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Wow...I have no idea how, but I have been missing posts on this thread. It's nice to see you Robbie and Viper. Love your dog Robbie. Robbie...I have to say that I totally agree with the Physio thing. I have seen ppl who have had stokes and with lots of physio, they end up doing a lot more that the Dr's say they will. Physio is awasome. I see great benefits from it in the hospital. That's why I made my fiance start taking it in school . Lucky me!!! He loves it too because he can see great results and loves helping ppl.
Hope things get better for you soon.
NN
The last while i've been having leg spsams alot. when i get out of bed or when i stand up from sitting. i have had spsams in my legs for years but now they seem to be getting much worse, the pain when your legs lock out is unbeliveble. i have taken baclofen before but stopped because of the weakness i felt, i think i will try them again. does anyone else take baclofen and have some relief from the spsams. thx rob
I hate to ramble on and on again about the benefits of lipitor for me but I had those spasms too and they stopped when I started to take the lipitor. I also do not try to get up too quickly, rapid movements in the morning would trigger those. I have never used Baclofen or such. I have seen too many side effects of those on people. Take care, Carolew
hi carolew, what is lipitor and why do u take it.i not much one for taking drugs but finding somthing that helps sure would be great, last time i was at my neuro she pretty much said that baclofen was it, but she knows that i already have tried it and stopped.i do try and get up slow but it seems like i have to go through my legs spasaming out before i can move forward, same as getting out of bed, man does it hurt. thx rob
i try so hard not to be negative on this site because it seems like everything is possitive and there is so much hope in research but at times like this i have a hard time thinking it will be ok. i am 41 years old and my life has been torn out from under me. what other desease waits until you have everything just right and then says no u can't have any thing that is normal in life it says here u go just deal with it. it dosen't kill u it just deals up a slow torture for the rest of your life. how does it decide who gets it bad and who gets it so u don't really know u have it. is anyone pissed off that u can't do anything u use to do, i can still do some things like type on this frigging computer but things i really enjoy are no more. WHAT A F-----G DISEASE. excuse my langyage but i coulden't think of a better word....
Dear robbie, I am so sorry to hear you feeling so frustrated. I am like you. Waiting for THE drug that will halt this disease in it's tracts.
Lipitor is a statin. We have a thread going on here on this web site, a thread just for statins.
It is a cholesterol lowering agent. They observed that it also has an anti-inflammatory effect and has the potential to really decrease the demyelinating process in the brain, in those that have MS. They have tried it on mice only so far and are doing studies on humans as we speak. (write)
I, and many others, as you will see, started the lipitor before the final result because it is an easy drug to take and any one with a rise in their cholesterol
should take something like a statin.
See if your GP will agree. It has very little side effects and your gp will check you for them. The thread on statin will tell you lots more.
Good luck..... Carolew
hi robbie it stole my skiing for a while and it might have stolen snowboarding from me for good, i don't know. also it stole my music. technically i can still kind of play the guitar but it doesn't feel good cause of they way my hands are and i'm definitely not as accurate. also now i'm finding that i always have spit going down my windpipe and i worry that maybe i won't be able to sing! or breathe for that matter. so ya it's garbage but we just gotta keep lookin for ways to fight. my battle is to keep being dedicated with these effing pills, and try to avoid things that suck out my nutrients.
It gets harder and harder to find the fun in life, ms seems to keep taking and taking. You can say ms lives with me but truthfully i live with ms, there was a point early on that it was the other way around but now that ms has really gotten a hold of me there is no fun in life. You just spend all of your energy trying to do things that use to be so easy. I had some freinds over last night and it's hard to be the one that has to just sit and watch and pretend like your doing fine and dealing good but inside your thinking this is not how it's suppose to be. You could get in a car wreck and be paralyzed in a second or you could get cancer and die in 6 months. It would be so nice to have somthing that you have a chance of beating but ms just gives it to ya with no defence. There are so many things you try, and in the early stages of ms you might think they are helping but it's just the ms talking to you. It may never come on strong but if it does it's to late to enjoy so if your feeling good now just grab life and run. I'm sure there are people who see the good in life with ms but i just don't see it so who knows how long this will go on, i remember when Ian posted a thread When Is Enough Enough (so true).
Hi Robbie
I read your post this morning and have been thinking about what to write you. The truth is that I can not come up with anything that I would be proud of to say to you. I just want you to know that I read your post and that there are days that I feel like giving up as well. You are right, it is hard at times to feel positive. I know you have heard this before but I really do feel that there will be better drugs coming out soon. Please hang in there and don't give up. You mean more to people around you that just your physical being.
NN
I just said to my wife what do i have to look forward to. Winters coming and it will be even harder. I love my wife and my dog but it goes beyond that it's a matter of me being able to be happy and be pleasent to be around and i am having more and more trouble with that. I could get a wheelchair and roll around the malls or go to the zoo but i have chosen to just stay home and take myself out of the healthy world. I am just better here and not trying to be the happy handicapped person. My wife had a hard time giving me an answer, it's funny because unless your happy with what is going on in you and around you it's hard to see the other stuff that would normally make you so proud. You put on a front and people think your fine with all that is happenig to you so most people think it's no big deal he's ok but really your thinking how do i do it. For people that can watch their lives get taken from them and see the possitive in it is great. One thing that i laugh at now is people that have their health and piss away life with no thought about it.Like the people that run to get their welfare cheques to buy beer with legs that i only wish i had or the young people with their whole healthy lives ahead of them and they have no ambition, do they not realize that it's just a one shot deal and it can be cut short by so many things. It's a healthy world , the saying put out to pasture comes to mind and i guess thats my choice but i'm not sure i want to exist any other way.
I just said to my wife what do i have to look forward to. Winters coming and it will be even harder. I love my wife and my dog but it goes beyond that it's a matter of me being able to be happy and be pleasent to be around and i am having more and more trouble with that. I could get a wheelchair and roll around the malls or go to the zoo but i have chosen to just stay home and take myself out of the healthy world. I am just better here and not trying to be the happy handicapped person. My wife had a hard time giving me an answer, it's funny because unless your happy with what is going on in you and around you it's hard to see the other stuff that would normally make you so proud. You put on a front and people think your fine with all that is happenig to you so most people think it's no big deal he's ok but really your thinking how do i do it. For people that can watch their lives get taken from them and see the possitive in it is great. One thing that i laugh at now is people that have their health and piss away life with no thought about it.Like the people that run to get their welfare cheques to buy beer with legs that i only wish i had or the young people with their whole healthy lives ahead of them and they have no ambition, do they not realize that it's just a one shot deal and it can be cut short by so many things. It's a healthy world , the saying put out to pasture comes to mind and i guess thats my choice but i'm not sure i want to exist any other way.
It's nice to see you Robbie and Viper. Love your dog Robbie. Robbie...I have to say that I totally agree with the Physio thing. I have seen ppl who have had stokes and with lots of physio, they end up doing a lot more that the Dr's say they will. Physio is awasome. I see great benefits from it in the hospital. That's why I made my fiance start taking it in school 
. Lucky me!!! He loves it too because he can see great results and loves helping ppl.
