A forum to talk about the general challenges of daily life with MS.
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Coronavirus (COVID-19): What You Need To Know
Replies: 147
by
jimmylegs » Sun Mar 15, 2020 4:10 am » in
General Discussion
First post
What You Need To Know About Coronavirus (COVID-19)
What does COVID-19 mean for people living with MS? Many disease modifying therapies (DMTs) for...
Last post
One Man's COVID-19 Death Raises The Worst Fears Of Many People With Disabilities
July 31, 2020 3:29 PM ET
What Melissa Hickson says happened to...
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Last post by NHE
Mon Aug 03, 2020 1:09 pm
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Help for nursing facility individual with MS
Replies: 3
by
ricksmithmsw » Tue Jul 24, 2012 12:16 pm
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I see a patient in a nursing facility with advanced MS. She currently is only able to move her head to use her call light button. The problem is that...
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The nursing home has used a strap with clips on both ends to attach around the patient's neck but somehow this is not working as well. We were able...
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Last post by ricksmithmsw
Wed Jul 25, 2012 4:36 am
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Ideas for extending independent living
Replies: 2
by
JimNiowa » Mon Jul 23, 2012 7:01 pm
First post
Good evening,
I'm writing on behalf of my mother who has primary progressive MS. She's been a trooper and gone from walking with a floppy foot (10...
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Welcome Jim! This is definitely a great group of supportive people. A couple of ideas. While I am still able to walk, the bathroom was a rather scary...
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Last post by Froggie
Tue Jul 24, 2012 7:59 pm
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wildlife is cool
Replies: 4
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jimmylegs » Mon May 14, 2012 5:22 pm
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so there's this random black bear wandering around my work. several confirmed sightings now. and we're hiking the canyon again tomorrow. so yeah. i...
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Ah, critters! We certainly have had the gamut. A raccoon was camping out in our neighbor's chimney and getting in to the trash. This is even with a...
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- 1630 Views
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Last post by Froggie
Mon Jul 23, 2012 6:03 pm
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Sequencing the human microbiome
by
NHE » Sun Jun 17, 2012 12:16 pm
This article was too interesting to not share it... :peace:
In Good Health? Thank Your 100 Trillion Bacteria
By Gina Kolata
Published: June 13,...
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Last post by NHE
Sun Jun 17, 2012 12:16 pm
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Why doesn't the pain 'remit' completely?
Replies: 3
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RobM105 » Thu May 31, 2012 4:55 pm
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I have RRMS, and the relapses aren't that common. It's about 1/7-8 months. The problem is that the pain never goes into remission completely. Some of...
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I had terrible burning pain in my back close to when I was diagnosed just over 7yrs ago, it seemed it would go on indefinitely - and then one day it...
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Last post by Dahlia
Sat Jun 02, 2012 11:47 pm
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Last post by MScrusade
Mon May 28, 2012 12:21 am
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Has anyone been bothered by police for public intoxication?
Replies: 5
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RobM105 » Fri May 11, 2012 4:11 pm
First post
The symptoms that most likely suggested it at the time were my cog-fog, vertigo, slurred speech and 'unnatural happiness'. The first three are direct...
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Ah, cheap drunk, huh? I'm always on some amount of painkillers, so drinking seems irrelevant (and dangerous) to me. From Neurontin to Vicodin, I'm...
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Last post by RobM105
Wed May 23, 2012 11:24 am
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Slo-mo microbes
by
NHE » Fri May 18, 2012 11:34 pm
Slo-mo microbes extend the frontiers of life
Community in the deep seabed uses so little oxygen that it is no longer clear where the lower bound...
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- 1605 Views
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Last post by NHE
Fri May 18, 2012 11:34 pm
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Cooling Vest
Replies: 7
by
EyeDoc » Sun Feb 20, 2011 6:32 pm
First post
Does anyone have advice on a good cooling vest? I am almost certainly going to try one this summer, but I don't want to spend $200 on a bad one.
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One of the reasons why a cooling vest may be useful is the effect of cold induced thermogenesis on mitochondrial function. I'm sure everyone has...
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Last post by tedhutchinson
Tue Apr 17, 2012 1:19 pm
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A request...
Replies: 2
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studentnurse1 » Thu Mar 22, 2012 10:53 am
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This may seem like an unusual request - feel free to ignore if it is inappropriate. I represent a group of nursing students in Jacksonville FL - we...
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Interesting, I think that what your doing would be very helpful in the caring community and I support your efforts but I personally wouldn't do it...
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Last post by heyray
Sat Mar 31, 2012 7:47 am
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I need to vent again....
