A board to discuss the Multiple Sclerosis modifying drug Betaseron
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Last post by NHE
2 years ago
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Should I
Replies: 7
First post
I have been diagnosed with MS by a neurologist who said he did so by my exams and the MRI was just proof. Another neurologist told me it wasn't. My...
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no need to apologize!! re magnesium EXACTLY - the normal range includes all kinds of sick ppl. sort of like how the normal range for IQ includes both...
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Last post by jimmylegs
1 year ago
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How do you get Betaseron without insurance?
Replies: 5
by
surfbird »
6 years ago
First post
Our household income exceeds the income requirements for the patient assistance programs. Are there any other options besides paying the full amount...
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Look here but be quick
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Last post by MnRdunck
1 year ago
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One good story for Betaseron
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David1949 »
2 years ago
Personally I don't take any of the DMD drugs. But a woman I know who got MS about 25 years ago had this to say. She was on Betaseron since she was...
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Last post by David1949
2 years ago
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Betaferon/betaseron side effects
Hello guys,
I'm new to this forum, actually I'm very new to this forum. I have a question about my medicine. I am injecting myself every other day...
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Last post by nomisz
2 years ago
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Consequences of missing doses?
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Sailorlal »
3 years ago
So, I've been on Betaseron for 9 years. Thus far, I've done pretty well with it- I have no disability, and relatively light symptoms of the disease....
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Last post by Sailorlal
3 years ago
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What are the benefits of Betaseron?
Replies: 8
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David1949 »
8 years ago
First post
From what I understand Betaseron and similar drugs are touted as reducing the number of relapses. Is that correct or can they slow disease...
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David1949, can you update us as to what you ended up doing? I saw you indicated your current condition in a recent post but you gave no indication as...
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Last post by ElliotB
3 years ago
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Last post by MSUK
3 years ago
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Last post by MSUK
3 years ago
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After 5 months, should I feels so 'icky' on beteserone??
Replies: 5
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chowder1 »
5 years ago
First post
Hi
History: Had chemo for breast cancer last year. JC positive. This limits the MS drugs I can take.
This question dawned on me late last night so...
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There is a fascinating study about Interferon B (which I think Betaseron may be a type of?) and Vitamin D.
If you haven't read up about vitamin D3...
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Last post by ThisIsMA
4 years ago
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Scared - any advice?
Replies: 7
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surfbird »
8 years ago
First post
I am submitting my application tomorrow to start Betaseron. My doctor said I technically have CIS but since I am at such a high risk for developing...
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My advice...if you decide to quit, titrate DOWN.
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Last post by Slumby
5 years ago
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Betaseron & Cessation of Kidney Stones on Treatment!!
Replies: 3
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MrsMomTo6 »
5 years ago
First post
I have had Kidney stones about every 8 weeks since 1997. Sadly, they were 'normal' to me...I had a urologist tell me, 'there is nothing you can do...
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you might also find it worthwhile to look up research on the vitamin E connection to kidney stones.
vitamin E may be protective against kidney...
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Last post by jimmylegs
5 years ago
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MS Interferon Drugs -- Brain Atrophy and Other Problems
Replies: 3
First post
There are two very important studies of which everyone needs to be aware. The first shows that the use of interferons such as Betaseron results in...
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What is the MOST discouraging about this is:
1-I never knew it, or found such research when I said 'yes' to taking betaseron.
2-No Neuro reads the...
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Last post by MrsMomTo6
5 years ago
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Betaseron & Lupus Risk !!!! ???
by
MrsMomTo6 »
5 years ago
I was on Betaseron from August 2011-June 2012.
My new neuro has informed me that Betaseron use has a risk of producing Lupus!!
But, a secondary...
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Last post by MrsMomTo6
5 years ago
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Male Reproduction
Replies: 1
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hudson101 »
5 years ago
First post
Greetings!! I hope this is does not come across as me being rude or anything. I am A 35 beteseron guy! The wife and I are trying to conceive. I have...
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hi & welcome, i answered you out in the general discussion area :)
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Last post by jimmylegs
5 years ago
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Benefit seen with interferon lasts into progressive MS
Replies: 3
First post
Patients with primary progressive multiple sclerosis (PPMS) who took interferon-beta-1b for two years in a randomized trial continued to show...
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Here is an even better recent abstract about the role of inflammation in MS.
I don't know whether interferon beta's ability to calm inflammation is...
