If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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New treatment forum - Mavenclad
by
NHE » Thu Apr 25, 2019 3:08 pm
Mavenclad (cladribine) is an oral treatment for relapsing MS and active secondary progressive MS.
MAVENCLAD is a purine antimetabolite indicated...
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- 609 Views
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Last post by NHE
Thu Apr 25, 2019 3:08 pm
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New treatment forum - Mayzent
by
NHE » Thu Apr 25, 2019 12:28 pm
Mayzent is an oral treatment for relapse remitting MS and active secondary progressive MS.
MAYZENT is a sphingosine 1-phosphate receptor modulator...
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- 494 Views
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Last post by NHE
Thu Apr 25, 2019 12:28 pm
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ThisIsMS Upgrade
Replies: 8
by
NHE » Thu Jan 03, 2019 5:02 pm
First post
Greetings,
We have recently upgraded the ThisIsMS forum software to the latest version of phpBB. We are still working on the site to fix any of the...
Last post
I just checked my spam folder, everything is there!
Problem fixed!
Thks!
- 8 Replies
- 1063 Views
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Last post by zen2010
Fri Jan 11, 2019 3:17 am
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New treatment forum - Ocrevus
Replies: 3
by
NHE » Mon Jan 02, 2017 1:50 am
First post
We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.
Last post
Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus...
- 3 Replies
- 7620 Views
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Last post by Kheuer
Wed Oct 31, 2018 3:43 am
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Site registration problems
Replies: 2
by
NHE » Sat Jul 25, 2015 1:30 am
First post
We are currently experiencing problems with our email system sending out activation emails. If you have tried to register, but didn't receive the...
Last post
If you use a temporary email service and your activation notice email bounces back as undeliverable, then the associated account will likely be...
- 2 Replies
- 24018 Views
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Last post by NHE
Tue Nov 13, 2018 4:16 am
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People with MS
by
wilson » Wed Jun 02, 2004 7:19 am
Last night, I saw on ESPN sports channel that Khi Downey will be playing for the San Francisco 49 ers. He is an OG footbal player with MS
A clip...
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- 2254 Views
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Last post by wilson
Wed Jun 02, 2004 7:19 am
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I live in the MS-Belt. Is it dangerous to continue?
Replies: 9
by
wilson » Sun May 02, 2004 5:23 pm
First post
Hi all,
I was ds in January which came as quite the shocker.
I have been living in Denver, CO for the last 12 years. I have been told that Colordo...
Last post
The head of the ms center at Dartmouth has told me that the rates of ms for northern NH and Vt are the highest in the country. Could it be that we...
- 9 Replies
- 6002 Views
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Last post by willysnout1
Mon May 31, 2004 7:10 pm
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Hello....
Replies: 2
by
k8jsl » Mon May 31, 2004 3:54 pm
First post
Hello all,
Just stopped by to say hi :D ..
Was browsing the hostpc.com forums and happen to see this one listed...
A little history: Aftr 18...
Last post
Hello, sorry that you are here because of your new dx. Hope you have the proper meds to keep you on a good path.
Just wanted to say welcome! (even...
- 2 Replies
- 2214 Views
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Last post by maybelater
Mon May 31, 2004 4:13 pm
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MS and Hodgkins Disease
Replies: 2
by
Cathy » Tue May 25, 2004 11:38 am
First post
May 18, 2004 -- Two diseases that frequently strike young, affluent adults may share similar causes. A new study shows that multiple sclerosis (MS)...
Last post
My niece has had Hodgkin's and has ms. The ms diagnosis came two years after the cancer.
Peter
- 2 Replies
- 3234 Views
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Last post by Ptwo
Thu May 27, 2004 4:15 pm
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Fatigue & Treatment
Replies: 34
by
VirtuallyFine » Mon Mar 01, 2004 10:52 am
First post
:?:
I was wondering who has fatigue as their worst symptom, and if you are taking any medication to help with it. I am seeing my Neuro in two weeks...
Last post
I'm new to the board and finding my way around. I've been following MS research for some 40 years and my wife has SPMS.
Just a few comments on...
