A board to discuss the Multiple Sclerosis modifying drug Copaxone
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Copaxone: I'm getting antsy waiting!
Replies: 4
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Cammie » Wed May 23, 2012 11:14 pm
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I have been on Copaxone for 2 and 1/2 months. Already I have felt some positive effect, and feel it is going to be the med for me. But I'm having a...
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I have never heard of that for depression. I will certainly look into it. Since I wrote this I have increased my walking, and that has helped to lift...
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Last post by Cammie
Tue Jul 31, 2012 11:22 pm
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Injection site red and warm
Replies: 3
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hijeenie » Tue Jun 19, 2012 7:16 pm
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My husband just started Copax 5 days ago. He has been injecting into his thigh thinking he had to do 1 site for a week and then move to another site...
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Thanks,
He ended up on an antibiotic since the redness and heat were spreading up into his thigh. We are waiting for someone from shared solutions to...
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Last post by hijeenie
Thu Jun 28, 2012 5:45 pm
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Reaction to Copaxone
Replies: 1
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kiki03 » Mon Jun 18, 2012 9:20 pm
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Hello everyone i am new to these MS forums. I wanted to share my experience with copaxone and see if anyone else has had any similar expierences. I...
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Hi Kiki,
Your reaction to copaxone sounds like what's known as an Immediate Postinjection Reaction. The search utility is having problems, but you...
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Last post by NHE
Mon Jun 18, 2012 10:42 pm
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Thigh shots
Replies: 5
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drr314 » Wed May 30, 2012 2:21 pm
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I just started Copaxone 10 days ago. The shots are just ok. But, when i did my thighs, 2-3 days later, i get a big red mark, it is warm and a bit...
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I've been on Copaxone for about 3 months and have issues when I inject my thighs as well. I am heavier and had the needle going too deep and was...
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Last post by vcpete38
Sun Jun 17, 2012 7:43 pm
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Copaxone slapped by FDA
Replies: 5
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HarryZ » Wed Mar 21, 2012 6:00 pm
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Here is the link to a stern, long warning letter from the FDA to Teva, the makers of Copaxone. Draw your own conclusions.
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This article really caught my eye when it first came out. When I received my diagnosis I didn't know what to do; Copaxone was my first choice because...
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Last post by heyray
Sat Jun 02, 2012 7:32 am
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First Copaxone Injection!
Replies: 5
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Stabilo » Thu Oct 07, 2010 1:34 pm
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Odd I know that I am overcome with happiness that my first injection took place today! I hope I am on the road to a much more productive life and can...
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I just took my second injection and so far it isn't too much fun. I'm not sure I'm going to last having to do this daily. I was on avonex with the...
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Last post by shaight
Thu May 10, 2012 4:55 pm
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Copaxone Side Effects
Replies: 4
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prauly » Mon Apr 30, 2012 4:29 am
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I have been taking Copaxone injections since my diagnosis, just a little under 2 years ago. The first year seemed to go fine. About a year ago, I...
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Hair loss has been a topic on the Avonex forum:
And on the Rebif forum:
A search on the subject of hair loss will return many pages of...
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Last post by lyndacarol
Mon Apr 30, 2012 4:27 pm
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Copaxone injections after 9 months
Replies: 4
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ptbagger » Sun Mar 18, 2012 4:22 am
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been using Copaxone 9 months. getting an MRI done next week. Has there been significant marked differences in an MRI after 9 months. I had 20+lesions...
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Glad to hear there is no new inflammation etc.
I have quite a few lesions in my frontal lobes too....Do they effect you cognitively?
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Last post by LR1234
Mon Apr 30, 2012 8:47 am
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Last post by MSUK
Thu Apr 26, 2012 10:32 pm
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Last post by MSUK
Thu Apr 26, 2012 1:34 am
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Teva sues Synthon over generic Multiple Sclerosis drug
Replies: 1
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MSUK » Wed Apr 04, 2012 11:03 pm
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Teva Pharmaceutical Industries Ltd. (TEVA) sued Synthon BV for infringing seven patents in planning to sell a generic version of the multiple...
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Is this the same lawsuit from last year? A trial began in September or October last year and then it just stopped for some unknown reason. It was a...
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Last post by its2much
Fri Apr 06, 2012 5:38 am
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Traveling with coaxone?
Replies: 12
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shucks » Sat Jan 28, 2012 7:56 pm
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I am flying to chicago to meet with dr burt about his trial on Monday, and since I take coaxone! I am wondering about taking it in a carry on bag on...
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I've traveled extensively throughout not only the US, but also Europe, Asia, and the Middle East without issues. Several times an officer has looked...
