Betaseron

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Coronavirus (COVID-19): What You Need To Know

Last post by jimmylegs « Wed Apr 08, 2020 9:01 am
Posted in General Discussion
Replies: 67
by jimmylegs » Sun Mar 15, 2020 4:10 am » in General Discussion
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What You Need To Know About Coronavirus (COVID-19)

What does COVID-19 mean for people living with MS? Many disease modifying therapies (DMTs) for...

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ms x covid trial list
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Last post by jimmylegs
Wed Apr 08, 2020 9:01 am

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Betaseron Prescribing Information

Last post by NHE « Sat Jul 16, 2016 11:23 pm

by NHE » Sat Jul 16, 2016 11:23 pm

Betaseron Prescribing Information

0 Replies

4723 Views

Last post by NHE
Sat Jul 16, 2016 11:23 pm
Should I

Last post by jimmylegs « Wed Nov 22, 2017 7:56 pm
Replies: 7
by MnRdunck » Sat Nov 18, 2017 7:08 am

First post

I have been diagnosed with MS by a neurologist who said he did so by my exams and the MRI was just proof. Another neurologist told me it wasn't. My...

Last post

no need to apologize!! re magnesium EXACTLY - the normal range includes all kinds of sick ppl. sort of like how the normal range for IQ includes both...

7 Replies

5611 Views

Last post by jimmylegs
Wed Nov 22, 2017 7:56 pm
How do you get Betaseron without insurance?

Last post by MnRdunck « Sat Nov 18, 2017 7:57 am
Replies: 5
by surfbird » Wed Jun 06, 2012 5:02 am

First post

Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount...

Last post

Look here but be quick

5 Replies

5559 Views

Last post by MnRdunck
Sat Nov 18, 2017 7:57 am
One good story for Betaseron

Last post by David1949 « Wed Dec 21, 2016 11:35 am

by David1949 » Wed Dec 21, 2016 11:35 am

Personally I don't take any of the DMD drugs. But a woman I know who got MS about 25 years ago had this to say. She was on Betaseron since she was...

0 Replies

3945 Views

Last post by David1949
Wed Dec 21, 2016 11:35 am
Betaferon/betaseron side effects

Last post by nomisz « Fri Feb 26, 2016 6:52 pm

by nomisz » Fri Feb 26, 2016 6:52 pm

Hello guys,
I'm new to this forum, actually I'm very new to this forum. I have a question about my medicine. I am injecting myself every other day...

0 Replies

3868 Views

Last post by nomisz
Fri Feb 26, 2016 6:52 pm
Consequences of missing doses?

Last post by Sailorlal « Wed Nov 25, 2015 12:02 pm

by Sailorlal » Wed Nov 25, 2015 12:02 pm

So, I've been on Betaseron for 9 years. Thus far, I've done pretty well with it- I have no disability, and relatively light symptoms of the disease....

0 Replies

3477 Views

Last post by Sailorlal
Wed Nov 25, 2015 12:02 pm
What are the benefits of Betaseron?

Last post by ElliotB « Sat Aug 15, 2015 2:32 pm
Replies: 8
by David1949 » Wed Aug 25, 2010 2:55 pm

First post

From what I understand Betaseron and similar drugs are touted as reducing the number of relapses. Is that correct or can they slow disease...

Last post

David1949, can you update us as to what you ended up doing? I saw you indicated your current condition in a recent post but you gave no indication as...

8 Replies

6987 Views

Last post by ElliotB
Sat Aug 15, 2015 2:32 pm
Treatment follow-up reveals positive results for MS patients

Last post by MSUK « Thu May 21, 2015 6:23 am

by MSUK » Thu May 21, 2015 6:23 am

Results from the BENEFIT11 trial has found that early treatment with IFNB-1b leads to improvements in cognition and fatigue in the long-term, as well...

0 Replies

3619 Views

Last post by MSUK
Thu May 21, 2015 6:23 am
Treatment at the first sign of illness improves MS: Study

Last post by MSUK « Fri May 15, 2015 7:47 am

by MSUK » Fri May 15, 2015 7:47 am

A long-term study following multiple sclerosis (MS) patients taking interferon beta-1b, suggests the earlier therapy is started, the greater the...