- 34 Replies
- 12436 Views
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Last post by HarryZ
Wed May 26, 2004 5:00 pm
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Aids for Visually Impaired
by
mswp » Sun May 23, 2004 6:33 pm
G'Day All :)
I am wanting to find out all sorts on the issue of Visual Impairment.
I myself am dealing with decreasing vision and have started to...
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- 2182 Views
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Last post by mswp
Sun May 23, 2004 6:33 pm
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I'm In the Study
Replies: 19
by
fightingms » Fri Mar 19, 2004 6:21 am
First post
My MS Clinic called yesterday to let me know I am in the study....the ACT study. I go next month to find out which arm I was randomized into and I...
Last post
Wow...all I can say is you are very lucky to have him as a neuro. It's always nice to know they're on their toes so to speak, when it comes to your...
- 19 Replies
- 6791 Views
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Last post by 2gentle
Sun May 16, 2004 2:18 pm
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Painful Facial Twitch
Replies: 6
by
Andy » Sat Mar 20, 2004 8:55 am
First post
Hi there, :) :?: I've been having a painful facial twitch on the right hand side of my face and ear for a few months now and it's really starting to...
Last post
Hi all :) I just wanted to say thank you for all your replies to my post.
It does sound like I have that TN and I'll be mentioning it at my next...
- 6 Replies
- 3182 Views
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Last post by Andy
Tue May 04, 2004 1:36 pm
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Excellent story on ESPN today
by Xenova » Sat Apr 03, 2004 6:46 am
It is about a collegiate football player who will be entering the NFL this month. Teams are shying away from him because he has MS. The story shows...
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- 2285 Views
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Last post by Xenova
Sat Apr 03, 2004 6:46 am
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- 0 Replies
- 2151 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:55 pm
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- 0 Replies
- 2315 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:52 pm
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freud was wrong about transference
Replies: 5
by
VirtuallyFine » Mon Mar 15, 2004 5:59 pm
First post
so...tomorrow i go to see my neuro. i am so excited to see him again. it has been several years; however, we do bounce e-mail to each other. of all...
Last post
May I Say It AGAIN?
I LOVE MY NEURO!!
- 5 Replies
- 2769 Views
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Last post by VirtuallyFine
Sat Mar 20, 2004 7:54 am
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Disney and Segway scooters
Replies: 3
by
Niko » Mon Feb 09, 2004 8:38 am
First post
I just came across a news story just posted this morning on CNN.com
Disney turns away visitors on Segways
Apparently, Disney does not allow...
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hi vikki,
i'm glad u enjoyed your time at the Mouse house lol, and i definitely agree that no one should let MS interfere with their vacation trips,...
- 3 Replies
- 2567 Views
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Last post by guest
Wed Mar 10, 2004 3:13 pm
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Brusing
Replies: 5
by
dawny » Sat Mar 06, 2004 5:30 pm
First post
Hi, I've been on rebif since Jan. and my questions is does anyone else bruise bad after the shot (we use the auto injector) I had one in my stomach...
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Diane, Thank you for the information.
VirtuallyFine, I also have the red welts my husband has tried to keep the injecter away form my skin and it is...
- 5 Replies
- 3045 Views
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Last post by dawny
Mon Mar 08, 2004 9:31 am
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Anyone out there in this Study???
Replies: 2
by
fightingms » Fri Mar 05, 2004 6:14 pm
First post
Hi All... Here is some info for you. I guess I am the controlled Study. I am about to enter the ACT Clinical Trial Study.
It is a two year double...
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Hi Sharon,
It is my understanding that it is national. I guess I am just nervous because I have never been in a study before.
Methotrexate.....my...
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- 2722 Views
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Last post by fightingms
Mon Mar 08, 2004 5:55 am
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Does anyone have trouble sleeping?
Replies: 8
by
kinch52 » Tue Jan 06, 2004 9:47 am
First post
:?: I have a alot of trouble with chronic pain & it wakes me up every night! I am a side sleeper & just can't learn to sleep on my back. So, I try to...
Last post
Thanks Sharon. :wink:
I always thought I would buy direct from the factory. There is a Sleepy Hollow here that sells Tempurpedics.......I guess I...
- 8 Replies
- 4350 Views
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Last post by fightingms
Wed Mar 03, 2004 5:43 am
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Has this ever happened to you...
