseron User
Replies: 2
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dizzzi » Wed Jun 29, 2011 6:20 am
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I was diagnosed with MS May 13, 2011 and started Betaseron treatment on Monday June 27, 2011.
The BetaNurse was amazing and made the whole process...
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I've done a couple and they work really well. I have been using the betaject a lot just to see if I like it or not. LOL the first time I used it...
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Last post by dizzzi
Fri Jul 29, 2011 10:21 am
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Auto Injectors
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papabear1981 » Tue May 24, 2011 9:05 am
I have been placed on Copaxone from Betaseron. I have 2 auto injectors if anyone is interested.
Please send me a PM with address and I will be happy...
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Last post by papabear1981
Tue May 24, 2011 9:05 am
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Last post by MSUK
Tue Apr 26, 2011 10:24 pm
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Double vision
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siren » Sat Mar 12, 2011 6:52 pm
I'm now experiencing a relaps of double vision . I'm not so sure of which eye alignment had gone off..the right or left. The MS attack has hit me...
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Last post by siren
Sat Mar 12, 2011 6:52 pm
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severe acne
Replies: 6
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stathis » Mon Jan 22, 2007 4:20 pm
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Hello everyone, I have been having a rather weird problem with my face, posting here just to see if anyone is experiencing the same problems.
I have...
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This sounded ridiculous when I first heard of it, but it worked! I started getting acne also and did much looking for help. I found a post by someone...
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Last post by danielleloren
Tue Mar 08, 2011 8:42 am
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Just switch to betaseron after 7 yrs o rebif
Replies: 2
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siren » Wed Nov 03, 2010 6:52 am
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I just switch treatment after advice frm my neuro frm rebif to betaseron since rebif is not reducing the relapz tat I am experiencing nowadays.
It...
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Hi NHE,
His reasons is that Rebif is not proofing to be able to control my relapzes since upto this year I been experiencing 4 relapzes already....
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Last post by siren
Thu Nov 04, 2010 7:56 pm
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Last post by scorpion
Tue Oct 19, 2010 7:25 am
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Bayer launches Betaferon® in China
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MSUK » Mon Sep 27, 2010 12:18 am
Bayer Schering Pharma announced the upcoming launch in China of Betaferon® (interferon beta-1b) for the treatment of relapsing-remitting forms of...
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Last post by MSUK
Mon Sep 27, 2010 12:18 am
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Yowzas! This hurts
Replies: 7
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surfbird » Tue Sep 14, 2010 1:18 pm
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I did my first shot yesterday and it hurt so much more than I thought it would! I could feel the medicine under my skin...have you ever received a...
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surfbird, I've been on beta for 6 months. This is my first MS drug.
My nurse came and showed me mostly how to use the betaject. Then she made me...
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Last post by cranberry
Wed Sep 22, 2010 12:54 pm
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Betaseron Request
Replies: 1
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MSPatientFriend » Fri Sep 17, 2010 7:53 am
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Dear Forum participants,
As my nickname indicates I am a friend of a person affected by MS. She lives in Cuba, and does not have access to internet....
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I can think of 2 things, that you have probably already thought of: trying the various MS organizations, like the National MS Society and see if they...
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Last post by surfbird
Tue Sep 21, 2010 8:28 am
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New Blood Test Predicts Who Will Benefit From Interferons
Replies: 1
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mrsilkykat » Sun Apr 11, 2010 5:22 pm
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Posted: Sun Apr 11, 2010 5:18 pm Post subject: New Blood Test Predicts Who Will Benefit From Interferons...
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$6.1 billion per year! Wow ! Well I guess we can say with 100% certainty that the drugs are beneficial... to the drug companies. :-)
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Last post by David1949
Wed Aug 25, 2010 2:47 pm
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Last post by MSUK
Wed Jun 09, 2010 5:36 am
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Last post by MSUK
Thu Jun 03, 2010 4:58 am
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Depression and Betaseron
Replies: 7
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musicman » Wed May 05, 2010 12:44 pm
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Hi all. I imagine this may have been covered but please bear with me. I have been experiencing an increase in depression since I started Betaseron....
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oreo, I was first diagnosed in 1991. Was on Copaxone for many years, then to Betaseron.
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Last post by musicman
Mon May 10, 2010 8:43 am
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Clinical effectiveness
Replies: 20
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treez » Wed Aug 04, 2004 8:57 am
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I've browsed many many MS sites and if nothing else, there is much research to support the use of ABC's. I've been on Betaseron since April and the...
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In 2000, at 24 I was put on Betaseron. Over the next five years I continued to deteriorate. Finally I stopped taking it in '05 bc as the neuro said...
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Last post by thornyrose76
Fri Jan 29, 2010 12:27 pm
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Teens with OCD and MS
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amc » Sun Dec 06, 2009 12:41 pm
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Does anyone have any experience with the OCD- MS link.Our 16 year old deals with mild OCD and has just been diagnosed with MS after 2 bouts of optic...
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Thanks for that resource! I have done some reading on the whole notion of rebuilding the pathways..makes sense to me. I will definitely have a look....
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Last post by amc
Fri Dec 11, 2009 10:23 am
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Last post by AudreyRose
Tue Nov 24, 2009 8:01 pm
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New Autoinjection Device, Betaject(R) 3
Replies: 2
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Dunmann » Fri Jul 14, 2006 6:46 am
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New Autoinjection Device Designed to Work With Betaseron(R) Now Available For Patients With Multiple Sclerosis
Betaject(R)3 Offers Convenient...
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I've been using the new injector (Betaject -3) for about 4 months now and find it less user-friendly than the older versions. This version is...
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Last post by Caralea
Thu Oct 22, 2009 11:36 am
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Last post by scorpion
Tue Sep 15, 2009 5:02 pm
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Starting Betaseron
Replies: 10
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DeeDee » Fri Apr 08, 2005 2:28 pm
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OK I am starting Betaseron tommorrow. I am a little nervous the only other thing I have taken was Tysabri...........enough said. I am interested to...
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Hi I have been betaseron for alittle over a month now...I am increasing my dose tonite to the .75 and next it will be the full dose. Is this about...
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Last post by lesley823
Tue Apr 07, 2009 8:42 am
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Last post by OlDood
Tue Mar 10, 2009 9:59 am
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An interasting blog about betaseron
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4everandalways » Tue Mar 03, 2009 8:28 am
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An interesting blog about betaseron and the possible side effects.
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Just brutal 4ever the way things really work, I took it for 8 years with some high liver enzymes that was it but no real benefit either as far as the...
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Last post by robbie
Tue Mar 03, 2009 10:07 am
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Any Canadians on Betaseron?
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SharperInsights » Wed Oct 01, 2008 5:06 pm
Are there any Canadians here on Betaseron? If so, What format does your Betaseron come in - Syringe and vial or Betaject Lite Autoinjector?
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Last post by SharperInsights
Wed Oct 01, 2008 5:06 pm
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Side Effects
Replies: 6
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LiquidSkin » Mon Apr 21, 2008 1:43 am
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I have been on Betaseron for a month now, and well I am just about to up the dosing to .75cc
I am having a lot of side effects, I dont eat right (im...
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It's difficult to hear that diagnosis. With two doctors and a lot of tests under your belt it's important now to find a therapy that you can tolerate...
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Last post by urchin
Thu Jun 19, 2008 5:26 am
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Betaseron trade for Avonex?
by
urchin » Thu Jun 12, 2008 7:57 pm
I was switched from Betaseron to Avonex but have an entire box of leftover Betaseron... can I legally sell it or even give it away? Ideally my...
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Last post by urchin
Thu Jun 12, 2008 7:57 pm
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