0 Replies

3579 Views

Last post by MSUK
Fri May 15, 2015 7:47 am
After 5 months, should I feels so 'icky' on beteserone??

Last post by ThisIsMA « Mon Mar 03, 2014 11:40 am
Replies: 5
by chowder1 » Sat Nov 23, 2013 6:53 am

First post

Hi

History: Had chemo for breast cancer last year. JC positive. This limits the MS drugs I can take.

This question dawned on me late last night so...

Last post

There is a fascinating study about Interferon B (which I think Betaseron may be a type of?) and Vitamin D.

If you haven't read up about vitamin D3...

5 Replies

7080 Views

Last post by ThisIsMA
Mon Mar 03, 2014 11:40 am
Scared - any advice?

Last post by Slumby « Sat Oct 19, 2013 8:41 pm
Replies: 7
by surfbird » Sun Aug 29, 2010 10:08 pm

First post

I am submitting my application tomorrow to start Betaseron. My doctor said I technically have CIS but since I am at such a high risk for developing...

Last post

My advice...if you decide to quit, titrate DOWN.

7 Replies

6396 Views

Last post by Slumby
Sat Oct 19, 2013 8:41 pm
Betaseron & Cessation of Kidney Stones on Treatment!!

Last post by jimmylegs « Sun Sep 22, 2013 2:06 pm
Replies: 3
by MrsMomTo6 » Tue May 28, 2013 8:46 pm

First post

I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do...

Last post

you might also find it worthwhile to look up research on the vitamin E connection to kidney stones.
vitamin E may be protective against kidney...

3 Replies

4818 Views

Last post by jimmylegs
Sun Sep 22, 2013 2:06 pm
MS Interferon Drugs -- Brain Atrophy and Other Problems

Last post by MrsMomTo6 « Tue May 28, 2013 9:01 pm
Replies: 3
by Rebecca » Sat Mar 06, 2010 10:41 pm

First post

There are two very important studies of which everyone needs to be aware. The first shows that the use of interferons such as Betaseron results in...

Last post

What is the MOST discouraging about this is:

1-I never knew it, or found such research when I said 'yes' to taking betaseron.
2-No Neuro reads the...

3 Replies

6661 Views

Last post by MrsMomTo6
Tue May 28, 2013 9:01 pm
Betaseron & Lupus Risk !!!! ???

Last post by MrsMomTo6 « Tue May 28, 2013 8:54 pm

by MrsMomTo6 » Tue May 28, 2013 8:54 pm

I was on Betaseron from August 2011-June 2012.

My new neuro has informed me that Betaseron use has a risk of producing Lupus!!

But, a secondary...

0 Replies

4044 Views

Last post by MrsMomTo6
Tue May 28, 2013 8:54 pm
Male Reproduction

Last post by jimmylegs « Sun Mar 24, 2013 4:52 pm
Replies: 1
by hudson101 » Sun Mar 24, 2013 7:44 am

First post

Greetings!! I hope this is does not come across as me being rude or anything. I am A 35 beteseron guy! The wife and I are trying to conceive. I have...

Last post

hi & welcome, i answered you out in the general discussion area :)

1 Replies

4599 Views

Last post by jimmylegs
Sun Mar 24, 2013 4:52 pm
Benefit seen with interferon lasts into progressive MS

Last post by CaliReader « Sat Feb 16, 2013 6:17 pm
Replies: 3
by MSUK » Wed Nov 16, 2011 2:11 am

First post

Patients with primary progressive multiple sclerosis (PPMS) who took interferon-beta-1b for two years in a randomized trial continued to show...

Last post

Here is an even better recent abstract about the role of inflammation in MS.

I don't know whether interferon beta's ability to calm inflammation is...