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Last post by DizzyDean
Tue Mar 13, 2012 7:10 pm
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MS, copaxone, and weight gain
Replies: 1
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Chrissygizzy » Thu Feb 23, 2012 10:51 am
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Hi, I am new to this site so please bear with me. I was reading about Copaxone and weight. I also saw posts elsewhere on avonex and weight gain. I...
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Chrissy – welcome to ThisIsMS. I am alone in my fixation on insulin. This is my guess on your situation: Insulin is necessary in order to put on...
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Last post by lyndacarol
Thu Feb 23, 2012 5:47 pm
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Going to try Copaxone
Replies: 6
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CVfactor » Wed Feb 08, 2012 3:32 pm
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I have been on really high dose Vitamin D and just had a bad bout of double vision and prior to that Lhermites sign.
I was on taking 40,000IU/day...
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I have my Vitamin D checked often and the highest it ever was is 260nmol/L which is just over what is considered the upper limit of the safe range....
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Last post by CVfactor
Thu Feb 09, 2012 7:03 pm
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Copaxone and Monthly Cycle?
Replies: 10
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TracyK » Fri Nov 05, 2010 1:18 pm
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Hello all,
This is more a question to the women of the group... so I appologize to the men.
I have been diagnosed and on Copaxone for 6 months now....
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This is kind of along the same subject but not directly. Have any of you found that exacerbations follow the same kind of timeline as your cycle?
I...
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Last post by Sarahebeth
Thu Feb 02, 2012 11:44 am
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Horrible pain as soon as medication started going in
Replies: 6
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Llaczkowski » Sun Jan 29, 2012 5:11 pm
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I have been on copaxone now almost 4 months and had the usual stinging afterwards bruises and welts but the other night I got the auto injector ready...
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Hey, I'm new to Copaxone (and new to MS, for that matter) and have been on Copaxone about as long as you. I find that my stomach hurts the worst at...
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Last post by Sarahebeth
Thu Feb 02, 2012 11:39 am
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Copaxone and the Common Cold
Replies: 4
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SpringsJessica » Thu Jan 12, 2012 3:01 pm
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Has anyone had their ISRs worsen when a cold was coming on?
I had foot surgery on 12.9.11, followed by a cold that lasted 3 weeks. In all 6 weeks of...
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LR1234: Actually, my neurologist and Shared Solutions didn't think I should go off the Copaxone for my surgery. It turned out I didn't start Copaxone...
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Last post by MarkLavelle
Sun Jan 15, 2012 11:04 pm
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copaxone and medicare
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reneelucia » Thu Jan 12, 2012 10:20 am
Does anyone know why shared solutions will not give assistance to people on medicare or medicaid? Is it a law?
My copay part d medicare is 1300.00 a...
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Last post by reneelucia
Thu Jan 12, 2012 10:20 am
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Copaxone Injection Sites
Replies: 3
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RSPRADLIN » Mon Jan 02, 2012 9:27 am
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My doctor has prescribed Copaxone, but I am reluctant to give it a try. I read that the injection sites often are left with pits and/or knots in the...
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I've been using copaxone for about a year and a half. i started to notice changes to my arms (indentations) and didn't like the way my legs and...
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Last post by carlysidra1
Thu Jan 05, 2012 9:55 pm
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Last post by MSUK
Tue Jan 03, 2012 11:27 pm
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How long does it take for Copaxone to become effective?
Replies: 6
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runforMS » Sun Dec 11, 2011 7:38 pm
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I was wondering if anyone new knew long it takes for Copaxone to reach a clinical level in your body and begin to slow the progression of MS? I went...
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Wonderful, I had the same reaction to Rebif. I was in constant pain and incredibly stiff, as well as felt depressed and did not want to get out of...
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Last post by runforMS
Wed Dec 14, 2011 6:57 pm
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Copaxone Reaction
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LR1234 » Tue Dec 13, 2011 10:17 am
Just wanted to quickly document my first bad reaction to copaxone after being on it 5 months.
I injected it as usual (although this time I did bleed...
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Last post by LR1234
Tue Dec 13, 2011 10:17 am
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sore injection sites?
Replies: 2
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shucks » Thu Jul 14, 2011 5:11 pm
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I am in my 3rd week of copaxone, and the first week and a half or so I had absolutely no problems. within the last week, every injection site hurts...
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I switched to manual injection and it seems to have helped a lot. I still get the issues, but they are about half of what they were.
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Last post by shucks
Mon Dec 12, 2011 7:04 am
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Missed an injection day
Replies: 4
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dzjepp » Sun Oct 30, 2011 1:29 pm
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Hello,
My name is Peter, I am 29 years old. I have been diagnosed with MS less than 2 months ago. My first and only relapse so far has been a case...
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I talked to a Dr. after I missed a dose who told me that it was ok to take the missed dose as long as there were 12 hrs in between the missed dose...
