If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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ThisIsMS Upgrade
Replies: 9
First post
Greetings,
We have recently upgraded the ThisIsMS forum software to the latest version of phpBB. We are still working on the site to fix any of the...
Last post
Some of you may have noticed that the forums are now displaying relative dates for posts, e.g., 2 moths ago, instead of the actual date and time of...
- 9 Replies
- 292 Views
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Last post by NHE
5 days ago
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New treament forum - Medical Marijauna
Replies: 6
First post
We now have a new forum focusing on discussion of medical marijuana in the treatment of MS.
Last post
Hi
Are you using edibles for the spasms? What dose is working for you? or do you find relief with smoking it?
tiff
- 6 Replies
- 5579 Views
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Last post by Tif
6 months ago
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New treatment forum - Ocrevus
Replies: 3
First post
We now have a new forum dedicated to the discussion of Roche's new monoclonal antibody treatment for MS, Ocrevus also known as Ocrelizumab.
Last post
Symptoms started in early 2017, loss of red saturation in 1 eye. Then the beaten all night with a stick. Formally diagnosed April 2018, Ocrevus...
- 3 Replies
- 6865 Views
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Last post by Kheuer
2 months ago
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Site registration problems
Replies: 2
First post
We are currently experiencing problems with our email system sending out activation emails. If you have tried to register, but didn't receive the...
Last post
If you use a temporary email service and your activation notice email bounces back as undeliverable, then the associated account will likely be...
- 2 Replies
- 23374 Views
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Last post by NHE
2 months ago
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New treatment forum - Biotin
Replies: 17
First post
We now have a new forum dedicated to the discussion of MedDay's new biotin treatment for SPMS called Cerenday.
Last post
that was one single food actually (the rest just come along with the source link) in response to the 'red herring' comment...
- 17 Replies
- 12894 Views
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Last post by jimmylegs
1 year ago
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Desatascador complete in 8 parts
by
gristy56 »
3 months ago
Obtain two desatascador units by clicking on the following link -
Read ALL the following before attempting to use -'Desatascador'
by Simon...
- 0 Replies
- 408 Views
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Last post by gristy56
3 months ago
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Young Plasma Clinical Trial for MS
Replies: 2
First post
Our son was offered an opportunity to participate in the Young Plasma Clinical Trial for MS. Has anyone heard anything about it or been involved with...
Last post
How old is your son? What is his MS history?
Do you have info on the trial? There is not much info on the web regarding Young Plasma. Like many...
- 2 Replies
- 434 Views
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Last post by ElliotB
3 months ago
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Metabolomic profile of insulin resistance
Replies: 1
First post
2018 Aug 25
Universidad Popular Autónoma del Estado de Puebla, PUE, México
Metabolomic profile of insulin resistance in patients with multiple...
Last post
of course, the cells don't open up fast enough.
it is a form of non-insulin dependent resistance/diabetes.
there are other publications about this....
- 1 Replies
- 382 Views
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Last post by Leonard
3 months ago
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Zamboni/Zivadinov PRO/CON
Replies: 2
First post
Everybody seems to agree there is vascular involvement. Statistics show PTA, done right, on the right people, can help. when PTA restored the
flow in...
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Great pics! I have always been curious about Mt Tremblant. It looks beautiful - very European. It looks like there is a paved bike trail? We...
- 2 Replies
- 393 Views
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Last post by tzootsi
3 months ago
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- 0 Replies
- 369 Views
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Last post by NHE
3 months ago
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pop quiz re actual 2018 study: Pure spinal MS
Replies: 4
by
jimmylegs »
4 months ago
First post
pop quiz: name one key differential dx for 'pure spinal multiple sclerosis'
Pure spinal multiple sclerosis: A possible novel entity within the...
Last post
yes, let's completely ignore the nutritional component :'(
- 4 Replies
- 556 Views
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Last post by jimmylegs
3 months ago
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blood test for MS
Until now, blood tests in MS were just to exclude other conditions. But it seems that now there is a real blood test for MS available.
good luck!!
- 0 Replies
- 96 Views
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Last post by frodo
3 months ago
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Could this be something else
Replies: 31
First post
What are the chances that I was misdiagnosed? I had one episode of double vision, my mri had lesions in my brain and very few (like 2) in my spine, I...
Last post
It seems that now there is a blood test for MS available in the US.
If you contact them, please keep us informed.
good luck!!
- 31 Replies
- 1308 Views
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Last post by frodo
3 months ago
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Psoriasis
Replies: 4
by
wahinewithms »
4 months ago
First post
Aloha Folks,
What psoriasis medications work best? Since both MS and psoriasis are auto-immune diseases, I'm also wondering how many of you suffer...
Last post
calcipotriol/calcipotriene. synthetic 1,25 dihydroxyvitamin d3.
trade name used to be dovobet i believe, when mixed with betamethasone...