3 Replies

6284 Views

Last post by CaliReader
Sat Feb 16, 2013 6:17 pm
Betaseron costs

Last post by MarkW « Fri Feb 15, 2013 5:09 am
Replies: 4
by AudreyRose » Tue Nov 24, 2009 7:53 pm

First post

Has anyone found a generic version of this drug, to bring the costs down? Also, any tips on betting subsidized? We are trying to arrange some support...

Last post

Clin Ther. 2012 Sep;34(9):1966-76. doi: 10.1016/j.clinthera.2012.07.010. Epub 2012 Aug 18.
Long-term cost-effectiveness model of interferon beta-1b...

4 Replies

6874 Views

Last post by MarkW
Fri Feb 15, 2013 5:09 am
Anyone looking for 3months supply of Betaferon?

Last post by RDowling « Mon May 07, 2012 8:46 am

by RDowling » Mon May 07, 2012 8:46 am

I have 3 months/boxes of 15 injections of Betaferon 250microgram/ml due to change of treatment. Exp date 10.2013 Reply if interested, thx

0 Replies

5647 Views

Last post by RDowling
Mon May 07, 2012 8:46 am
Betasaron....Joint Pain

Last post by melissa7 « Sat Mar 24, 2012 8:33 am

by melissa7 » Sat Mar 24, 2012 8:33 am

Has anyone else on here experienced joint pain with Betasaron. After a few injections I started hurting on the same leg my foot drop had previously...

0 Replies

5341 Views

Last post by melissa7
Sat Mar 24, 2012 8:33 am
It's not so bad

Last post by NHE « Thu Feb 23, 2012 2:20 am
Replies: 8
by surfbird » Tue Sep 21, 2010 8:34 am

First post

I wanted to post this in case any one starting on Betaseron or considering it needs some positivity...especially after seeing my Scared and Yowza!...

Last post

Anyone note differences between Tylenol an ibuprofen?

Yes. I was on Avonex for 10 years. Tylenol was nearly useless. I took Tylenol with my first...

8 Replies

5852 Views

Last post by NHE
Thu Feb 23, 2012 2:20 am
Betaseron overseas?

Last post by surfbird « Tue Oct 11, 2011 1:00 pm
Replies: 4
by surfbird » Fri Jul 29, 2011 11:56 am

First post

Has anyone living in the US ever had to order Betaseron while traveling overseas? If so, how did you get it in another country? Is it cheaper in...

Last post

oops - i meant customs at the post office/shipping facilities, not at the airport. from what i understand you can go through customs at the airport...

4 Replies

4900 Views

Last post by surfbird
Tue Oct 11, 2011 1:00 pm
Knots after injection

Last post by FUMS « Sat Sep 10, 2011 3:22 am

by FUMS » Sat Sep 10, 2011 3:22 am

I get a lot of knots after I inject. I take Ibuprofen an hour before I inject, I use the Betaject and I massage the area right after, but I get these...

0 Replies

5452 Views

Last post by FUMS
Sat Sep 10, 2011 3:22 am
An icy subject

Last post by Slumby « Fri Sep 02, 2011 4:18 pm
Replies: 5
by Kamy » Fri Jan 05, 2007 11:43 pm

First post

I just started my betaseron treatment about a week ago. I've taken 4 shots so far and I am much happier with it compared to avenox. My side effects...

Last post

Before and after injection, i use a heating pad, thanks to this thread. Years ago, when i was taking Avonex, I used ice. But now, I think of using...

5 Replies

7684 Views

Last post by Slumby
Fri Sep 02, 2011 4:18 pm
Necrosis?

Last post by NHE « Fri Jul 29, 2011 5:40 pm
Replies: 2
by FastBenz » Fri Oct 08, 2010 12:51 pm

First post

I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...

Last post

I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...

2 Replies

5418 Views

Last post by NHE
Fri Jul 29, 2011 5:40 pm
Post-injection pain?

Last post by surfbird « Fri Jul 29, 2011 11:46 am
Replies: 5
by surfbird » Tue Oct 19, 2010 5:46 am

First post

I am still working my way through all my injection sites, and the last 8 of 10 injections have caused what feels like my muscle to be very sore at...

Last post

Hi everyone,

Just wanted to post a follow-up to this now that many months have gone by. One night after an indulgent happy hour, I had to do my...