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Last post by shucks
Mon Dec 12, 2011 7:02 am
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Last post by MSUK
Wed Nov 30, 2011 12:37 am
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Coming off Copaxone
Replies: 16
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Talltree11 » Fri Jan 14, 2011 2:20 am
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Has any one come off copaxone because of recent studies regarding its effectiveness? :?
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just1yogi,
I've been on Rebif (Interferon beta 1a) for almost 2 years now. I switched in March of 2010 and it's working well for me. My neuro at the...
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Last post by Froggie
Mon Nov 28, 2011 8:41 pm
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Weight Gain
Replies: 4
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Ravenmccy » Fri Nov 18, 2011 3:24 pm
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I was diagnosed with MS in February of this year. Since then I have started copaxone in early March. By June put almost 5-6 pounds. and now I am up a...
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Ravenmccy – if you do request an insulin test, you may be interested in reading Dr. Mercola's opinion of results; he thinks 3 UU/ML or lower is...
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Last post by lyndacarol
Sun Nov 20, 2011 11:01 am
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Last post by RuSmolikova
Sun Oct 30, 2011 10:13 am
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Last post by MSUK
Thu Oct 20, 2011 2:22 am
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Last post by MSUK
Wed Oct 19, 2011 11:30 pm
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Significant reduced loss of brain volume in MS patients
Replies: 1
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MSUK » Wed Oct 12, 2011 4:12 am
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Significant reduced loss of brain volume in MS patients treated with Copaxone
Results from a five-year study of treatment-naïve patients with...
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Good news. There's gotta be some somewhere.
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Last post by shucks
Sun Oct 16, 2011 1:48 pm
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Teva’s turn to defend brand-name drug patents
Replies: 1
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MSUK » Mon Jul 25, 2011 6:05 am
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Tables are Turned: Teva Pharmaceutical Industries mostly makes generic drugs, but now finds itself acting like Big Pharma — defending the patent for...
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What's happening with this lawsuit?
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Last post by its2much
Sat Oct 08, 2011 5:14 pm
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The dreaded PIR!!!
Replies: 8
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Stabilo » Sat Jan 01, 2011 7:18 am
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That's right it hit me....the dreaded post injection reaction......you know the one where you can't breathe and you start sweating and immediately...
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from my understanding, you only get the Severe reaction if you inject into a vein. As the copaxone is meant to be injected subcutaneously, I would...
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Last post by Stabilo
Mon Oct 03, 2011 10:18 am
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Autoject failure
Replies: 4
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msgator » Mon Mar 29, 2010 5:30 pm
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just thought I would give copaxone and autoject users a heads up.
Saturday night I did all the prep for a shot into my right hip. I placed the...
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I had problems with the autoject 5 years ago, slow injection, broken lip on the syringe. They sent me a new autoject and it has worked flawlessly...
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Last post by just1yogi
Mon Oct 03, 2011 7:56 am
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Soooo much pain!
Replies: 10
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greenandchic » Mon Dec 13, 2010 10:32 pm
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Am I alone in this? I took my first injection on Friday and I thought I was going to die from the pain - stinging. The stinging is like being stung...
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I was on Copaxone for nine months and always got terrible hives at the injection site. I was using cortisone daily to help with the intense itching,...
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Last post by Froggie
Mon Sep 26, 2011 9:22 am
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injecting without auto inject?
Replies: 6
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shucks » Mon Jul 25, 2011 1:55 pm
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I spent the last month learning and getting comfortable doing the injections with copaxone. This week I switched from auto injector to the manual....
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Shucks, I inject manually in the stomach and thighs. It only needs to get under the skin so it can be done at any angle 10-45 degrees. I use the auto...
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Last post by Bear2
Sat Sep 24, 2011 1:30 pm
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copaxone injections 3 x/week?
Replies: 3
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birdistheword » Sun Sep 19, 2010 10:36 am
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Hello everyone! I'm wondering if anyone else has heard that using copaxone 3 times per week is just as effective as injecting every day. I heard...
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My neuro recommended every other day when I saw him last year as well. But since I've been doing well on it for the last five years taking it every...
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Last post by connieb
Mon Sep 19, 2011 4:34 pm
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How long does Copaxone take to work?
Replies: 8
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Ocoee » Sun Jan 21, 2007 7:47 pm
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My neuro, who originally diagnosed me PPMS (Dec 2005), now thinks I may be having an relapse... So, I've just done a round of coticosteroids and have...
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I'd definitely choose Copaxone over betaseron. You have to look at the side effects compared to how quickly it starts working. I was so sick from the...
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Last post by heartsandskulls
Wed Sep 14, 2011 5:22 am
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Interferon to Copaxone?