- 4 Replies
- 459 Views
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Last post by jimmylegs
3 months ago
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A blood test for MS already available
It seems that these people have been working on this for several years. This is not a project. It is an already available test. If you are a clinic...
- 0 Replies
- 414 Views
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Last post by frodo
3 months ago
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Study on immune response in MS targets........
Replies: 3
First post
Study on immune response in MS targets new therapeutic approach
A study published by a team of investigators at the University of Tokyo’s Institute...
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Brain’s Dumped DNA May Lead to Stress, Depression
New research suggests genetic material from the mitochondria can trigger an immune response...
- 3 Replies
- 998 Views
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Last post by Leonard
3 months ago
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Organic solvent exposure increases MS risk.
Replies: 2
First post
Organic solvents and MS susceptibility: Interaction with MS risk HLA genes
Neurology Jul 2018, 10.1212
Objective: We hypothesize that different...
Last post
Would citric acid be one of these that may trigger MS symptoms?
Citric acid is not an organic solvent. Examples of organic solvents include paint...
- 2 Replies
- 603 Views
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Last post by NHE
4 months ago
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blood test results
Replies: 44
First post
Hello,
I just received my blood test results.
Can you pls provide your feedback ? (are the results ok for a MSer)
-Calcium: 2.41mmol/L...
Last post
i assume you mean shellfish allergy zen :)
re seafood in general, good to hear you enjoy sardines. i quite recently tried and failed. however i...
- 44 Replies
- 2377 Views
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Last post by jimmylegs
4 months ago
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- 0 Replies
- 378 Views
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Last post by ElliotB
4 months ago
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Vitamin K
2018 Aug 27
Department of Biological Sciences, Geauga campus, Kent State University, Burton, Ohio
Vitamin K enhances the production of brain...
- 0 Replies
- 384 Views
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Last post by Petr75
4 months ago
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US vs Canada
Replies: 12
First post
I saw a utube video that says in the U.S. 1 in 1000 has MS. In Canada 1 in 500 has MS. Another factoid suggesting distance from the equator is...
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According to Dr Coimbra and several other doctors, not only is geography a factor, but apparently many people have a genetic quirk that makes them...
- 12 Replies
- 868 Views
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Last post by tzootsi
4 months ago
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Trouble swallowing esophagus being pushed over?
Replies: 34
First post
Trouble swallowing esophagus being pushed over?
Hello all, they did a barium swallow test and found my esophagus is being pushed over. Is this...
Last post
no probs :) please note that high dose d3 interactions with mag are in the 'calls for research' stage. if your docs have not monitored or added mag...
- 34 Replies
- 982 Views
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Last post by jimmylegs
4 months ago
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Progressive MS symptoms leading up to not being able to walk
Replies: 11
First post
Progressive MS symptoms leading up to not being able to walk.
Hello I was wondering if for those who don’t walk anymore. Anything you can remember...
Last post
Hi,
When you say the pain in the legs in intolerable, can you describe it? I've had sharp pain round the hips, throbbing pain in the hamstrings,...
- 11 Replies
- 739 Views
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Last post by Scott1
4 months ago
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Aspirin
Replies: 1
First post
2018 Aug 8
Division of Neurology, Department of Internal Medicine, University of South Carolina School of Medicine, Greeville
Can Aspirin Minimize...
Last post
2018 Aug 8
Division of Neurology, Department of Internal Medicine, University of South Carolina School of Medicine, Greeville
Can Aspirin Minimize...
- 1 Replies
- 385 Views
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Last post by NHE
4 months ago
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What Is the Safest Cookware to Use?
Replies: 16
by
ElliotB »
5 months ago
First post
What Is the Safest Cookware to Use?
A couple of years ago, I did research on this subject and ended up switching to cast iron. cookware Cast iron is...
Last post
nice find - hopefully for 'future research' recommendations, the posted study includes some investigation into aluminum interactions with other...
- 16 Replies
- 797 Views
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Last post by jimmylegs
4 months ago
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‘Desatascador’ Device Video now posted!
Replies: 30
by
ElliotB »
5 months ago
First post
>>>>>>>>>>>>>>>>>>>>>>
IMPORTANT MESSAGE
<<<<<<<<<<<<<<<<<<<<<<
In the video, I have the handle facing downwards towards my feet. In rereading...
Last post
I support your thinking completely. My vision is getting better and better. Keep up your own experiments.
- 30 Replies
- 1516 Views
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Last post by gristy56
4 months ago
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Stress
Replies: 2
First post
16-Jul-2012
LSUHSC research finds treating stress prevented new MS brain lesions...
Last post
And, given the problems with Normal ...
The underestimated problem of using serum magnesium measurements to exclude magnesium deficiency in...
