If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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ThisIsMS Upgrade
Replies: 8
by
NHE » Thu Jan 03, 2019 5:02 pm
First post
Greetings,
We have recently upgraded the ThisIsMS forum software to the latest version of phpBB. We are still working on the site to fix any of the...
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I just checked my spam folder, everything is there!
Problem fixed!
Thks!
- 8 Replies
- 466 Views
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Last post by zen2010
Fri Jan 11, 2019 3:17 am
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New treament forum - Medical Marijauna
Replies: 6
by
NHE » Thu May 04, 2017 1:30 am
First post
We now have a new forum focusing on discussion of medical marijuana in the treatment of MS.
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Hi
Are you using edibles for the spasms? What dose is working for you? or do you find relief with smoking it?
tiff
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- 5719 Views
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Last post by Tif
Sat Jun 30, 2018 10:57 am
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New treatment forum - Ocrevus
Replies: 3
by
NHE » Mon Jan 02, 2017 1:50 am
First post
We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.
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Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus...
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- 7024 Views
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Last post by Kheuer
Wed Oct 31, 2018 3:43 am
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Site registration problems
Replies: 2
by
NHE » Sat Jul 25, 2015 1:30 am
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We are currently experiencing problems with our email system sending out activation emails. If you have tried to register, but didn't receive the...
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If you use a temporary email service and your activation notice email bounces back as undeliverable, then the associated account will likely be...
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- 23511 Views
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Last post by NHE
Tue Nov 13, 2018 4:16 am
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Painful Facial Twitch
Replies: 6
by
Andy » Sat Mar 20, 2004 8:55 am
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Hi there, :) :?: I've been having a painful facial twitch on the right hand side of my face and ear for a few months now and it's really starting to...
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Hi all :) I just wanted to say thank you for all your replies to my post.
It does sound like I have that TN and I'll be mentioning it at my next...
- 6 Replies
- 3120 Views
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Last post by Andy
Tue May 04, 2004 1:36 pm
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Excellent story on ESPN today
by Xenova » Sat Apr 03, 2004 6:46 am
It is about a collegiate football player who will be entering the NFL this month. Teams are shying away from him because he has MS. The story shows...
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- 2258 Views
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Last post by Xenova
Sat Apr 03, 2004 6:46 am
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- 0 Replies
- 2123 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:55 pm
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- 0 Replies
- 2281 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:52 pm
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freud was wrong about transference
Replies: 5
by
VirtuallyFine » Mon Mar 15, 2004 5:59 pm
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so...tomorrow i go to see my neuro. i am so excited to see him again. it has been several years; however, we do bounce e-mail to each other. of all...
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May I Say It AGAIN?
I LOVE MY NEURO!!
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- 2704 Views
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Last post by VirtuallyFine
Sat Mar 20, 2004 7:54 am
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Disney and Segway scooters
Replies: 3
by
Niko » Mon Feb 09, 2004 8:38 am
First post
I just came across a news story just posted this morning on CNN.com
Disney turns away visitors on Segways
Apparently, Disney does not allow...
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hi vikki,
i'm glad u enjoyed your time at the Mouse house lol, and i definitely agree that no one should let MS interfere with their vacation trips,...
- 3 Replies
- 2518 Views
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Last post by guest
Wed Mar 10, 2004 3:13 pm
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Brusing
Replies: 5
by
dawny » Sat Mar 06, 2004 5:30 pm
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Hi, I've been on rebif since Jan. and my questions is does anyone else bruise bad after the shot (we use the auto injector) I had one in my stomach...
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Diane, Thank you for the information.
VirtuallyFine, I also have the red welts my husband has tried to keep the injecter away form my skin and it is...
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- 2977 Views
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Last post by dawny
Mon Mar 08, 2004 9:31 am
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Anyone out there in this Study???
Replies: 2
by
fightingms » Fri Mar 05, 2004 6:14 pm
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Hi All... Here is some info for you. I guess I am the controlled Study. I am about to enter the ACT Clinical Trial Study.
It is a two year double...
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Hi Sharon,
It is my understanding that it is national. I guess I am just nervous because I have never been in a study before.
Methotrexate.....my...
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- 2681 Views
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Last post by fightingms
Mon Mar 08, 2004 5:55 am
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Does anyone have trouble sleeping?