Replies: 2
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Sharona » Tue Jul 12, 2011 12:06 pm
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After 8 years of being on Avonex, my system can no longer tolerate and my neuro prescribe Copaxone last week. I was diagnosed in 2001 with R/R and I...
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How you doing on copaxone Bender???
I am on day 20....not having a problem injecting but just wondering whether its actually doing anything (I know...
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Last post by LR1234
Tue Jul 12, 2011 11:38 pm
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Why did you choose Copaxone?
Replies: 5
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shaight » Wed May 04, 2011 8:16 am
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i posted a similar question elsewhere with no results. therefore, i am going to post this same question in the specific drug rooms.
was it your Dr's...
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My husband has been on copaxone 4 years. Doing well, no progression, no new disabilities or lesions. Also on Swank diet, lots of supplements, vitamin...
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Last post by cheerleader
Tue Jun 28, 2011 10:50 am
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Oral MS drug Teriflunomide may boost Glatiramer efficacy
Replies: 2
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MSUK » Tue Jun 07, 2011 2:25 am
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Adding the investigational, oral drug teriflunomide to glatiramer acetate (GA, Copaxone) in patients with relapsing multiple sclerosis substantially...
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anyone know if you could just take a regimen of Leflunomide? Leflunomide is pretty cheap. I found this interesting in the wikipedia for Leflunomide...
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Last post by joeymia
Mon Jun 20, 2011 9:49 am
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Enrollment completed in Phase III Copaxone MS trial
Replies: 1
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MSUK » Thu Jun 02, 2011 7:15 am
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Teva Pharmaceutical Industries Ltd. today announced completion of patient enrollment for the GALA (Glatiramer Acetate Low-frequency Administration)...
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Ugh, Mark Freedman.
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Last post by cathyb
Sat Jun 11, 2011 6:30 pm
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Copaxone Availability
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Abacus » Tue Jun 07, 2011 7:13 am
Hi there,
I'm new to this forum and hope someone can help me with an unusual question... :? I am a German postdoc and wondering whether to apply to...
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Last post by Abacus
Tue Jun 07, 2011 7:13 am
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What is Copaxone, really?
Replies: 1
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Johnnymac » Mon May 23, 2011 2:37 pm
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When my wife first started taking copaxone in 2006 it was described to us as a 'protective coating' the mimics myellin and protects the damaged...
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I'm not sure why someone would describe Copaxone as a protective coating. As you probably already know, Copaxone is a synthetic polymer of 4 amino...
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Last post by patientx
Mon May 23, 2011 6:37 pm
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CCSVI and Capaxone
Replies: 5
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PatGF » Tue Feb 15, 2011 12:00 pm
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I've seen many posts about people wanting to discontinue Capaxone after CCSVI. My response is that it is too soon to know. I called TEVA and talked...
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Emma now 4 months post CCSVI procedure and two months off Copaxone. So far no relapses.
Probably more to do with a succeful CCSVI procedure than a...
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Last post by EJC
Mon Apr 25, 2011 5:31 am
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Copaxone Users. Need some info fast. Thanks
Replies: 6
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T19 » Mon Apr 18, 2011 1:36 pm
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Hello
I was on Copaxone before being placed on Tysabri. I recently tested positive for the JC Virus so they have taken me off Tysabri and placed me...
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P,
Thanks for writing me
I did called Shared Solutions and nothing has changed with them. They seem to rattle the same mumbo jumbo they always do and...
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Last post by patientx
Fri Apr 22, 2011 5:55 am
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Last post by IAAresearch
Tue Apr 19, 2011 10:29 am
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My 3rd reaction
Replies: 6
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n_laplaca » Tue Jul 06, 2010 5:37 pm
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Just had my 3rd reaction. The one where you feel like your having a heart attack. Of the 3 this was by far the most intense. I called shared...
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I should say, poster(s). :)
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Last post by Gale
Fri Apr 15, 2011 3:11 pm
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Copaxone and Allergy shots ... anyone have an experience?
Replies: 1
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Susanne285 » Fri Nov 19, 2010 6:10 pm
First post
Copaxone is new to me
- I started on October 22, 2010
Allergy shots are not!
- Therapy plan = weekly for six months + monthly for 30 months
- I...
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Not sure if your question is still relevant, but just noticed it and thought I'd reply.
I've been getting allergy injections for about 40 years....
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Last post by ScutFarkus
Sat Apr 09, 2011 1:35 pm
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Copaxone and Weight loss
Replies: 4
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greenmtns » Tue Mar 29, 2011 8:24 pm
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Since taking it from Aug 10 until present I have lost 20 lbs. Anyone else have this problem?
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Well off the Copaxone tonight. For the next few days I will be off it. My face is now looking like skin over a skeleton. I need to figure out this...
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- 3614 Views
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Last post by greenmtns
Sat Apr 02, 2011 8:25 pm
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