- 2 Replies
- 453 Views
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Last post by THX1138
4 months ago
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MS and new ways of regenerating
First published on 26 August 2018 in Health & Wellbeing
By Dr Jessica Fletcher and Dr Susan Northfield, University of Melbourne
MS and new ways of...
- 0 Replies
- 385 Views
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Last post by Petr75
4 months ago
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- 0 Replies
- 324 Views
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Last post by Petr75
4 months ago
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- 0 Replies
- 360 Views
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Last post by Petr75
4 months ago
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Research Uncovers How Commensal Bacteria Contribute to MS
Replies: 4
First post
2018 Aug 7
Tracy Hampton, PhD
AMA. 2018; 320 (5) :. 429-430 doi: 10,1001 / Jama.2017.12863
Research Uncovers How Commensal Bacteria Contribute to...
Last post
2018 Jul 11
Hertie Senior Professor Group, Max Planck Institute of Neurobiology, Martinsried, Germany
Dietary non-fermentable fiber prevents...
- 4 Replies
- 524 Views
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Last post by Petr75
4 months ago
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Exposure to Ultraviolet Radiation
2018 Aug 20
University of Western Australia
Exposure to Ultraviolet Radiation in the Modulation of Human Diseases
Abstract
This review focuses...
- 0 Replies
- 351 Views
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Last post by Petr75
4 months ago
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Alcohol
Replies: 3
First post
2018 Aug 20
Danish Multiple Sclerosis Center, Department of Neurology, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark
Alcohol...
Last post
i wonder what happened to the 2698 ms patients not captured in this study.
- 3 Replies
- 404 Views
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Last post by jimmylegs
4 months ago
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SSDI
Replies: 2
First post
By any chance do you know anyone that deals with SSDI. I need an advocate to complete the application.
Thank you
Last post
There are lawyers that specialize in this and don't charge a fee (upfront or otherwise). They do all the paperwork for you and handle all...
- 2 Replies
- 429 Views
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Last post by ElliotB
4 months ago
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Onset of secondary progressive MS is not influenced
Replies: 6
First post
2018 Jun 26
Neuroimmunology Unit, Hospital Clínic de València, Spain
Onset of secondary progressive multiple sclerosis is not influenced by current...
Last post
Probably they mean that when you are on MS drugs, you get to SPMS at the same time, but you get there in better conditions.
That was the point of...
- 6 Replies
- 520 Views
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Last post by ElliotB
4 months ago
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Estriol ameliorates MS
In this paper they report that striol ameliorates MS, specially the gray matter damage:
Estriol‐mediated neuroprotection in multiple sclerosis...
- 0 Replies
- 415 Views
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Last post by frodo
4 months ago
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Does this aching pain ever go away?
Replies: 8
First post
I was diagnosed with this almost a year ago. Everyone said it would get easier and I would feel more normal every day. Not a day goes by that I don’t...
Last post
Hi,
Well, that's not actually pain. I think you have to talk to someone to resolve that. You're obviously very despondent and, of course, your heart...
- 8 Replies
- 479 Views
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Last post by Scott1
4 months ago
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- 0 Replies
- 367 Views
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Last post by ElliotB
4 months ago
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Harvard professor calls coconut oil 'pure poison'
Replies: 7
by
ElliotB »
5 months ago
First post
Some have touted Coconut oil as being good for you. Perhaps you use it. I never have.
BUT a Harvard professor just busted the myth that coconut oil...
Last post
By the way, fat is not the enemy, sugar is!
I tend to agree! But when it comes to fats, some are thought to be better for health than others.
- 7 Replies
- 515 Views
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Last post by ElliotB
4 months ago
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IMPORTANT: New type of MS discovered
It seems that 12% of patients have white matter lesions without demyelination , with a different kind of lesion that looks the same under MRI but is...
- 0 Replies
- 411 Views
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Last post by frodo
4 months ago
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question re appetite and zinc
Replies: 7
by
ElliotB »
5 months ago
First post
@ jimmylegs
I have had for probably close to a year and continue to have a major appetite issue (lack of) and have decided to try zinc to see if it...
Last post
testing would be smart. no need to fix what ain't broke.
- 7 Replies
- 366 Views
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Last post by jimmylegs
4 months ago
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Personality changes in spouse with MS. Feeling lost.
Replies: 8
by
KerryLyn »
5 months ago
First post
I have a long story, but one I hope you all will read through because I feel completely lost as where else to go for help.
My husband got diagnosed...
Last post
ok sounds good - just be aware that this kind of info occupies the vast gap between research and practice; between public health messaging and...
- 8 Replies
- 482 Views
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Last post by jimmylegs
4 months ago
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Anti-inflammatory effects of flavonoids in neuro disorders
Replies: 10
First post
This is interesting because flavonoids are in several tasty places, like grapes.
