drsclafani wrote:CD wrote:Hi Dr Sclafani, two questions if you don't mind please. I'm late night thinking.
1. I had the CCSVI procedure Dec 11, 2010. Because of stents I am on Warfarin. My INR is 2.7 which is good I believe, but my RBC has increased from 3.4 barely normal, to the middle of the reference range lab chart, as of last week's testing. I go again tomorrow for my next weekly test.
so sorry you had stents placed. Do you know why there were put in? I wish you the best.
I was always just one point above the normal reference range for years. Now I am higher, middle level. My question is does the Iron disposition, in the brain around lesions, now drain down to be part of the total RBC? Is this possible that iron may now be added to the total blood volume for a short time? Or does it exit via the kidneys?
no, I don't think that would be an explanation. Most plausible is simple dehydration resulting in concentration of your blood.
2. In my left jugular, I had many thick webs, and a large tissue flap. What is a flap?
this is not a term that we use as one of the findings of ccsvi. flap is often used to describe a piece of the wall of the blood vessel that gets unroofed. it can be flow limiting.especially if the flap is attached distally to flow, in which circumstances flow tends to push the flap down into the flow of blood. perhaps that is why a stent was used. I find that it is usually possible to press a flap back into the wall and avoid a stent
Thank you Dehydration sounds like the answer to my first question.
Why I had a stent put in? Well..
I had a stent put in because I had a resist narrowing of the distal portion of the LJV at the level of
C-1.
In addition, I also had severe focal stenosis at the base of the LJV, near its confluence with the left subclavian vein, which opened okay.
And a "waist"was seen also in the middle of the vein but eliminated. Looking at it again after doing the RJV an apparent intraluminal flap of tissue was seen, possibly indicative of a dissection. Webs were ballooned also and I had a higher up reflux seen too. (sigh)
Angioplasty was repeated on the LJV and a more apparent intimal flap within the lumen of the distal internal jugular vein, which appeared to be flow limiting on serial imaging. A stent was placed which demonstrated marked improvement and flow, with no visualization of the intraluminal flap of tissue.
RJV had 2 blockages and the arch of the Azygos vein was blocked and two other places lower in the Azygos.
My LJV was a mess of blockages. Plavix did nothing to help. I then had recoil and clots form within three days. US showed no flow. Two more stents were needed to hold open the first stent and break up the clots. I have flow now. 10 shots of Lovenox later, then Warfarin for ??
Sorry you asked?
CD's are unreal. With all this finally behind me, please God, I am finding improvements each day. I have MS 30 years. So I have lots of odd, old junk to clean up. I am healing every day.
I had a lot of work done on me. I am glad I had the CCSVI procedure. I just started my balance, walking and stretching exercises, but in small increments each day.
I'm getting there, one day at a time. I started my LDN again. I stopped it one week before the procedure so I could have conscious sedation and have it work.
CD
Dr. Siskin is my MD
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