Replies: 4
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carolew » Tue Mar 20, 2012 1:21 pm
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I have not been on this site for a long time. Today, I went to the Rehabilitation center because my walking is not very good, even dangerous with a...
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Thanks Doug, you read and understood exactly how I felt. I go shopping with my scooter, in Montreal, where no one knows me. Crazy but true. Too proud...
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Last post by carolew
Fri Mar 23, 2012 10:30 am
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tired
Replies: 92
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robbie » Thu May 05, 2011 8:55 am
First post
tired of everything. gotta not think about the future it's just to depressing being in a wheelchair is one thing but all that comes with ms is to...
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It is so true and so sad...
Has anyone heard from Robbie? We exchanged a few pm's last fall and then he stopped responding.
M
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Last post by maynaka
Fri Mar 23, 2012 7:17 am
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Stuck
Replies: 1
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PS19 » Thu Mar 01, 2012 5:17 pm
First post
What does everyone do when it comes to finances and MS?
Last post
What does everyone do when it comes to finances and MS?
friends and family
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Last post by DougL
Mon Mar 05, 2012 7:35 am
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Last post by Interrupted
Tue Feb 28, 2012 4:53 am
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i need to vent
Replies: 16
by
sara33 » Tue Jun 02, 2009 6:22 am
First post
apparently it is only ok to be handicapped if you are old. yesterday i did my grocery shopping and could barely make it back to my van, limping along...
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I know how you feel , some days it takes all I have in me to get the 40 ft too my truck after a long day at work , I was diagnosed a yr ago with...
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Last post by jsmach
Fri Feb 24, 2012 7:24 pm
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Newly diagnosed
Replies: 2
by
citrus8882 » Fri Feb 17, 2012 10:26 am
First post
Hello, I am new here. I was diagnosed with MS a few weeks ago. I woke up one day and the left half of my body was very weak. I could hardly move my...
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if you can get them to run tests on serum b12, zinc, magnesium, vitamin d3, and ferritin, that could tell you a lot about whether you match the...
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Last post by jimmylegs
Tue Feb 21, 2012 4:54 am
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An observation...
Replies: 4
by
NHE » Wed Nov 09, 2011 12:57 am
First post
I just received the latest edition of the NMSS's magazine Momentum. I was surprised to see an ad for Avonex take up an entire 7 pages. This got me...
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Those ads always good for a laugh. Some glossy photos of patient X with MS since such and such a date doing something really boring like putting...
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Last post by bpmsrider
Wed Feb 08, 2012 2:21 pm
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ms and law enforcement careers
Replies: 2
by
heyray » Fri Dec 30, 2011 1:25 pm
First post
Does anyone know if a law enforcement applicant can become an officer being diagnosed with ms? If so, what is the general consensus or government...
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I have been in LE for 14 years. In order to be hired, you will have to pass a physical and psychological testing prior to hire. You will also have to...
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- 1857 Views
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Last post by blue129
Thu Feb 02, 2012 10:54 am
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Troubles
by
Yash » Tue Jan 10, 2012 1:43 am
3:09 pm - banged my head on wall edge, while putting my trimming machine in rack. All was sudden, involuntary, but reflex back was fast. :cry:
-...
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Last post by Yash
Tue Jan 10, 2012 1:43 am
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Leonard Cohen Lyrics: Hallelujah
Replies: 22
by malden » Thu Nov 04, 2010 12:26 pm
First post
LEONARD COHEN LYRICS
Hallelujah
Now I've heard there was a secret chord
That David played, and it pleased the Lord
But you don't really care for...
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Well, I got on a Leonard Cohen kick this week and found this clip while searching for the very best video version of Hallelujah. It's on his own web...
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Last post by euphoniaa
Fri Jan 06, 2012 10:40 am
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Christmas, holidays
Replies: 4
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Maledicte » Sat Dec 24, 2011 1:09 pm
First post
Does anyone else get as down on these wretched occasions?
I have one friend (who has a HUGE family so hes always busy come xmas/holidays)
I have no...
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Maledicte, I'm sending you lots of christmas good wishes for standing up for me against that now vanished troll. I am going to put a few papers on...
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Last post by Maledicte
Sun Dec 25, 2011 1:33 pm
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Do any men here self-catheterize?
Replies: 4
by
adamt » Sat Feb 12, 2011 4:09 pm
First post
I was thinking about this as i urinate every 2 hours which is a pain, i press my bladder when going but can never fully empty my bladder,
so i read...
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I had a medical assistant at my urologist show me how to self cath, now it's pain free and easy
Forget videos, if you can afford it, be shown how to...