5 Replies

6804 Views

Last post by surfbird
Fri Jul 29, 2011 11:46 am
New Betaseron User

Last post by dizzzi « Fri Jul 29, 2011 10:21 am
Replies: 2
by dizzzi » Wed Jun 29, 2011 6:20 am

First post

I was diagnosed with MS May 13, 2011 and started Betaseron treatment on Monday June 27, 2011.

The BetaNurse was amazing and made the whole process...

Last post

I've done a couple and they work really well. I have been using the betaject a lot just to see if I like it or not. LOL the first time I used it...

2 Replies

5056 Views

Last post by dizzzi
Fri Jul 29, 2011 10:21 am
Auto Injectors

Last post by papabear1981 « Tue May 24, 2011 9:05 am

by papabear1981 » Tue May 24, 2011 9:05 am

I have been placed on Copaxone from Betaseron. I have 2 auto injectors if anyone is interested.

Please send me a PM with address and I will be happy...

0 Replies

4874 Views

Last post by papabear1981
Tue May 24, 2011 9:05 am
Study revisits 1st clinical trial to treat MS decades later

Last post by MSUK « Tue Apr 26, 2011 10:24 pm

by MSUK » Tue Apr 26, 2011 10:24 pm

Tracking down nearly all 372 multiple sclerosis patients involved in a pivotal clinical trial of a drug decades ago has allowed a group of...

0 Replies

5028 Views

Last post by MSUK
Tue Apr 26, 2011 10:24 pm
Double vision

Last post by siren « Sat Mar 12, 2011 6:52 pm

by siren » Sat Mar 12, 2011 6:52 pm

I'm now experiencing a relaps of double vision . I'm not so sure of which eye alignment had gone off..the right or left. The MS attack has hit me...

0 Replies

4865 Views

Last post by siren
Sat Mar 12, 2011 6:52 pm
severe acne

Last post by danielleloren « Tue Mar 08, 2011 8:42 am
Replies: 6
by stathis » Mon Jan 22, 2007 4:20 pm

First post

Hello everyone, I have been having a rather weird problem with my face, posting here just to see if anyone is experiencing the same problems.

I have...

Last post

This sounded ridiculous when I first heard of it, but it worked! I started getting acne also and did much looking for help. I found a post by someone...

6 Replies

9652 Views

Last post by danielleloren
Tue Mar 08, 2011 8:42 am
Just switch to betaseron after 7 yrs o rebif

Last post by siren « Thu Nov 04, 2010 7:56 pm
Replies: 2
by siren » Wed Nov 03, 2010 6:52 am

First post

I just switch treatment after advice frm my neuro frm rebif to betaseron since rebif is not reducing the relapz tat I am experiencing nowadays.

It...

Last post

Hi NHE,

His reasons is that Rebif is not proofing to be able to control my relapzes since upto this year I been experiencing 4 relapzes already....

2 Replies

5622 Views

Last post by siren
Thu Nov 04, 2010 7:56 pm
Bayer Schering Pharma presents positive MS drug trial data

Last post by scorpion « Tue Oct 19, 2010 7:25 am

by scorpion » Tue Oct 19, 2010 7:25 am

0 Replies

5023 Views

Last post by scorpion
Tue Oct 19, 2010 7:25 am
Bayer launches BetaferonÂ® in China

Last post by MSUK « Mon Sep 27, 2010 12:18 am

by MSUK » Mon Sep 27, 2010 12:18 am

Bayer Schering Pharma announced the upcoming launch in China of Betaferon® (interferon beta-1b) for the treatment of relapsing-remitting forms of...

0 Replies

4822 Views

Last post by MSUK
Mon Sep 27, 2010 12:18 am
Yowzas! This hurts

Last post by cranberry « Wed Sep 22, 2010 12:54 pm
Replies: 7
by surfbird » Tue Sep 14, 2010 1:18 pm

First post

I did my first shot yesterday and it hurt so much more than I thought it would! I could feel the medicine under my skin...have you ever received a...