Replies: 8
by
kinch52 » Tue Jan 06, 2004 9:47 am
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:?: I have a alot of trouble with chronic pain & it wakes me up every night! I am a side sleeper & just can't learn to sleep on my back. So, I try to...
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Thanks Sharon. :wink:
I always thought I would buy direct from the factory. There is a Sleepy Hollow here that sells Tempurpedics.......I guess I...
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- 4247 Views
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Last post by fightingms
Wed Mar 03, 2004 5:43 am
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Has this ever happened to you...
Replies: 4
by
OneEyeBlind » Mon Mar 01, 2004 9:44 am
First post
My Specialist feels that I probably have MS. ??The good one.?? Mild in frequency. He told me that if I chose I could start on medication but he...
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Just some more food for thought...in Canada (and I believe other countries) there was a push by the Dr's to have the interferons approved to PREVENT...
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- 3244 Views
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Last post by VirtuallyFine
Tue Mar 02, 2004 4:14 pm
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Great Website
by
MAUNTIE » Sat Feb 21, 2004 5:07 am
:lol: Great site to visit for information, humor, coping, etc.
Multiple Sclerosis sucks.com
I have used it and passed it to my friends and family...
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- 2377 Views
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Last post by MAUNTIE
Sat Feb 21, 2004 5:07 am
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Not Much Going On
Replies: 6
by
crispy » Sun Feb 01, 2004 10:27 am
First post
Hi all, :D
I've been checking the forum on and off all day (Sunday) but there's not much going on. I keep being told there are (up to 13) guests...
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Hi Niko, :D
The site is about three months old and it's popularity grows each day.
It certainly does, and the more family members recommend it to...
- 6 Replies
- 3072 Views
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Last post by crispy
Tue Feb 10, 2004 6:52 am
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Devic's syndrome
Replies: 3
by Karla » Thu Feb 05, 2004 6:59 am
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Can anyone tell me anything about Devic's? Do you know anyone who has had it? Treatment? etc.
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Hi again Karla, :D
Thanks for coming back to tell us about things, so often things are just left up in the air.
Let's hope that any diagnosis was...
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- 2903 Views
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Last post by crispy
Sat Feb 07, 2004 6:20 am
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no drugs question
Replies: 14
by
jdcolette » Mon Dec 15, 2003 3:36 pm
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i have had RRms for 10 years. i tried betaseron for 2 yrs. didnt seem to make a difference. I have 2 or 3 attacks a year. I am very skeptical of the...
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As far as I know, there is no way we can tell, no litmus test.
I have PPMS after being DX with RRMS at first, and a now an MS Ambassador (public...
- 14 Replies
- 5111 Views
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Last post by mswp
Fri Feb 06, 2004 3:35 am
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Which ONE Symptom Would You Love To Do Away With?
Replies: 22
by
Bonnie » Mon Dec 29, 2003 9:47 am
First post
For me, it would be FATIGUE! If I was just exhausted I could handle it, but there is nothing like MS Fatigue to knock me off my feet.
But running a...
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Hi Aikika. :D
I sympathise with your problems - I can't come up with a solution for your guitar playing, but the creative writing should still be...
- 22 Replies
- 7077 Views
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Last post by crispy
Fri Feb 06, 2004 3:32 am
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Do You Remember To Check The Other Forums?
Replies: 3
by
Bonnie » Wed Feb 04, 2004 6:15 am
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I just realized how often I forget that this board is broken up into different forums for specific issues.
I will have to make a conscience effort...
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Okay.
On the main page forum page ThisIsMS.com Forum
Just above the listing of all the forums you'll see to the *left* the time/day of your...
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- 3028 Views
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Last post by Niko
Wed Feb 04, 2004 1:37 pm
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no ejaculation
Replies: 1
by paul32 » Tue Feb 03, 2004 8:51 am
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Yes its the MS and sex thing again. I have had MS for 13 years and I'm now at the stage where I can take an erection and maintain it ok but seem to...
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Hi paul32,
I have a similar situation, but rather than a medication to cure the problem, mine is caused by taking a medication to relieve frequent...
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- 2721 Views
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Last post by crispy
Tue Feb 03, 2004 9:33 am
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Board rules questions
Replies: 5
by
Ptwo » Sat Jan 03, 2004 2:21 am
First post
Maybe I've missed it but I don't don't see any link to what the rules of this board may be. Is everything fair game? Can we post links to other sites...
