I'll be on 100mg of Clexane every morning for 30 days.
Back from Poland
New here But...
My MS sister Rain gave me a link to here showing me that someone with PPMS had success with this new treatment.
I too have PPMS and was hoping it was a treatment for us too. Seeing there is VERY little to be done for us!
I am so happy for you and hope you enjoy and ravish in the feedom you now have!
Lord please bring it the rest of us and hurry!
I too have PPMS and was hoping it was a treatment for us too. Seeing there is VERY little to be done for us!
I am so happy for you and hope you enjoy and ravish in the feedom you now have!
Lord please bring it the rest of us and hurry!
Firstly Xia, there is no need to worry about the procedure, I actually enjoyed it.
New dawn new improvement. My sense of smell and taste have returned.
I didn't realise they had gone but really noticed them coming back.
I have also started sweating.
Yesterday I thought maybe I had forgotten to put my deodorant on because there was body odour. This morning I woke with my head damp with perspiration and I realised why I was smelly yesterday.
I can now have hot showers so it's not a problem. I really tested that this morning by turning the temperature up to nearly scalding, it actually felt nice.
While I was washing my hair there was none of the sick giddy feeling I used to get moving my head around. I then tested that by making myself giddy on purpose, I did not feel sick though.
New dawn new improvement. My sense of smell and taste have returned.
I didn't realise they had gone but really noticed them coming back.
I have also started sweating.
Yesterday I thought maybe I had forgotten to put my deodorant on because there was body odour. This morning I woke with my head damp with perspiration and I realised why I was smelly yesterday.
I can now have hot showers so it's not a problem. I really tested that this morning by turning the temperature up to nearly scalding, it actually felt nice.
While I was washing my hair there was none of the sick giddy feeling I used to get moving my head around. I then tested that by making myself giddy on purpose, I did not feel sick though.
Fantastic News Wonky!
I have been reading your posts, I'm so happy for you. I'm hoping to go to Poland next year and your posts do much to fill me and many others with hope and confidence.
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ErikaSlovakia
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I was already scared I was the only crazy onewonky1 wrote:Firstly Xia, there is no need to worry about the procedure, I actually enjoyed it.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Wonderful Wonky
Hi Not so Wonky M,
I'm really pleased to hear that everything went well and that we need not worry. I do hope that you see some more significant improvements in the next few weeks... Keep us in the loop.
I have been in touch with Dr Simka and he asked me to wait until the 10th until he had seen another UK patient, but in view of what you say and that he must have some idea about UK patients now I might get in touch with him again sooner.
As you said to me earlier the waiting is the worst.
PS I somehow posted this as a new topic (silly me) which I have now deleted. But it all bears saying twice in any case.
I'm really pleased to hear that everything went well and that we need not worry. I do hope that you see some more significant improvements in the next few weeks... Keep us in the loop.
I have been in touch with Dr Simka and he asked me to wait until the 10th until he had seen another UK patient, but in view of what you say and that he must have some idea about UK patients now I might get in touch with him again sooner.
As you said to me earlier the waiting is the worst.
PS I somehow posted this as a new topic (silly me) which I have now deleted. But it all bears saying twice in any case.
Michele, warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
And there's more.
Improvements since liberation 26 Nov' 2009
1. My bladder no longer goes into spasm. – From day 1
2. Myclonic jerks in the evening and at night have stopped - From day 3.
3. My mind is clearer and sharper - From day 4
4. I no longer choke on food or fluid, even if I rush – From day 1
5. My voice is strong and clear - From day 4
6. Today I had my first hot shower in 13 years. Steam would normally paralyse me but there were no problems – From day 4
7. I am less fatigued –From day 4
8. I have started sweating again – From day 1, really noticeable from day 4
9. My sense of taste has returned – From day 6
10. My sense of smell has returned – From day 6
11. My pride prevents me talking about a well known male M.S. problem that has something to do with lead and pencils - Big improvement from day 1, well kinda medium.
Improvements since liberation 26 Nov' 2009
1. My bladder no longer goes into spasm. – From day 1
2. Myclonic jerks in the evening and at night have stopped - From day 3.
3. My mind is clearer and sharper - From day 4
4. I no longer choke on food or fluid, even if I rush – From day 1
5. My voice is strong and clear - From day 4
6. Today I had my first hot shower in 13 years. Steam would normally paralyse me but there were no problems – From day 4
7. I am less fatigued –From day 4
8. I have started sweating again – From day 1, really noticeable from day 4
9. My sense of taste has returned – From day 6
10. My sense of smell has returned – From day 6
11. My pride prevents me talking about a well known male M.S. problem that has something to do with lead and pencils - Big improvement from day 1, well kinda medium.
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Brainteaser
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- Location: Melbourne, Australia