Replies: 4
by
OneEyeBlind » Mon Mar 01, 2004 9:44 am
First post
My Specialist feels that I probably have MS. ??The good one.?? Mild in frequency. He told me that if I chose I could start on medication but he...
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Just some more food for thought...in Canada (and I believe other countries) there was a push by the Dr's to have the interferons approved to PREVENT...
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- 3298 Views
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Last post by VirtuallyFine
Tue Mar 02, 2004 4:14 pm
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Great Website
by
MAUNTIE » Sat Feb 21, 2004 5:07 am
:lol: Great site to visit for information, humor, coping, etc.
Multiple Sclerosis sucks.com
I have used it and passed it to my friends and family...
- 0 Replies
- 2403 Views
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Last post by MAUNTIE
Sat Feb 21, 2004 5:07 am
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Not Much Going On
Replies: 6
by
crispy » Sun Feb 01, 2004 10:27 am
First post
Hi all, :D
I've been checking the forum on and off all day (Sunday) but there's not much going on. I keep being told there are (up to 13) guests...
Last post
Hi Niko, :D
The site is about three months old and it's popularity grows each day.
It certainly does, and the more family members recommend it to...
- 6 Replies
- 3157 Views
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Last post by crispy
Tue Feb 10, 2004 6:52 am
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Devic's syndrome
Replies: 3
by Karla » Thu Feb 05, 2004 6:59 am
First post
Can anyone tell me anything about Devic's? Do you know anyone who has had it? Treatment? etc.
Last post
Hi again Karla, :D
Thanks for coming back to tell us about things, so often things are just left up in the air.
Let's hope that any diagnosis was...
- 3 Replies
- 2957 Views
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Last post by crispy
Sat Feb 07, 2004 6:20 am
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no drugs question
Replies: 14
by
jdcolette » Mon Dec 15, 2003 3:36 pm
First post
i have had RRms for 10 years. i tried betaseron for 2 yrs. didnt seem to make a difference. I have 2 or 3 attacks a year. I am very skeptical of the...
Last post
As far as I know, there is no way we can tell, no litmus test.
I have PPMS after being DX with RRMS at first, and a now an MS Ambassador (public...
- 14 Replies
- 5286 Views
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Last post by mswp
Fri Feb 06, 2004 3:35 am
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Which ONE Symptom Would You Love To Do Away With?
Replies: 22
by
Bonnie » Mon Dec 29, 2003 9:47 am
First post
For me, it would be FATIGUE! If I was just exhausted I could handle it, but there is nothing like MS Fatigue to knock me off my feet.
But running a...
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Hi Aikika. :D
I sympathise with your problems - I can't come up with a solution for your guitar playing, but the creative writing should still be...
- 22 Replies
- 7369 Views
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Last post by crispy
Fri Feb 06, 2004 3:32 am
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Do You Remember To Check The Other Forums?
Replies: 3
by
Bonnie » Wed Feb 04, 2004 6:15 am
First post
I just realized how often I forget that this board is broken up into different forums for specific issues.
I will have to make a conscience effort...
Last post
Okay.
On the main page forum page ThisIsMS.com Forum
Just above the listing of all the forums you'll see to the *left* the time/day of your...
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- 3085 Views
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Last post by Niko
Wed Feb 04, 2004 1:37 pm
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no ejaculation
Replies: 1
by paul32 » Tue Feb 03, 2004 8:51 am
First post
Yes its the MS and sex thing again. I have had MS for 13 years and I'm now at the stage where I can take an erection and maintain it ok but seem to...
Last post
Hi paul32,
I have a similar situation, but rather than a medication to cure the problem, mine is caused by taking a medication to relieve frequent...
- 1 Replies
- 2765 Views
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Last post by crispy
Tue Feb 03, 2004 9:33 am
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Board rules questions
Replies: 5
by
Ptwo » Sat Jan 03, 2004 2:21 am
First post
Maybe I've missed it but I don't don't see any link to what the rules of this board may be. Is everything fair game? Can we post links to other sites...
