CCSVI treatment available in the U.S.!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Guider
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Post by Guider »

Congratulations FlashHack.

And I agree with WeWillBeatMS - that's pretty cool.

Very happy for you. :D



Guider
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tazbo
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Post by tazbo »

sorry
Last edited by tazbo on Wed Jun 09, 2010 1:46 pm, edited 1 time in total.
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Cece
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Post by Cece »

Seriously?! No info here. 8O

I just checked that thread on Facebook, someone referred to it being a Dr. Lynn who has been shut down.

Someone else says they received a call from Albany NY this morning taking them one step closer...
Last edited by Cece on Wed Jun 09, 2010 3:00 pm, edited 1 time in total.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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tazbo
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Post by tazbo »

same
Last edited by tazbo on Wed Jun 09, 2010 1:47 pm, edited 1 time in total.
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FlashHack
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Post by FlashHack »

...
Last edited by FlashHack on Wed Jun 09, 2010 3:18 pm, edited 1 time in total.
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kc
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Post by kc »

OMG IS THIS TRUE? WHERE DOES IT SAY THIS ON FACEBOOK?
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Cece
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Post by Cece »

kc, it is NOT TRUE for Dr. Siskin, it is a completely different doctor.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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kc
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Post by kc »

minuoiupiihumph
Last edited by kc on Wed Jun 09, 2010 2:55 pm, edited 1 time in total.
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tazbo
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Post by tazbo »

. :?
Last edited by tazbo on Thu Jun 10, 2010 6:35 pm, edited 1 time in total.
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kc
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Post by kc »

ah yea there is extra posting advice needed. I went on facebook and could not even find what u r talking about. Could u post a link?
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tazbo
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Post by tazbo »

i sent a pm
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pklittle
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Post by pklittle »

Please delete your post tazbo. It is just causing fear, for NO reason.
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MS_mama
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Post by MS_mama »

well I got my call today, and am booked for August 12...

... although I'm having cold feet now! :roll: I'm doing so well MS-wise that I wonder if I should just wait for more research to pan out... I worry about the possibility of worsening as some patients have had happen to them as well as the possibility of a re-stenosis occurring and causing more severe stenosis than was originally present. Decisions, decisions...
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
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happy_canuck
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Post by happy_canuck »

Hi everyone,

I got an email from the clinic giving me the drugs I may be given. I asked for this so I can give it to my GP and pharmacist ahead of time (I have allergies).

For those going, the message back from the doctor said:
"We will give valium (likely 10mg, po)
This is a mild sedative just to take the "edge" off.
Sometimes we give a dose of lortab 5/500mg for mild discomfort as well."

I will be there July 6, for treatment July 7th. Anyone else in around that time?

~Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
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newlywed4ever
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Post by newlywed4ever »

My daughter and I got our phone calls this a.m. and we have appts Aug 5th!!!I'm SO EXCITED! Anyone else going at the same time?
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