Anti-inflammatory effects of flavonoids in neurodegenerative...
Last post
2018 Aug 1
Binzhou Medical University, Yantai, China
Tetramethylpyrazine ameliorates experimental autoimmune encephalomyelitis by modulating the...
- 10 Replies
- 885 Views
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Last post by Petr75
5 months ago
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Vitamin D for MS
Replies: 1
First post
VitD in MS. review
Chapter 8 - The Way Forward With Vitamin D in Multiple Sclerosis
Abstract
Vitamin D exposure has gained interest as a...
Last post
related TiMS info here
- 1 Replies
- 439 Views
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Last post by jimmylegs
5 months ago
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Vitamin E for MS
Replies: 2
First post
We already knew about vitamin D, but it seems vitE could also delay MS progression.
Vitamin E administration erases an enhanced oxidation in...
Last post
vitamin e, and alpha tocopherol in particular, features prominently in the klenner protocol. when this protocol did me so much good in 2006 i was...
- 2 Replies
- 377 Views
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Last post by jimmylegs
5 months ago
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Canada wins MS
Replies: 1
by
jimmylegs »
5 months ago
First post
yayyy Canada FTW :roll:
Multiple sclerosis in Canada 2011 to 2031: results of a microsimulation modelling study of epidemiological and economic...
Last post
'may vary' no kidding - wonder where the massive discrepancy comes from
Multiple sclerosis in Canada: Understanding why MS rates are the highest...
- 1 Replies
- 438 Views
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Last post by jimmylegs
5 months ago
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The heat!!!
Replies: 9
by
81Charger »
7 months ago
First post
Hi all I'm looking for opinions or suggestions. I'm feeling fairly well with my MS I was diagnosed 10 1/2 years ago. But what is really basically...
Last post
I have been a firefighter here in the Miami area for 20 plus years and was just diagnosed 3 years ago. It has been difficult for me to do the things...
- 9 Replies
- 824 Views
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Last post by NHE
5 months ago
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Rosemary for MS
Replies: 2
First post
Microglia activation is one of the problems in MS. It seems that a natural compound, Carnosol, found in Rosemary can prevent it. The authors speak...
Last post
Well once again, EAE is not MS and the animal models (usually mice) are not human beings.
Let me know when there is something we can buy now that...
- 2 Replies
- 633 Views
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Last post by frodo
5 months ago
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Mobility scooter
Replies: 7
by
David1949 »
6 months ago
First post
I can still walk short distances with my cane and foot brace. But I want to extend my travel distance to maybe 3 miles so I'm thinking of buying a...
Last post
There are scooter lifts that can be installed to lift it into the back of your Jeep or ones that attach to your receiver hitch. Bruno is a good...
- 7 Replies
- 561 Views
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Last post by Snoopy
5 months ago
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- 0 Replies
- 503 Views
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Last post by frodo
5 months ago
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anti-MOG test available in US
In case you have non-standard MS or non-responsive to medication this could be interesting.
Mayo Clinic develops neuro test that distinguishes...
- 0 Replies
- 460 Views
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Last post by frodo
5 months ago
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Pay it forward
Replies: 3
by
David1949 »
5 months ago
First post
My wife and I were having breakfast at a local restaurant this morning. A man sitting near us came by our table as he was leaving and said: you look...
Last post
Ask the drug companies to reciprocate this concept please! Stem Cells would be light years ahead :)
- 3 Replies
- 511 Views
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Last post by hargarah
5 months ago
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Finding a doctor who will prescribe for the CAP
Replies: 1
First post
My daughter was diagnosed with MS 2 years ago and we live in Melbourne Australia. Does anyone know who would be willing in Melbourne to prescribe and...
Last post
hi :)
i am afraid i can't answer your question, but i do have a couple of potentially relevant thoughts.
since pharmaceutical antibiotic use is...
- 1 Replies
- 584 Views
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Last post by jimmylegs
6 months ago
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Has anybody tried BCG vaccine for MS?
Replies: 9
First post
Today BBC wrote this
TB vaccine 'could help prevent MS'
An anti-tuberculosis vaccine could prevent multiple sclerosis, early research suggests.
and...
Last post
The BCG (Bacillus Calmette-Guérin) vaccine is routinely given in the UK to school-age children. I have a friend who changed schools there often and...
- 9 Replies
- 2290 Views
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Last post by Pesho
6 months ago
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Excessive water intake with MS
Replies: 45
by
chris12453 »
11 months ago
First post
Good Morning all,
I was diagnosed with MS about 3 years ago now (I am 31 now) and have certainly been through my bouts with all kinds of symptoms...
Last post
Update on current status.
Met with my neurologist yesterday. She has spoken with my rheumatologist whom has confirmed psoriasis and psoriatic...
- 45 Replies
- 4149 Views
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Last post by chris12453
6 months ago
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