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Last post by CaliReader
6 years ago
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Betaseron costs
Replies: 4
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AudreyRose »
9 years ago
First post
Has anyone found a generic version of this drug, to bring the costs down? Also, any tips on betting subsidized? We are trying to arrange some support...
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Clin Ther. 2012 Sep;34(9):1966-76. doi: 10.1016/j.clinthera.2012.07.010. Epub 2012 Aug 18.
Long-term cost-effectiveness model of interferon beta-1b...
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Last post by MarkW
6 years ago
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Last post by RDowling
6 years ago
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Betasaron....Joint Pain
by
melissa7 »
6 years ago
Has anyone else on here experienced joint pain with Betasaron. After a few injections I started hurting on the same leg my foot drop had previously...
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Last post by melissa7
6 years ago
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It's not so bad
Replies: 8
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surfbird »
8 years ago
First post
I wanted to post this in case any one starting on Betaseron or considering it needs some positivity...especially after seeing my Scared and Yowza!...
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Anyone note differences between Tylenol an ibuprofen?
Yes. I was on Avonex for 10 years. Tylenol was nearly useless. I took Tylenol with my first...
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Last post by NHE
7 years ago
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Betaseron overseas?
Replies: 4
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surfbird »
7 years ago
First post
Has anyone living in the US ever had to order Betaseron while traveling overseas? If so, how did you get it in another country? Is it cheaper in...
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oops - i meant customs at the post office/shipping facilities, not at the airport. from what i understand you can go through customs at the airport...
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Last post by surfbird
7 years ago
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Knots after injection
I get a lot of knots after I inject. I take Ibuprofen an hour before I inject, I use the Betaject and I massage the area right after, but I get these...
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Last post by FUMS
7 years ago
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An icy subject
Replies: 5
First post
I just started my betaseron treatment about a week ago. I've taken 4 shots so far and I am much happier with it compared to avenox. My side effects...
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Before and after injection, i use a heating pad, thanks to this thread. Years ago, when i was taking Avonex, I used ice. But now, I think of using...
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Last post by Slumby
7 years ago
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Necrosis?
Replies: 2
by
FastBenz »
8 years ago
First post
I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...
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I've been on Betaseron for over a year now with no issues till recently.
About 4 months ago I injected into my muscle when I was really tired. I had...
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- 4859 Views
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Last post by NHE
7 years ago
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Post-injection pain?
Replies: 5
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surfbird »
8 years ago
First post
I am still working my way through all my injection sites, and the last 8 of 10 injections have caused what feels like my muscle to be very sore at...
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Hi everyone,
Just wanted to post a follow-up to this now that many months have gone by. One night after an indulgent happy hour, I had to do my...
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Last post by surfbird
7 years ago
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New Betaseron User
Replies: 2
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I was diagnosed with MS May 13, 2011 and started Betaseron treatment on Monday June 27, 2011.
The BetaNurse was amazing and made the whole process...
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I've done a couple and they work really well. I have been using the betaject a lot just to see if I like it or not. LOL the first time I used it...
- 2 Replies
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Last post by dizzzi
7 years ago
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Auto Injectors
by
papabear1981 »
7 years ago
I have been placed on Copaxone from Betaseron. I have 2 auto injectors if anyone is interested.
Please send me a PM with address and I will be happy...
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Last post by papabear1981
7 years ago
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Last post by MSUK
7 years ago
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Double vision
I'm now experiencing a relaps of double vision . I'm not so sure of which eye alignment had gone off..the right or left. The MS attack has hit me...
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Last post by siren
7 years ago
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severe acne
Replies: 6
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stathis »
12 years ago
First post
Hello everyone, I have been having a rather weird problem with my face, posting here just to see if anyone is experiencing the same problems.
I have...
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This sounded ridiculous when I first heard of it, but it worked! I started getting acne also and did much looking for help. I found a post by someone...
- 6 Replies
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Last post by danielleloren
7 years ago
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Just switch to betaseron after 7 yrs o rebif
Replies: 2
First post
I just switch treatment after advice frm my neuro frm rebif to betaseron since rebif is not reducing the relapz tat I am experiencing nowadays.
It...
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Hi NHE,
His reasons is that Rebif is not proofing to be able to control my relapzes since upto this year I been experiencing 4 relapzes already....
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Last post by siren
8 years ago
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Last post by scorpion
8 years ago
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Bayer launches Betaferon® in China
Bayer Schering Pharma announced the upcoming launch in China of Betaferon® (interferon beta-1b) for the treatment of relapsing-remitting forms of...
