Tysabri Question
Well Bob,
Thank you again for taking the time give me that lengthy explanation on the trial treatment.
Its interesting to hear these things and brings hope that there is a fair bit being done about trying to better the lives of MS sufferers!
Its so easy to cut yourself off from reading too much because I found that it depressed me the more I read. As I said I was diognosed 3 yrs ago & still find it hard to accept the uncertainty of the disease. I guess the Depression plays a huge part on how I deal with @ certain times. When I am feeling low - it all seems so much worse, but thats a logical thing I guess.
My Neurologist said in his 20 yrs working in this area, he hasnt seen anyone take this as badly as I have & yet (touch wood) I have it mildly
My last MRI had no changes from my last one! but as you would know "what tomorrow brings is a different matter". (negative thoughts I know)
I am currently back on anti depressents & seeing a doc every week to try and get my life in some kind of order. Still working 4 days a week but the fatigue and the shaking in my body is unbearabloe @ times especially as the day progresses. I dont really like writing this becuase I am sure there are much worse of people than me which makes me feel I have some serious readjusting to do with my thoughts. Its about learning to put the unknown into perspective - if there is such a thing!
Take care to you & your wife.
Murph
Thank you again for taking the time give me that lengthy explanation on the trial treatment.
Its interesting to hear these things and brings hope that there is a fair bit being done about trying to better the lives of MS sufferers!
Its so easy to cut yourself off from reading too much because I found that it depressed me the more I read. As I said I was diognosed 3 yrs ago & still find it hard to accept the uncertainty of the disease. I guess the Depression plays a huge part on how I deal with @ certain times. When I am feeling low - it all seems so much worse, but thats a logical thing I guess.
My Neurologist said in his 20 yrs working in this area, he hasnt seen anyone take this as badly as I have & yet (touch wood) I have it mildly
My last MRI had no changes from my last one! but as you would know "what tomorrow brings is a different matter". (negative thoughts I know)
I am currently back on anti depressents & seeing a doc every week to try and get my life in some kind of order. Still working 4 days a week but the fatigue and the shaking in my body is unbearabloe @ times especially as the day progresses. I dont really like writing this becuase I am sure there are much worse of people than me which makes me feel I have some serious readjusting to do with my thoughts. Its about learning to put the unknown into perspective - if there is such a thing!
Take care to you & your wife.
Murph
Thank you so much for your words of wisdom! What you say is so true - logically I know, but emotionally is another matter.
On a dark day I just see doom & gloom ahead. I was just thinking a moment ago I would just like to feel GOOD again! But I know part of it is the MS & part of it is the depression, that's why my only choice @ the moment is to deal with the mental side of things to see if it helps the other.
I am going to call you Wise Bob from now on.
Bye for now
On a dark day I just see doom & gloom ahead. I was just thinking a moment ago I would just like to feel GOOD again! But I know part of it is the MS & part of it is the depression, that's why my only choice @ the moment is to deal with the mental side of things to see if it helps the other.
I am going to call you Wise Bob from now on.
Bye for now
-
msladyinca
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O.M.Goodness Bob, LOL, LOL, LOL!
That was a good one! LOL
Lauren
That was a good one! LOL
Lauren
Feel free to visit my Blog and leave me a comment, I'd love to hear from you! 
http://lauren-livingwithms-aolcomlglbgl ... gspot.com/
Co-owner of a MS Support Group
http://lauren-livingwithms-aolcomlglbgl ... gspot.com/
Co-owner of a MS Support Group
I totally agree with all you have said Wise Bob, I have just gone back on Anti Depressants, reluctantly, I might add! BUT I have to try some how to regain my spirit that I has been missing for about6 yrs now. Although I have tried many Anti D's - I decided a few months ago I was going to do the mind over matter stuff & bought Cd's that try & teach you how to use your brain to beat almost anything. I wont go too much further with it all but I have read heaps of inspirational books and tried many times to look for areas that will improve my moods. I am now back seeing a Dr weekly and have promised myself that until I conqure this depression I will continue to fight it. I am not expecting to get rid of the Anxiety/Dep but I need to try and keep in some sort of managable order!
I totally understand your wife explaining about the MRI becuase I find then horrible as well and I got so panicky my doc gave me something to calm me too...yes that awful noise and the whole process is not pleasent.
As for not being big on drugs - up until a few years ago, I would have to talk myself into taking a panadol if I had a headache, never liked taking anything - but NOW my god, I am on Anti dep & anxiety tablets - but thank you for saying what you did because you are right in your acceptance of the fact we with MS have to try & make the journey a bit easier., and by you saying what you did, it helps.
Take care
Bye for now
I totally understand your wife explaining about the MRI becuase I find then horrible as well and I got so panicky my doc gave me something to calm me too...yes that awful noise and the whole process is not pleasent.
As for not being big on drugs - up until a few years ago, I would have to talk myself into taking a panadol if I had a headache, never liked taking anything - but NOW my god, I am on Anti dep & anxiety tablets - but thank you for saying what you did because you are right in your acceptance of the fact we with MS have to try & make the journey a bit easier., and by you saying what you did, it helps.
Take care
Bye for now
Re: Tysabri Question
DEAR MURPH AND MEMBERS MY NAME IS SEEVA I AM ALSO FROM SYDNEY AUSTRALIA. MY M.S FRIEANDS AND ME ARE ALL SAME FEELING LIKE YOU. IN AUSTRALIA THE M.S SOCITIES ARE NOW HELFUL LIKE IN UAS OR CANADA. EACH WEEK I AM GOING TO M.S SOCITY NSW CENTER IN SYDNEY FOR EXERCISE, WE ARE ABOUT 15 MEMBERS HALF MEMBERS ARE FEMALE, ALL US LIKE TO GO EACH WEEK NOT FOR EXERCICE BUT FOR FIND MORE INFOMATIONS ABOUT NEW DRUGS. EACH ONE US TELL ABOUT OUR MEETING WITH OUR NEUROS. THE RECENT TOPIC IS ABOUT TYSABRI AND THE SIDE EFFECTS OF PML. WE CAN NOT GET ANY INFOMATION FOR THE MDICATION FROM THE CENTRE. SO EACH MEMBER HAD TO FIND SOME INFOMATION ABOUT NEW DRUGS DUE TO COME TO AUSTRALIA. I AM THE MAIN ONE FOUND MORE FROM OTHER DRS, RESEARCH CENTRES, INTERNET AND COPY THE NEWS AND GIVE TO THEM. NEXT WEEK I AM GOING TO GIVE THIS MS WEBSITE AND ASK THEM TO JOINT AS MEMBERMurph wrote::roll: Hi Everyone, this is my first time on this site & I decided to join the bunch! I was diagnosed with MS 3 yrs ago & beleive Tysabri is nearly ready to be released in Australia. My neuro wants me to go on it, but I am extremly scared about the side effects!
Apart from the main one is there anyone else who knows what other side effects there may be.
Glad I have finally found somewhere to communicate with people in the same boat!
Murph
ALSO I ATTENDING M.S SUPPORT GROUPS MEETING EACH MONTH. AGIN THE SUPPORT GROUPIS RUN BY NSW MS SOCIETY. BUT NO NEW INFOMATIONS FROM THE SOCIETY.VERY SAD NEWS FOR ALL MY MS FRIEANDS.SO GIVE ME GOOD INFOMATION I CAN GIVE TO THEM EACH WEEK.I SPEND MOST THE TIME IN COMPUTER UP TO MIDNIGHT EACH DAY TO FIND NEW INFOMATION AND GIVE TO MY FRIEANDS,
REGARDS
REGARDS :roll:
SEEVA