Pictures

robbie · Post by **robbie** » Mon Aug 28, 2006 6:29 am

I like watching tennis on TV so I guess I’m a happy boy because the us open starts today, Does anyone else enjoy? Andre Agassie is retiring and one of his quotes was he’s tired of fighting battles that you now are only going to increase I thought that was well said, hope he plays good in his last tournament..

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Tue Aug 29, 2006 9:02 am

watched a little bit fo it...normally dont have time to watch all of it..hear he was retiring....who do you think will take his spot at at head of tennis..casue ya know no matter who ya are everyone always knew who he was...

chris

robbie · Post by **robbie** » Wed Sep 06, 2006 6:07 am

Do you think there will be a cure today,,

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Wed Sep 06, 2006 7:30 am

do think there is a cure today..no but i think they will find one for it..maybe not now but hopefully soon...boy two setnences in and have had to go back and correct the bad typing....brain not helping today with the typing..i have those times..hits the wrong keys or something like that...this can be a very frustrating thing to deal with everyday but try and think of it ona smaller level in your day..not weeks not months but for that day...if you get up and feel no pain for awhile..thats a good thing...simple things like that...try not to think of all the negitive things that are along with this right now...cause your state of mind right now is not health or safe for you...now that lyon has said the same thing..try and work on the positive stuff...for you and your wife....your are blessed to have someone who is there for you and loves you....so try and stay postive...i know its hard..but at least try...

chris

robbie · Post by **robbie** » Wed Sep 06, 2006 7:51 am

i always try chris i've been trying for 13 years but i guess i'm just not the person that can make my mind overcome my body. i don't want to be in a wheelchair for the rest of my life. you think of getting paralized in an accident and in a split second you are what you are with ms well you know..when i look in the mirror i see what is becomming of me and i need a break. if it would stop right now maby the dealing would be eaiser but when i think of a month or a year from now i just don't know. i am blessed with my wife and i always remind myself of that but i am not much good to her now, i refuse to be looked after and it's becoming more and more like that. this is not depression of a person with a chemical inbalance in there brain this is different. maby i'm just not a person that can accept this, but what other choice do i have..as for a cure thats a joke deep down you and i and everyone with ms knows it..

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Wed Sep 06, 2006 8:02 am

you know to yourself you might be no good for your wife..but think she thinks you are good for her and would have it no other way....i am sorry you are feeling this way..not sure what else to say to help you out.....but i get the frustration..i have kids and they have told me that with the way my brain is acting with the memory gaps and stuff that in a yr i might not reember things frm yrs ago to now...for me that was hard to deal with...i thougth god i might be able to tell me kids how they were when they were kids..or remember when they get married....what a horrible thing to happen...i know if i linger on the fact it is taking away my memories and stuff i will just give up....for my kids i cant.....maybe for your wife you shouldn't...just a thought..but if ya ever need to express yourself we are all here..and you can always send me a email....not sure if it helps at all but we are here for ya..

chris

robbie · Post by **robbie** » Wed Sep 06, 2006 8:28 am

I was thinking Chris and it just boils down to am I living or just existing and right now it’s the latter, when I said that I’ve been trying for13 years ,that’s not true for so many years I didn’t have to be positive about things, I was still working, driving doing things around my house ect. Now I live in a place that after all my work should be so enjoyable but I have a hard time getting out of the house. All you can say is oh well!!!

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Wed Sep 06, 2006 11:51 am

was not understanding the oh well comment very well..but of course that might just be me...you mean oh well there is nothing you can do about it?i can see why you feel that way with it...i dont understnad it completely and probablily wont unless i am in your situation..which right now i am not...but at least i can be here for you to talk to..sometimes expressing yourself about that stuff helps in small ways....right now its hard here for me cause i have all this stuff going on with me and then i also have a son who is bi polar with i have dealt with since he was 4..now 8..but in the yrs to come he is going to have a harder time with it and i am going to have to try and to help him....hopefully i can...i have fears that worry me all the time when it comes to this disease..but i just push them to the back of my mind for right now....hopefully that wont backfire on me one of these days and overload my whole brain with major fears...if that makes sense at all to you....anyways i hope that talking or typing out stuff helps a little...let me know if ya want to talk some more...

chris

robbie · Post by **robbie** » Wed Sep 06, 2006 12:13 pm

the oh well comment is the only thing i can say, thx for talking i am in a bad spot right now which we all are. I just wish it would pass but it's not going to.

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Wed Sep 06, 2006 12:59 pm

just keep your head up and you can sent me a email whenever ya need to talk..will listen.....try and stay just a little postive..if not for you then your wife....will check to see how ya are doing tommorrow...

chris

robbie · Post by **robbie** » Tue Sep 12, 2006 12:27 pm

I always thought that being in a wheelchair was giving in, it's time to give in..My legs are getting so spastic that i can't get anywhere.

robbie · Post by **robbie** » Tue Sep 12, 2006 12:44 pm

I remember hanging with my friends when we were just kids and once and a while we would be at a mall and they would always run up and down the wheelchair ramps and not use the stairs. I know this sounds stupid but I never did, I guess I thought that was mocking the handicapped in some way and now that thought has come full circle, funny eh..

Lyon · Post by **Lyon** » Tue Sep 12, 2006 1:13 pm

robbie · Post by **robbie** » Tue Sep 12, 2006 1:50 pm

Hi Bob It's makes walking very hard, when my legs are bent i don't notice to much but to straiten them they lock in that position and the muscles go rock hard and it hurts bad. I can't stretch anymore or stand up without this happening. I have been falling forward sometimes because when they spasam i can't get them to move forward. Have to be so slow getting out of bed or standing up from sitting, going to the washroom can be a problem if you don't give yourself enough time to get there. My legs have really taken the brunt of my ms but know i've noticed my right hand starting to go gimpy. I have been diagnosed for13 years but in my mind it's only in the last 4 or 5 that have shown me what it's really about ....

Lyon · Post by **Lyon** » Tue Sep 12, 2006 2:19 pm