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Last post by MSUK
8 years ago
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Yowzas! This hurts
Replies: 7
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surfbird »
8 years ago
First post
I did my first shot yesterday and it hurt so much more than I thought it would! I could feel the medicine under my skin...have you ever received a...
Last post
surfbird, I've been on beta for 6 months. This is my first MS drug.
My nurse came and showed me mostly how to use the betaject. Then she made me...
- 7 Replies
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Last post by cranberry
8 years ago
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Betaseron Request
Replies: 1
by
MSPatientFriend »
8 years ago
First post
Dear Forum participants,
As my nickname indicates I am a friend of a person affected by MS. She lives in Cuba, and does not have access to internet....
Last post
I can think of 2 things, that you have probably already thought of: trying the various MS organizations, like the National MS Society and see if they...
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Last post by surfbird
8 years ago
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New Blood Test Predicts Who Will Benefit From Interferons
Replies: 1
by
mrsilkykat »
8 years ago
First post
Posted: Sun Apr 11, 2010 5:18 pm Post subject: New Blood Test Predicts Who Will Benefit From Interferons...
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$6.1 billion per year! Wow ! Well I guess we can say with 100% certainty that the drugs are beneficial... to the drug companies. :-)
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Last post by David1949
8 years ago
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Last post by MSUK
8 years ago
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Last post by MSUK
8 years ago
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Depression and Betaseron
Replies: 7
by
musicman »
8 years ago
First post
Hi all. I imagine this may have been covered but please bear with me. I have been experiencing an increase in depression since I started Betaseron....
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oreo, I was first diagnosed in 1991. Was on Copaxone for many years, then to Betaseron.
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Last post by musicman
8 years ago
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Clinical effectiveness
Replies: 20
First post
I've browsed many many MS sites and if nothing else, there is much research to support the use of ABC's. I've been on Betaseron since April and the...
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In 2000, at 24 I was put on Betaseron. Over the next five years I continued to deteriorate. Finally I stopped taking it in '05 bc as the neuro said...
- 20 Replies
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Last post by thornyrose76
9 years ago
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Teens with OCD and MS
Replies: 2
First post
Does anyone have any experience with the OCD- MS link.Our 16 year old deals with mild OCD and has just been diagnosed with MS after 2 bouts of optic...
Last post
Thanks for that resource! I have done some reading on the whole notion of rebuilding the pathways..makes sense to me. I will definitely have a look....
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Last post by amc
9 years ago
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- 4775 Views
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Last post by AudreyRose
9 years ago
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New Autoinjection Device, Betaject(R) 3
Replies: 2
by
Dunmann »
12 years ago
First post
New Autoinjection Device Designed to Work With Betaseron(R) Now Available For Patients With Multiple Sclerosis
Betaject(R)3 Offers Convenient...
Last post
I've been using the new injector (Betaject -3) for about 4 months now and find it less user-friendly than the older versions. This version is...
- 2 Replies
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Last post by Caralea
9 years ago
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- 0 Replies
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Last post by scorpion
9 years ago
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Starting Betaseron
Replies: 10
First post
OK I am starting Betaseron tommorrow. I am a little nervous the only other thing I have taken was Tysabri...........enough said. I am interested to...
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Hi I have been betaseron for alittle over a month now...I am increasing my dose tonite to the .75 and next it will be the full dose. Is this about...
- 10 Replies
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Last post by lesley823
9 years ago
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- 4797 Views
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Last post by OlDood
10 years ago
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An interasting blog about betaseron
Replies: 1
by
4everandalways »
10 years ago
First post
An interesting blog about betaseron and the possible side effects.
Last post
Just brutal 4ever the way things really work, I took it for 8 years with some high liver enzymes that was it but no real benefit either as far as the...
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Last post by robbie
10 years ago
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- 0 Replies
- 5096 Views
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Last post by SharperInsights
10 years ago
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Side Effects
Replies: 6
by
LiquidSkin »
10 years ago
First post
I have been on Betaseron for a month now, and well I am just about to up the dosing to .75cc
I am having a lot of side effects, I dont eat right (im...
Last post
It's difficult to hear that diagnosis. With two doctors and a lot of tests under your belt it's important now to find a therapy that you can tolerate...
- 6 Replies
- 7116 Views
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Last post by urchin
10 years ago
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Betaseron trade for Avonex?
I was switched from Betaseron to Avonex but have an entire box of leftover Betaseron... can I legally sell it or even give it away? Ideally my...
- 0 Replies
- 5319 Views
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Last post by urchin
10 years ago
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