Erika`s procedure in Poland

AndrewKFletcher · Post by **AndrewKFletcher** » Tue Nov 17, 2009 1:58 pm

Thanks Erika

This reversal of inclined therapy should prove very interesting.

You are a kind and considerate person.

Andrew

CureIous · Post by **CureIous** » Tue Nov 17, 2009 3:23 pm

AndrewKFletcher wrote:Thanks Erika

This reversal of inclined therapy should prove very interesting.

You are a kind and considerate person.

Andrew

Glad you asked Andrew not me! lol. I think IBT is great. Anything that can provide immediate assistance for FREE is a winner in my book. Heck I'd hang from the rafters bat style if need be. Too bad we can't do a study to see if IBT has the same effect as stenting over time.... My thinking is it helps symptoms, always a win/win but may not affect disease course over the long haul. IMHO.

Mark

ozarkcanoer · Post by **ozarkcanoer** » Tue Nov 17, 2009 3:25 pm

This IBT theory is interesting. My symptoms are the opposite. I wake up feeling my best and progress until by mid-afternoon I am a Zombi. Does that mean that my azygous is more likely to be stenosed ???

cheerleader · Post by **cheerleader** » Tue Nov 17, 2009 3:40 pm

Ozark- Jeff's fatigue hit mid-day and he was double jugular stenosis. I don't think symptoms are tied to location, it's all about oxygenation and reflux.

As far as IBT, I think it's a great idea...we still do it (4 inches-a bit less than Andrew's recommendation) and it was recommended to us by Dr. Cooke at Stanford last January. Jeff used IBT for four months before his stent procedure, and he still had dual jugular vein closure, so I don't think IBT will change a physical stenosis, but it can certainly help with circulation and limit reflux...Andrew's right on that!
cheer

ozarkcanoer · Post by **ozarkcanoer** » Tue Nov 17, 2009 3:53 pm

WOW !!! IBT makes sense !!! I'll have to try this. I watched the youtube video by Andrew K Fletcher. What a great idea. We are made of fluids that have to flow and there must be an optimal position for these fluids to flow. Now I just have to get my husband to agree to this, LOL.

LR1234 · Post by **LR1234** » Tue Nov 17, 2009 4:12 pm

My bed is on a tilt and my fiance has not stopped complaining!! He ends up down the other end of the bed by morning...I need to strap him in!!

ozarkcanoer · Post by **ozarkcanoer** » Tue Nov 17, 2009 4:15 pm

I'm sure this has been posted ad nauseum, but the foam method looks like the best thing for our bed. But I haven't got a clue where to buy a custom wedge of foam to fit our queen sized bed !!! Is custom foam a common thing ? I guess it would go between the mattress and springs.... hmmmm

ozarkcanoer · Post by **ozarkcanoer** » Tue Nov 17, 2009 5:03 pm

OK... I talked with my husband, and we are going to try IBT with the foam method. We even found a custom foam place about 10 minutes from our house !!! I just have to compute the dimensions for our queen sized bed and see if they can make me custom foam. I guess I'll have a choice of foam types. I wonder what the best kind is for this ?? Maybe the stiffest foam ??

AndrewKFletcher · Post by **AndrewKFletcher** » Wed Nov 18, 2009 12:08 am

ozarkcanoer wrote:OK... I talked with my husband, and we are going to try IBT with the foam method. We even found a custom foam place about 10 minutes from our house !!! I just have to compute the dimensions for our queen sized bed and see if they can make me custom foam. I guess I'll have a choice of foam types. I wonder what the best kind is for this ?? Maybe the stiffest foam ??

A much cheaper method is to have some plywood cut to the size of the mattress and place some timber under it at the top and the middle to make a wooden wedge shape.

Place one of those antislip rug pads on the wood and this will secure the mattress.

Thank you all for the encouraging replies.

Renewed my confidence in concentrating my efforts with helping people with ms.

Andrew

ErikaSlovakia · Post by **ErikaSlovakia** » Wed Nov 18, 2009 12:09 am

LR1234 wrote:My bed is on a tilt and my fiance has not stopped complaining!! He ends up down the other end of the bed by morning...I need to strap him in!!

Oh, I am sorry. I heard it is sometimes a problem. I am alone, I have bed for one person only. My 10 years old nephew likes it because he can watch my TV better. He is with me only sometimes during the day.
Well, does anybody have an idea

Erika

AndrewKFletcher · Post by **AndrewKFletcher** » Wed Nov 18, 2009 12:16 am

ozarkcanoer wrote:This IBT theory is interesting. My symptoms are the opposite. I wake up feeling my best and progress until by mid-afternoon I am a Zombi. Does that mean that my azygous is more likely to be stenosed ???

Sitting posture can be a problem, particularly wheelchair / bucket seat posture where the knees are higher then the seat. This "acording to my research and personal experiences" can make a huge difference when corrected.

Simply transfering to a seat which affords the knees to be level with the seat or preferably below the seat is logical so adding an extra cushion or one of those wedge shaped foam cushions, placed under the wheelchair jelly cushion could prove useful by taking out the dip. Best done around the home only though as keeping the cushion tilted back helps you remain in the wheelchair better than a flat seat would.

Andrew

ErikaSlovakia · Post by **ErikaSlovakia** » Wed Nov 18, 2009 12:19 am

ozarkcanoer wrote:This IBT theory is interesting. My symptoms are the opposite. I wake up feeling my best and progress until by mid-afternoon I am a Zombi. Does that mean that my azygous is more likely to be stenosed ???

Not all my symptoms were/are in the morning only. The fatigue started to be bad around 2 pm even with LDN - it was much better with LDN but not as good as now.
Only headache and nausea was really bad in the morning. E.g. the bad vision is the same all the day.
Erika

BBE · Post by **BBE** » Wed Nov 18, 2009 12:56 am

Andrew, do you have any idea of the impact of IBT on "healthy" people.
Is the inclined bed recommended for anybody regardless of condition, e.g. for better sleep or so? Do you have your bed inclined?

AndrewKFletcher · Post by **AndrewKFletcher** » Wed Nov 18, 2009 1:18 am

BBE wrote:Andrew, do you have any idea of the impact of IBT on "healthy" people.
Is the inclined bed recommended for anybody regardless of condition, e.g. for better sleep or so? Do you have your bed inclined?

Bed has been inclined since end of 1994 many more friends have their beds inclined also for many years.

IBT can help and has been shown to help with insomnia, sleep paralysis arythmia, heart fibrilation, psoriasis, arthritis, circulatory problems, varicose veins, oedema and many more conditions, male erectile dysfunction, low blood pressure and high blood pressure (If blood pressure is a problem make sure you monitor it)

Best of all, it is free and if you feel it does not help after 4 months take the bed down and sleep flat to see if you are overlooking anything.

If you feel IBT is not for you from the onset, remember no one is making you do anything you don't want to do.

Andrew

AndrewKFletcher · Post by **AndrewKFletcher** » Wed Nov 18, 2009 1:20 am

ErikaSlovakia wrote:
LR1234 wrote:My bed is on a tilt and my fiance has not stopped complaining!! He ends up down the other end of the bed by morning...I need to strap him in!!
Oh, I am sorry. I heard it is sometimes a problem. I am alone, I have bed for one person only. My 10 years old nephew likes it because he can watch my TV better. He is with me only sometimes during the day.
Well, does anybody have an idea
Erika

Place a duvet / quilt / blanket under the bottom sheet and tuck it under the mattress. The additional wadding will prevent slipping down the bed.