Last post

surfbird, I've been on beta for 6 months. This is my first MS drug.

My nurse came and showed me mostly how to use the betaject. Then she made me...

7 Replies

5882 Views

Last post by cranberry
Wed Sep 22, 2010 12:54 pm
Betaseron Request

Last post by surfbird « Tue Sep 21, 2010 8:28 am
Replies: 1
by MSPatientFriend » Fri Sep 17, 2010 7:53 am

First post

Dear Forum participants,

As my nickname indicates I am a friend of a person affected by MS. She lives in Cuba, and does not have access to internet....

Last post

I can think of 2 things, that you have probably already thought of: trying the various MS organizations, like the National MS Society and see if they...

1 Replies

4587 Views

Last post by surfbird
Tue Sep 21, 2010 8:28 am
New Blood Test Predicts Who Will Benefit From Interferons

Last post by David1949 « Wed Aug 25, 2010 2:47 pm
Replies: 1
by mrsilkykat » Sun Apr 11, 2010 5:22 pm

First post

Posted: Sun Apr 11, 2010 5:18 pm Post subject: New Blood Test Predicts Who Will Benefit From Interferons...

Last post

$6.1 billion per year! Wow ! Well I guess we can say with 100% certainty that the drugs are beneficial... to the drug companies. :-)

1 Replies

5013 Views

Last post by David1949
Wed Aug 25, 2010 2:47 pm
Study supports long-term safety profile of BetaferonÂ® for MS

Last post by MSUK « Wed Jun 09, 2010 5:36 am

by MSUK » Wed Jun 09, 2010 5:36 am

Study supports long-term safety profile of Betaferon® for Multiple Sclerosis over 16 years

Results from the 16-year follow-up to the pivotal...

0 Replies

4755 Views

Last post by MSUK
Wed Jun 09, 2010 5:36 am
iPhone application launched to assist people on BetaseronÂ®

Last post by MSUK « Thu Jun 03, 2010 4:58 am

by MSUK » Thu Jun 03, 2010 4:58 am

Bayer HealthCare Pharmaceuticals today launched a new tool using a technology that many people with multiple sclerosis (MS) already have in their...

0 Replies

4793 Views

Last post by MSUK
Thu Jun 03, 2010 4:58 am
Depression and Betaseron

Last post by musicman « Mon May 10, 2010 8:43 am
Replies: 7
by musicman » Wed May 05, 2010 12:44 pm

First post

Hi all. I imagine this may have been covered but please bear with me. I have been experiencing an increase in depression since I started Betaseron....

Last post

oreo, I was first diagnosed in 1991. Was on Copaxone for many years, then to Betaseron.

7 Replies

5738 Views

Last post by musicman
Mon May 10, 2010 8:43 am
Clinical effectiveness

Last post by thornyrose76 « Fri Jan 29, 2010 12:27 pm
Replies: 20
by treez » Wed Aug 04, 2004 8:57 am
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First post

I've browsed many many MS sites and if nothing else, there is much research to support the use of ABC's. I've been on Betaseron since April and the...

Last post

In 2000, at 24 I was put on Betaseron. Over the next five years I continued to deteriorate. Finally I stopped taking it in '05 bc as the neuro said...
20 Replies

27726 Views

Last post by thornyrose76
Fri Jan 29, 2010 12:27 pm
Teens with OCD and MS

Last post by amc « Fri Dec 11, 2009 10:23 am
Replies: 2
by amc » Sun Dec 06, 2009 12:41 pm

First post

Does anyone have any experience with the OCD- MS link.Our 16 year old deals with mild OCD and has just been diagnosed with MS after 2 bouts of optic...

Last post

Thanks for that resource! I have done some reading on the whole notion of rebuilding the pathways..makes sense to me. I will definitely have a look....

2 Replies

5633 Views

Last post by amc
Fri Dec 11, 2009 10:23 am
Betaseron oral vs injection?

Last post by AudreyRose « Tue Nov 24, 2009 8:01 pm

by AudreyRose » Tue Nov 24, 2009 8:01 pm

Anyone ever heard about possibility of an oral / pill version of Betasaron instead of injections?