Last post
Sorry, but *LOL* - Love it....
pafo#1
(pa from OZ#1)
- 5 Replies
- 3508 Views
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Last post by mswp
Sat Jan 31, 2004 5:55 pm
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I like the journal feature on this site...
Replies: 2
by
susannah » Wed Dec 24, 2003 10:17 pm
First post
Hi. Just wanted to feedback that i think the journal feature on this site is excellant! I only recently asked my sister how i could go about setting...
Last post
I stumbled on to the journal page a couple of days ago too. How cool!!! I didn't realize it could be public or private though, so thanks for the...
- 2 Replies
- 2502 Views
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Last post by Bonnie
Thu Dec 25, 2003 3:58 pm
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An unbiased forum a refreshing change!
Replies: 2
by
susannah » Thu Dec 18, 2003 7:37 pm
First post
Hi my name is Susannah, i am 33 years old and i have rrms. It is awesome to be able to post on a board that is not being monitored by the drug...
Last post
Hi Elaine! It is a small world. Good to get an unbiased view of ms, without the agenda of the drug companies being present! Aussies have always had a...
- 2 Replies
- 2990 Views
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Last post by susannah
Fri Dec 19, 2003 5:34 pm
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I like what I see here!
Replies: 1
by Guest » Fri Dec 19, 2003 7:18 am
First post
Just found this site!
Hope to see a lot more activity on this
board in 2004!
Cheers! :D
Last post
Hi Guest, I like what I see here too! :lol:
I also hope it picks up and stays busy. It is different from most MS boards, some added features I...
- 1 Replies
- 2998 Views
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Last post by Bonnie
Fri Dec 19, 2003 1:05 pm
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Hughes Syndrome mimics MS ...
Replies: 3
by
pinpricks » Tue Mar 31, 2009 10:16 am
First post
HI
You may, some of you, take a look at this and ask your doc, unless you had a really clear diag.
Also
Some peoples have been misdiagnosed...
Last post
wow that sounds like me. 2 times they thought I had a pulmonary embolism and another time DVT , all due to my bloood. I have a high D-Dimer count and...
- 3 Replies
- 1915 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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The problem with all the MS-pregnancy press
Replies: 2
by
Punchy » Tue Mar 31, 2009 9:41 am
First post
I need to rant! Too many people are reading about damn MS and pregnancy.
So now everyone thinks it goes away completely when you're pregnant and...
Last post
there was some girl a year or two ago that was in one of the forums. She had relspase after relapse during her pregnancy. I never followed up to see...
- 2 Replies
- 1283 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Numb patch
Replies: 10
by Guest » Mon Feb 09, 2009 1:58 pm
First post
My last attack a year ago I had a numb spot above my left knee. I could feel the skin but the muscle underneath felt numb, that sensation comes and...
Last post
It's gotten better, gone away now
Actually my name is Petdakitty, I forgot to type in the d when I registered. it's my gaming name. I play warhammer...
- 10 Replies
- 2182 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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My MS Mis-Diagnosis please read!!!
Replies: 59
by
pegs » Tue Mar 25, 2008 3:31 pm
First post
I will get tested for Lyme disease....it makes sense to me because all my symptoms of MS started again when I stopped taking antibiotics(for acne)...
Last post
P-Kitty:
Sorry for more questions, but why did the CDC get involved? I can understand if you tested positive on a standard lab's Western Blot, then...
- 59 Replies
- 11396 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Obama to reverse embryonic stem cell ban
Replies: 47
by
scorpion » Fri Mar 06, 2009 2:55 pm
First post
Great News!!!!!!!!! Can we have a hand for President Obama!!!!!
Last post
Adult stem cells as treatment:
paraphrasing: Cells can misbehave. It will take time to figure out the best therapy.
And dangerous as they...
- 47 Replies
- 6669 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Marshal protocal ? not the answer for ms'rs who love the sun
Replies: 3
by
skydog » Wed Feb 25, 2009 2:13 pm
First post
I would like to start a antibiotic treatment. The marshal protocol makes some sense but scares the hell out of me. I have seen more sun than most my...
Last post
I did an insane amount of antibiotics, IV for 9 months and then pills 11 years ago. was relapse and progression until the past year due to other...
- 3 Replies
- 1345 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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