HelenMSRC wrote:Andrew,
You now have me completely confused with this comment
Was it a coincidence that the now curent manager featured on the youtube video from the MSRC called me out of the blue to tell me that he was not scared of me? then put the phone down leaving me bewildered!
Current manager - the person in that Youtube video is Lawrence Wood the PREVIOUS chief executive who finished at the charity in May 2007. Again as I have stated in my post previously (on a separate CCSVI thread) I cannot comment on what my predecessor may or may not have done. I can also not condone making such a statement in a public forum
I can however state that I am sorry if ANYONE at our charity has caused you injury or upset - this is not something we would tolerate or expect from any of our current team here at MSRC.
Helen Yates
Chief Executive MSRC
Dear Helen
Obviously I had not realised that management had changed again at the MSRC and therefore none of my comments relate to you personally.
3 directors including yourself have been in place while I have been fighting to have the “Controlled Study” conducted for people with MS. The same study that John and Jean Simkin’s assured myself my family and two colleagues would be simple to set up and that the MSRC wanted to be involved form the onset and offered their support and guidance.
A tremendous amount of effort money and time was invested in providing the pilot study results for the “Raised Bed Survey” A protocol was put together, after all we are talking about simply tilting a bed and monitoring 50 people with ms sleeping
inclined and 50 people sleeping flat and as John suggested a double cross over would provide concrete evidence one way or another whether
Inclined Therapy is effective for people with ms or indeed not.
A controlled study or rather the lack of a controlled study has been the main defence of the medical profession and indeed charities like yours against this simple paradigm.
Therefore the likelihood of the study going ahead was always going to be controversial.
I put it to you that as the director of the Multiple Sclerosis Resource Centre you should seriously re-consider the promises that were broken by the MSRC all those years ago and pick up the challenge to conduct this vital study, not for me but for all of those people with multiple sclerosis who could be making use of this research to improve their lives.
Publication of the Raised Bed Survey on the MSRC website in it’s entirety would be a good start.
Ask yourself would anyone continue to work on a theory for 16 years in the face of adversity and contempt prior to investigation unless they had observed sufficient evidence to support it?
On this Erika’s
Inclined Therapy thread right here where you have posted. The double crossover experiment is unfolding for everyone to observe. Admittedly reverting back to flat bedrest should take place following 6 months of using an
inclined bed to sleep on but even in this short space of time we can see from Erika’s posts that there is clearly an effect.
The question is are you willing to work with me and see this through to a rightful conclusion by helping to set up a controlled study?
Andrew K Fletcher
I will sleep on 