0 Replies

5229 Views

Last post by AudreyRose
Tue Nov 24, 2009 8:01 pm
New Autoinjection Device, Betaject(R) 3

Last post by Caralea « Thu Oct 22, 2009 11:36 am
Replies: 2
by Dunmann » Fri Jul 14, 2006 6:46 am

First post

New Autoinjection Device Designed to Work With Betaseron(R) Now Available For Patients With Multiple Sclerosis
Betaject(R)3 Offers Convenient...

Last post

I've been using the new injector (Betaject -3) for about 4 months now and find it less user-friendly than the older versions. This version is...

2 Replies

9491 Views

Last post by Caralea
Thu Oct 22, 2009 11:36 am
Betaferon found to protect brain tissue

Last post by scorpion « Tue Sep 15, 2009 5:02 pm

by scorpion » Tue Sep 15, 2009 5:02 pm

Düsseldorf, Germany, September 10, 2009 –

The multiple sclerosis drug Betaferon® (interferon beta-1b) of Bayer Schering Pharma AG, Germany, may...

0 Replies

5290 Views

Last post by scorpion
Tue Sep 15, 2009 5:02 pm
Starting Betaseron

Last post by lesley823 « Tue Apr 07, 2009 8:42 am
Replies: 10
by DeeDee » Fri Apr 08, 2005 2:28 pm

First post

OK I am starting Betaseron tommorrow. I am a little nervous the only other thing I have taken was Tysabri...........enough said. I am interested to...

Last post

Hi I have been betaseron for alittle over a month now...I am increasing my dose tonite to the .75 and next it will be the full dose. Is this about...

10 Replies

11584 Views

Last post by lesley823
Tue Apr 07, 2009 8:42 am
Betaseron Available / 45 single use packs

Last post by OlDood « Tue Mar 10, 2009 9:59 am

by OlDood » Tue Mar 10, 2009 9:59 am

Hi, I'm a newbie to the site. My wife is the one w/MS but she is a confirmed Luddite so I do the computer stuff. Wish we'd heard of/found this site...

0 Replies

5273 Views

Last post by OlDood
Tue Mar 10, 2009 9:59 am
An interasting blog about betaseron

Last post by robbie « Tue Mar 03, 2009 10:07 am
Replies: 1
by 4everandalways » Tue Mar 03, 2009 8:28 am

First post

An interesting blog about betaseron and the possible side effects.

Last post

Just brutal 4ever the way things really work, I took it for 8 years with some high liver enzymes that was it but no real benefit either as far as the...

1 Replies

5776 Views

Last post by robbie
Tue Mar 03, 2009 10:07 am
Any Canadians on Betaseron?

Last post by SharperInsights « Wed Oct 01, 2008 5:06 pm

by SharperInsights » Wed Oct 01, 2008 5:06 pm

Are there any Canadians here on Betaseron? If so, What format does your Betaseron come in - Syringe and vial or Betaject Lite Autoinjector?

0 Replies

5594 Views

Last post by SharperInsights
Wed Oct 01, 2008 5:06 pm
Side Effects

Last post by urchin « Thu Jun 19, 2008 5:26 am
Replies: 6
by LiquidSkin » Mon Apr 21, 2008 1:43 am

First post

I have been on Betaseron for a month now, and well I am just about to up the dosing to .75cc
I am having a lot of side effects, I dont eat right (im...

Last post

It's difficult to hear that diagnosis. With two doctors and a lot of tests under your belt it's important now to find a therapy that you can tolerate...

6 Replies

7801 Views

Last post by urchin
Thu Jun 19, 2008 5:26 am
Betaseron trade for Avonex?

Last post by urchin « Thu Jun 12, 2008 7:57 pm

by urchin » Thu Jun 12, 2008 7:57 pm

I was switched from Betaseron to Avonex but have an entire box of leftover Betaseron... can I legally sell it or even give it away? Ideally my...

0 Replies

5897 Views

Last post by urchin
Thu Jun 12, 2008 7:57 pm

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