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robbie · Post by **robbie** » Thu Oct 19, 2006 1:54 pm

I tried to go out today I was going to see about a job doing some tele marketing. I can’t really drive but I thought I will give it a go. My legs just wouldn’t work today so i had to just give up. My bladder is thinking on its own so I put on my very first diaper for my trip out. I’ll tell you putting that thing on was really an experience, you keep the ms as far away as you can but something like that brings it right in close. It seems like you get use to things like your messed up walking your balance problems and all the rest but when you do something new the reality of what’s happening to you comes right to the front of your thoughts. My neuro said that she would have inform the ministry of my driving problems but said that I could get hand controls but I was thinking that I don’t really need to drive all that much. That diaper thing though was really funny I laughed and cried at the same time. I just got a wheel chair it’s up in the garage that’s another new thing I’ve got to get used to or should I say understand that i need it that seems a better way of putting it. I watched Montel Williams today and thought that from the time of his going public with his ms I have only seen him do one show on ms in like two or more years but he has that quack Sylvia Brown on it seems like once a week , I guess that makes for better ratings. I thought that a guy with his media attention that maybe he would be more vocal about ms but not. This is just the way people deal with it i guess. I also saw a bio on Richard Pryor, wow he really burnt the candle at both ends!!

Lyon · Post by **Lyon** » Thu Oct 19, 2006 2:17 pm

Post by **jimmylegs** » Thu Oct 19, 2006 4:45 pm

jeez i hear you robbie, when i was laid up with my dx attack i watched a bunch of daytime tv (i've recovered, with time) and personally i don't think any of that psychic stuff makes a difference at the end of the day! maybe for others but it doesn't float my boat.

on the other hand we can't say montel's only done two shows, exactly, because of the fundraising and other stuff...

http://www.montelshow.com/on_ms/

http://www.montelms.org/

at the same time it's pretty scary that his news page has only one journal article from 2005. even if you're only looking for board/foundation news as opposed to ms news, there isn't anything since then?

also i did happen to see him talk about ms before i got it and i really thought he mentioned something about helping individuals get treatment. although i think it was just medication after treatment, and maybe he meant raising awareness about the drug companies' assistance plans? but perhaps not so much help getting the tests needed to try and confirm a diagnosis.

anyway on a lighter note probly most of u have seen this before but here's a site that just cracks me up even though it is nothing to do with ms

http://www.despair.com

http://www.despair.com/viewall.html

i like these ones:

http://www.despair.com/despair.html
http://www.despair.com/pes24x30prin.html
http://www.despair.com/planning.html
http://www.despair.com/pessimistsmug.html

REDHAIRANDTEMPER · Post by **REDHAIRANDTEMPER** » Fri Oct 20, 2006 9:34 am

i have seen some of his shows about ms..watched them before i had problems...but ihavent seen one since then and its been almost three yrs..the last one was about the smoking stuff to help with the pain and stuff....it was a combitation about him with it and also other disease where the people use it also....other then that i havent seen much else about it..yes i would have to agree there robbie ya would think with being on tv and stuff that he would be really pushing it....kinda of like micheal j fox was doing with his..of course that has died down the last yr or so....but still i think i saw more with micheal j fox talking about his problem then i did with montel and fox didnt even have a tv show at that time...go figure..hope you keep your head up about everything there.....

chris

Lyon · Post by **Lyon** » Sun Oct 22, 2006 1:37 pm

robbie · Post by **robbie** » Sun Oct 22, 2006 4:00 pm

Just a question... What if there was a flood of money for a certain disease wether it be ms cancer or what ever, If there was more than enough money would it make a difference, Would it improve the quality of research or speed up the time frame for better treatments. I have a hard time with the money factor, when you look around and question the money spent on things wether it be the war, outrages wages paid out to athletes, actors, politicians. It makes me laugh when i see a baseball player wearing a pink ribbon on his cap during a game to support the fight against breast cancer which seems to have a struggle to get any money, mean while he's making 10 million a year. A while ago on the east coast of Canada Paul McCartney came there to protest the seal hunt and was saying that these people had to stop this and in doing so these people could not earn the money needed to feed their families and so on, he is worth billions and for him to even suggest this makes me want to hurt him. If you don't want them to kill the cute little seals then shut up and open your wallet and pay them what they would make or else shut up and go home to your castle... By the way if the seal pups looked like chickens he wouldn't have even come(ass hole).Should i talk about Oprah and her angel network.. ? What a joke!! I just hope money has nothing to do with recearch otherwise there could be a cure tomorrow..

robbie · Post by **robbie** » Mon Oct 23, 2006 1:16 pm

I just want to understand the real picture! Rx&D member companies employ more than 22,000 Canadians in good jobs based on innovation, with a huge growth potential for the future. Our employees generate approximately $4.5 billion annually for the Canadian economy.