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Last post by Maledicte
Thu Dec 22, 2011 9:26 am
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my MS got me checked into the ER last night
Replies: 3
by
Ute » Fri Dec 09, 2011 2:59 am
First post
Ok, here is my story:
I got checked into the ER’s trauma center last night.
Dx: fracture of the foot’s base of the fifth metatarsal bone.
About...
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Hi Ute,
Friend that was whole lot of good will power, that you are able to do and still make things normal for the world.
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Last post by Yash
Fri Dec 16, 2011 3:54 am
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Last post by mspetlover
Wed Nov 23, 2011 8:06 pm
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MS from Downstairs
by
eolon » Wed Nov 09, 2011 12:07 pm
Hello:
As a new poster, I wanted to post a poem I wrote recently about my wife and her struggle with MS.
You need not reply or comment to this,...
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Last post by eolon
Wed Nov 09, 2011 12:07 pm
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Last post by YoungMS
Mon Oct 24, 2011 4:15 am
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i have a local client!
Replies: 8
by
jimmylegs » Mon Oct 17, 2011 4:58 pm
First post
met an unhappy individual at work today. one thing led to another and we had a meeting this eve - i know i can help :D
time to figure out an hourly...
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You could call three or four, pretend to be a potential client, ask their experience, fees, what you get for the money, etc. and then average it out....
- 8 Replies
- 1487 Views
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Last post by NHE
Thu Oct 20, 2011 4:59 am
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Doing what works
by
CanadianGirl » Sun Oct 09, 2011 2:41 pm
I posted a new blog entry, Do What Works. It is about chosing to leave my ego behind and still engage the world instead of being captive and...
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Last post by CanadianGirl
Sun Oct 09, 2011 2:41 pm
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Yes, my life really IS this silly.
Replies: 6
by
euphoniaa » Thu Oct 06, 2011 2:09 pm
First post
It's time for yet another episode in Euphoniaa's True Life Adventures. :smile: To set the scene, I work at a university (for about 11 yrs), in an...
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euphoniaa,
Look at the bright side; if you have a nice ass you might get some offers!!
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Last post by maynaka
Sat Oct 08, 2011 5:29 am
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GRRRRRR
Replies: 12
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jimmylegs » Tue Jul 05, 2011 5:02 pm
First post
seriously.
from Top 10 HR Best Practices
10. Delight Employees with the Unexpected
The last but not least way is to occasionally delight your...
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I think this sums up HR
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Last post by mrbarlow
Fri Oct 07, 2011 11:57 am
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Hello all!
by
CanadianGirl » Fri Sep 30, 2011 7:53 pm
Hi there. I am new here, but i have been around in other MS Forum circles. Pleased to meet you all!
I am a 38 year old mom to two teens. I was...
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Last post by CanadianGirl
Fri Sep 30, 2011 7:53 pm
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i am sad
Replies: 2
by
jimmylegs » Mon Aug 22, 2011 3:49 pm
First post
early this morning, a bright light went out in canada.
when i got to work i lowered the flag to half mast.
rest in peace jack layton.
Last post
:(..
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Last post by jimmylegs
Tue Aug 23, 2011 4:51 pm
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and, so it goes...
Replies: 11
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jimmylegs » Mon Jul 25, 2011 2:50 pm
First post
handed in my notice today, losing the apartment. yay, moving back home :S ugghhh shoot me now
Last post
thx WTK.
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- 2196 Views
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Last post by jimmylegs
Tue Aug 16, 2011 5:54 am
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Need computer/blog advice pls
by
fee001 » Thu Jul 21, 2011 2:20 am
Hi!
I need your help re accessing my blog subjects.
Is there a shortcut that I can do to access a particular subject. say if I have written a...
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- 1421 Views
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Last post by fee001
Thu Jul 21, 2011 2:20 am
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I am still learning
by
fee001 » Fri Jul 08, 2011 8:29 pm
Hi!
May have posted previous post in wrong place, if so please forgive me as I am still learning to navigate here ok
Fiona
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- 1590 Views
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Last post by fee001
Fri Jul 08, 2011 8:29 pm
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todays tip
by
fee001 » Fri Jul 08, 2011 8:24 pm
Hi!
If you use a walker with wheels thingy, and cant carry things like your purse and mobile, but have a bum bag shorten the strap to fit around...
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- 1498 Views
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Last post by fee001
Fri Jul 08, 2011 8:24 pm
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U2 live
by
erinc14 » Fri Jul 08, 2011 9:24 am
U1 is playing here tonight and tomorrow and i just found out you can watch and listen online
Cancel your plans for Saturday night!
