
Hi from Jeff, re. my stent treatment at Stanford
From the Netherlands
Hello Jeff and Joan,
I want to say hi. There are hundreds of people from the Netherlands which are following this thread, and because we all share the same moon, we all see Jeff as our Armstrong too
Hope all goes well, good luck, and please keep us informed, we are all so exited and wishes you two all the best.
Thanks!!!
-Alphons.
I want to say hi. There are hundreds of people from the Netherlands which are following this thread, and because we all share the same moon, we all see Jeff as our Armstrong too

Thanks!!!
-Alphons.
- Arcee
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Jeff and Joan, so happy that you are back at home. Thank you again for all you do. This one got to me. Maybe you could stick on that holiday card with the picture of Jeff's corkscrewed collaterals
?

There are hundreds of people from the Netherlands which are following this thread, and because we all share the same moon, we all see Jeff as our Armstrong too
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri
- Ruthless67
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This whole forum is awesome. I really feel the sharing, loving and compassion coming through. Alphons comments choked me up and that has happened to me over and over again as I read about our two steps forward, three back. Thanks to Jeff & Joan and thanks to all the rest of you also for being there for each other, no matter when the sun or moon are up on your side of the globe.
Hugs,
Lora
Hugs,
Lora
- cheerleader
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THanks, everyone! Home never looked so good.
Alphons...
Wonderful page about CCSVI in Dutch. Good work! Thanks for your comment about Jeff...that was poetic and very profound, and in English
Jeff and I love the Netherlands and he's been there many times to play and record with the Metropole Orchestra in Hilversum. The language there is "jazz" and everyone understands that!
cheer
Alphons...
Wonderful page about CCSVI in Dutch. Good work! Thanks for your comment about Jeff...that was poetic and very profound, and in English

Jeff and I love the Netherlands and he's been there many times to play and record with the Metropole Orchestra in Hilversum. The language there is "jazz" and everyone understands that!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- ozarkcanoer
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- cheerleader
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- Location: southern California
Just getting some side dishes ready for the feast at my sister in law's tomorrow. Wanted to update. There is still a faint whoosh (he can hear only in complete silence) and really mild headache, but Jeff says his energy and spirits are great. He didn't have a left jugular before, and now he does, so stuff has changed in his circulatory system. And Dr. Dake says his stents look perfect...he just has a weird left jug, but it's functioning now. He's outside chopping firewood with Henry now.
I asked him (when he was getting prepped to go for his 3rd endovascular procedure earlier this week) whether he regretted doing this procedure...and he gave me a big no. He is so happy to be energized and alive again, and has no regrets.
We've been answering hundreds of e-mails from around the world this week, mostly from Canada...and it's been a huge honor. People are sharing their lives, hopes, trials and dealings with MS. We feel so fortunate to be able to listen, offer some encouragement and maybe direction. We don't know if this is "the" answer to MS, but we do know there is a connection. We want to help get the fundraising going for more research, and are committed to doing that we when get back in southern California.
Happy Thanksgiving, everyone. We appreciate you all so much-
Joan
I asked him (when he was getting prepped to go for his 3rd endovascular procedure earlier this week) whether he regretted doing this procedure...and he gave me a big no. He is so happy to be energized and alive again, and has no regrets.
We've been answering hundreds of e-mails from around the world this week, mostly from Canada...and it's been a huge honor. People are sharing their lives, hopes, trials and dealings with MS. We feel so fortunate to be able to listen, offer some encouragement and maybe direction. We don't know if this is "the" answer to MS, but we do know there is a connection. We want to help get the fundraising going for more research, and are committed to doing that we when get back in southern California.
Happy Thanksgiving, everyone. We appreciate you all so much-
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- cheerleader
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Oh yeah, and check out Jeff's beautiful score to the new Hallmark Hall of Fame movie on this Sunday, Nov. 29, 9pm EST on CBS-
"A Dog Named Christmas"
http://www.variety.com/review/VE1117941 ... id=32&cs=1
"A Dog Named Christmas"
http://www.variety.com/review/VE1117941 ... id=32&cs=1
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Thank you so much for asking him this and then posting. This exactly what I was wondering after reading his experience so far. It seems as though even if there are some side effects to this procedure, they a far better than the MS.I asked him (when he was getting prepped to go for his 3rd endovascular procedure earlier this week) whether he regretted doing this procedure...and he gave me a big no. He is so happy to be energized and alive again, and has no regrets.
Very encouraging, thanks for being so open to all of us. Thanks to Jeff for taking the first step and going for this, you have opened a new door for many (myself included) to walk through and get a new outlook on life.
Best,
Aperture
- Ruthless67
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I want to give my Thanksgiving Speech
Thank you Jeff! I am so glad that you are willing to share you very personal journey with the world. What a wonderful early X-Mas gift you have given us. As we peek over your shoulder, and the other 50 or so Liberated folks, we watch your post-op experiences and appreciate knowing it all, straight up, the good and the bad. We thank you again for your pioneering spirit and commitment to helping in this ongoing research.
Thank you Joan for all your hard work and research and bless you for sharing it with all of us. You have done so much for so many; this must be close to overwhelming when it comes to you having personal time, cause I’m thinking this is becoming a fulltime job for you!
Hugs,
Lora
Thank you Joan for all your hard work and research and bless you for sharing it with all of us. You have done so much for so many; this must be close to overwhelming when it comes to you having personal time, cause I’m thinking this is becoming a fulltime job for you!
Hugs,
Lora