What is really happening??
Our members also generate $3 billion in tax revenues, which help all levels of government fund schools, health care and other important services for Canadians.

Is this stuff everyone already knows and i am just going crazy with a feeling in my gut that we are all being lied to. It's just not right , why do i feel this way?? We are members too just not of the right club.

Lyon · Post by **Lyon** » Mon Oct 23, 2006 1:27 pm

robbie · Post by **robbie** » Mon Oct 23, 2006 2:09 pm

Well i guess then that we have a very big problem. Does money alotment have a priority scale to decide where it goes. There is money, more than enough so disease must be low on the priority scale. There has to be want and desire to do somthing of this magnitude and somewhere there is a stop sign or at the least a very slow sign. I said to a friend today if a very rich person gave a drug company all the money they needed (billions) could that company say we will give you a cure in such a time wether it it be a month, year or 5 years it dosen't really matter but could they do it and if they could what other factors would come into play? I think that a researcher who knows more than he should would have to have the mentality of a suicide bomber to go public with it, real breakthroughs(cures) will not come through the proper channels. If they told me that the way it is now we can fix your legs in 20 years but if we had more money we could do it in 5 what would you do?

robbie · Post by **robbie** » Thu Oct 26, 2006 4:09 pm

There was girl on the news tonight and they were talking about the legalization of pot in Canada. There was a girl with ms on there who smokes it for her pain(15 to 20 joints a day)and she also has shots of morphine, man the pain she must be in. She also said that she had pain in her face from another problem, if you have that much pain you must desperatly need something to make it better. I smoke a little at night and find that it helps my leg spasms which is nice at bed time. But i can sure understand her wanting it to be made legal so she can get without worrying about the cops. If anything helps for ms or other diseases you should have it.

robbie · Post by **robbie** » Fri Oct 27, 2006 8:00 am

When you hear talk about hope it’s all relative to the amount of disability you have. For the first years of my ms i had all the hope in the world but now not so much. Just time will tell and some have more than others. All i do is vent so i hope that’s ok , one thing about having this it takes all the other worries about your health away, I don’t care about my cholesterol or my blood sugar or getting cancer or drinking to much, I could go on and on but you know, it’s nice just to not care what happens to you, it’s an easy feeling!!

Post by **jimmylegs** » Fri Oct 27, 2006 8:18 am

aaaahhh robbie, drinking too much can make this ms thing worse i think! careful what you don't care about!

robbie · Post by **robbie** » Fri Oct 27, 2006 8:27 am

hey jimmy I have tried it all, gave up drinking for a year , tried eating what they say is the right thing and nothing changed so i am taking the approach of just enjoying the things i still can, the ms does what ever it wants so i will to

Melody · Post by **Melody** » Fri Oct 27, 2006 9:06 am

Robbie it's great to watch what you eat but start with an allergist and find which foods bother you. No need to torture yourself by cutting out the ones that don't. Diet is major I believe but each persons is likely different. You need to know your body inside out. Herbs can also work wonders study them and use them. Vitamins again as long as you are being monitored for levels every 3 months or so. Get your blood levels checked as well at the Dr. Find out what is in the watch list and make them all balance. There are ton of things you can do and way down on the list is not caring. We care so join the team and pick through all that's here and find something that works for you. I realize you are likely thinking what does she know she doesn't even have MS her husband does. Well your wrong I've researched MS to death and some of it is beyond me yet but with each day my understanding grows and it will need to as things tend to change when one least expects it. Get out find a support group they helped John when he was first feeling like there was no hope. Once he put smiling faces on the people with MS whether in a chair or trying their best to stay upright I noted he started to feel empowered. You can to just don't give up it will get you know where.

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