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Sorry, but *LOL* - Love it....
pafo#1
(pa from OZ#1)
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- 3434 Views
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Last post by mswp
Sat Jan 31, 2004 5:55 pm
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I like the journal feature on this site...
Replies: 2
by
susannah » Wed Dec 24, 2003 10:17 pm
First post
Hi. Just wanted to feedback that i think the journal feature on this site is excellant! I only recently asked my sister how i could go about setting...
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I stumbled on to the journal page a couple of days ago too. How cool!!! I didn't realize it could be public or private though, so thanks for the...
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- 2458 Views
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Last post by Bonnie
Thu Dec 25, 2003 3:58 pm
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An unbiased forum a refreshing change!
Replies: 2
by
susannah » Thu Dec 18, 2003 7:37 pm
First post
Hi my name is Susannah, i am 33 years old and i have rrms. It is awesome to be able to post on a board that is not being monitored by the drug...
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Hi Elaine! It is a small world. Good to get an unbiased view of ms, without the agenda of the drug companies being present! Aussies have always had a...
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- 2939 Views
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Last post by susannah
Fri Dec 19, 2003 5:34 pm
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I like what I see here!
Replies: 1
by Guest » Fri Dec 19, 2003 7:18 am
First post
Just found this site!
Hope to see a lot more activity on this
board in 2004!
Cheers! :D
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Hi Guest, I like what I see here too! :lol:
I also hope it picks up and stays busy. It is different from most MS boards, some added features I...
- 1 Replies
- 2965 Views
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Last post by Bonnie
Fri Dec 19, 2003 1:05 pm
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Hughes Syndrome mimics MS ...
Replies: 3
by
pinpricks » Tue Mar 31, 2009 10:16 am
First post
HI
You may, some of you, take a look at this and ask your doc, unless you had a really clear diag.
Also
Some peoples have been misdiagnosed...
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wow that sounds like me. 2 times they thought I had a pulmonary embolism and another time DVT , all due to my bloood. I have a high D-Dimer count and...
- 3 Replies
- 1859 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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The problem with all the MS-pregnancy press
Replies: 2
by
Punchy » Tue Mar 31, 2009 9:41 am
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I need to rant! Too many people are reading about damn MS and pregnancy.
So now everyone thinks it goes away completely when you're pregnant and...
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there was some girl a year or two ago that was in one of the forums. She had relspase after relapse during her pregnancy. I never followed up to see...
- 2 Replies
- 1246 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Numb patch
Replies: 10
by Guest » Mon Feb 09, 2009 1:58 pm
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My last attack a year ago I had a numb spot above my left knee. I could feel the skin but the muscle underneath felt numb, that sensation comes and...
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It's gotten better, gone away now
Actually my name is Petdakitty, I forgot to type in the d when I registered. it's my gaming name. I play warhammer...
- 10 Replies
- 2116 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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My MS Mis-Diagnosis please read!!!
Replies: 59
by
pegs » Tue Mar 25, 2008 3:31 pm
First post
I will get tested for Lyme disease....it makes sense to me because all my symptoms of MS started again when I stopped taking antibiotics(for acne)...
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P-Kitty:
Sorry for more questions, but why did the CDC get involved? I can understand if you tested positive on a standard lab's Western Blot, then...
- 59 Replies
- 10602 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Obama to reverse embryonic stem cell ban
Replies: 47
by
scorpion » Fri Mar 06, 2009 2:55 pm
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Great News!!!!!!!!! Can we have a hand for President Obama!!!!!
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Adult stem cells as treatment:
paraphrasing: Cells can misbehave. It will take time to figure out the best therapy.
And dangerous as they...
- 47 Replies
- 6202 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Marshal protocal ? not the answer for ms'rs who love the sun
Replies: 3
by
skydog » Wed Feb 25, 2009 2:13 pm
First post
I would like to start a antibiotic treatment. The marshal protocol makes some sense but scares the hell out of me. I have seen more sun than most my...
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I did an insane amount of antibiotics, IV for 9 months and then pills 11 years ago. was relapse and progression until the past year due to other...
- 3 Replies
- 1302 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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