We're...
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- 1382 Views
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Last post by erinc14
Fri Jul 08, 2011 9:24 am
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Last post by NHE
Mon Jun 27, 2011 11:16 pm
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Supra-Pubic Catheter and Discrete Bag
by
faithful » Sat Jun 18, 2011 5:05 pm
My husband and neighbor have developed a way to hang a 4-liter bag from the back of my Permobil 300 wheelchair that is totally discrete. The tubing...
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- 1703 Views
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Last post by faithful
Sat Jun 18, 2011 5:05 pm
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to dream or not to dream
Replies: 4
by
Nola » Thu Jun 16, 2011 1:26 pm
First post
For so long I have thought, is it worth having dreams that you know will never happen? Is an unrealistic dream better than dreamless sleep? But...
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Thank you so much for taking the time to read and respond. You don't even know me but you took time to write. I think being alone is too much. No,...
- 4 Replies
- 1665 Views
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Last post by Nola
Sat Jun 18, 2011 4:30 am
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Last post by flipflopper
Sun May 22, 2011 12:14 pm
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guess who
Replies: 4
by
jimmylegs » Sat Apr 02, 2011 7:55 am
First post
made me lunch yesterday?? sh8un!! yummy :) cute little one :D
Last post
I'm also glad that she's doing well
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- 1875 Views
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Last post by flipflopper
Sat May 21, 2011 12:57 pm
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Please, may I whine a little...
Replies: 4
by
Karazhan » Fri Apr 29, 2011 10:44 pm
First post
First of all, my heart goes out to the storm victims. My problems are small compared to the death and devastation they've had to endure this past...
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Yeah at first I thought SPMS meant you had to be in really bad shape but thats not always the case, its just a matter f how the disease is actually...
- 4 Replies
- 1898 Views
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Last post by mattalleng
Wed May 18, 2011 5:26 am
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Where do I go from here?
Replies: 16
by
Edward » Thu May 27, 2010 1:15 pm
First post
Hello Everyone,
This is my first post to this forum and from what I ve read, I think there's a lot of great people here with a lot more experience...
Last post
Hello Everyone, thank you all for all the great posts and wisdom you have all shared with me on this forum.
I wanted to provide everyone with a...
- 16 Replies
- 4791 Views
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Last post by Edward
Tue Mar 29, 2011 8:46 pm
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conversion disorder
by
jimmylegs » Mon Mar 14, 2011 9:16 am
i just saw an outright shocking video (circulating fb) of a young lady dealing with conversion disorder. it looks nasty. i never heard of it so i...
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- 1550 Views
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Last post by jimmylegs
Mon Mar 14, 2011 9:16 am
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grounded
Replies: 15
by
jimmylegs » Sat Feb 12, 2011 4:53 pm
First post
ugh. i got hurt at work. the doc sent me home for a week. if i understand it correctly, i'm going to be paid 85% of my already crap wages. at least...
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lower back. doc said disc, physio said facet joint. it's amazing to me how long this is taking! but i think the physio last week is really helping :)
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- 3655 Views
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Last post by jimmylegs
Sat Mar 12, 2011 9:18 pm
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Pain advice?
Replies: 2
by
growing2boys » Thu Jan 20, 2011 6:51 pm
First post
Just curious what you are taking for neuro related aches & pains? How much & how often?
My neuro refuses to offer anything other gabapentin & it...
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I am on pain management for a pre-MS accident(s) and spinal injury, and my jaw pain BROKE through the treatments like white hot lightning. My PM Doc...
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- 2061 Views
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Last post by catchesya
Wed Mar 02, 2011 8:45 pm
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Last post by llowe
Tue Feb 22, 2011 5:43 pm
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MS attack
Replies: 1
by
zajmajk » Wed Feb 16, 2011 12:18 am
First post
Hi everybody,
I guess I have MS attack. My right hand and leg are weakly than left side. How can I help myself? Maybe some vitamins ? Or shouold I go...
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i would say, get checked out, and of course i will always support the nutrition approach too!
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- 1703 Views
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Last post by jimmylegs
Wed Feb 16, 2011 8:38 am
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Feeling of 'numbness' (not physical)
Replies: 4
by
shortcake » Fri Feb 04, 2011 9:25 am
First post
I just posted another thread that's more specific to one thing... but I wanted your opinion on this too.
It's hard to explain, but I find that in...
Last post
i can't find much on rebif and nutrient depletion.. all i get for depletion and interaction info is: none known which apparently equates to no one...
- 4 Replies
- 2094 Views
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Last post by jimmylegs
Mon Feb 07, 2011 9:12 am
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