If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
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New treatment forum: Kesimpta
by
NHE » Fri Aug 21, 2020 7:36 pm
Kesimpta, from Novartis, is a subcutaneously injected anti CD20 monoclonal antibody with a similar mode of activity to Ocrevus.
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- 998 Views
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Last post by NHE
Fri Aug 21, 2020 7:36 pm
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- 0 Replies
- 1291 Views
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Last post by NHE
Tue Jun 30, 2020 5:57 am
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New Treatment Forum - Zeposia
by
NHE » Mon Apr 13, 2020 4:12 am
Zeposia (ozanimod) is an oral sphingosine 1-phosphate receptor modulator indicated for the treatment of relapsing MS.
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- 1727 Views
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Last post by NHE
Mon Apr 13, 2020 4:12 am
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Coronavirus (COVID-19) Research
Replies: 168
by
jimmylegs » Sun Mar 15, 2020 4:10 am
First post
What You Need To Know About Coronavirus (COVID-19)
What does COVID-19 mean for people living with MS? Many disease modifying therapies (DMTs) for...
Last post
Hi,
Although this is not directly related to MS, I feel those of you who are interested in following Covid developments will find this man does a...
- 168 Replies
- 23954 Views
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Last post by Scott1
Mon Jan 25, 2021 4:09 pm
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New treatment forum - Mavenclad
by
NHE » Thu Apr 25, 2019 3:08 pm
Mavenclad (cladribine) is an oral treatment for relapsing MS and active secondary progressive MS.
MAVENCLAD is a purine antimetabolite indicated...
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- 3553 Views
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Last post by NHE
Thu Apr 25, 2019 3:08 pm
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New treatment forum - Mayzent
by
NHE » Thu Apr 25, 2019 12:28 pm
Mayzent is an oral treatment for relapse remitting MS and active secondary progressive MS.
MAYZENT is a sphingosine 1-phosphate receptor modulator...
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- 3167 Views
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Last post by NHE
Thu Apr 25, 2019 12:28 pm
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Site registration problems
Replies: 2
by
NHE » Sat Jul 25, 2015 1:30 am
First post
We are currently experiencing problems with our email system sending out activation emails. If you have tried to register, but didn't receive the...
Last post
If you use a temporary email service and your activation notice email bounces back as undeliverable, then the associated account will likely be...
- 2 Replies
- 26370 Views
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Last post by NHE
Tue Nov 13, 2018 4:16 am
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Quackery
Replies: 8
by
Felly » Mon Jun 28, 2004 12:22 am
First post
I am curious as to why some people think all complementary medicine is quackery.
I the last few weeks, on the forum, I have read people dismissing...
Last post
Harry,
That's coincidental. In doing further research regarding clinical trials and the contracts between corporate sponsors and physicians, there...
- 8 Replies
- 2736 Views
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Last post by OddDuck
Wed Jun 30, 2004 6:53 am
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My toe hurts
Replies: 1
by
mscaregiver » Tue Jun 29, 2004 12:36 pm
First post
This has nothing to do with anything other than the fact that late last night, about 4 AM, as I walked out of the bathroom I slammed my left foot...
Last post
LOL Philip, I can so relate to you. I just recently had the hub change the linen closet door in our hallway b/c it seemed the cats ALWAYS tend to...
- 1 Replies
- 1883 Views
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Last post by DawnsBrain
Tue Jun 29, 2004 1:02 pm
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Politics on the Home Page
Replies: 10
by
willysnout1 » Sat Jun 26, 2004 11:14 am
First post
What's with the BUSH!!! DON'T COME TO TURKEY!!! message on the home page? Hey, I'm not voting for the guy either but why the politics here? :(
Last post
Thanks, Aaron, for being on top of the situation.
- 10 Replies
- 3168 Views
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Last post by jicepf
Mon Jun 28, 2004 6:14 am
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Clutching at straws?!
Replies: 5
by VickyBEE » Sat Jun 26, 2004 4:09 pm
First post
Hi,
I've been suffering right hip pain going down the outside of my leg, right knee pain going down the outside of my leg, lower back pain, painful...
Last post
Vicky, no one here is a doctor and therefore you cannot get a diagnosis on line. All we can do is speculate, so be sure not to take my comments or...
- 5 Replies
- 2518 Views
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Last post by willysnout1
Sun Jun 27, 2004 11:08 am
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We were hacked
by
Arron » Sat Jun 26, 2004 3:02 pm
How sad. Some people think it is fun to hack a non-profit site. We apologize for the inconvenience and assure you this has nothing to do with us. We...
- 0 Replies
- 1802 Views
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Last post by Arron
Sat Jun 26, 2004 3:02 pm
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Some good news....
Replies: 6
by
MONA » Wed Jun 23, 2004 10:27 am
First post
Just wanted to share some good news. I was diagnosed in 95 because of a foot that dropped when I walked over a mile's distance. Since then I've tried...
Last post
Hello!
Thanks for sharing your good news. I like the idea of yoga and will have to try it. As for diet, I love the Swank diet and have followed it...
- 6 Replies
- 2682 Views
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Last post by jazzcat
Fri Jun 25, 2004 2:13 pm
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Drug Cocktail
Replies: 2
by
Daunted » Wed Jun 23, 2004 8:36 pm
First post
How about the possibility of a drug cocktail for MS?
What would you hypothesize would happen if someone with MS took the following regimen of drugs?...
Last post
Hello Daunted,
Here is what I take:
rifampicin, 300mg twice a day
roxithromycin, 150mg twice a day (which would have to substituted by azithromycin...
- 2 Replies
- 2370 Views
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Last post by SarahLonglands
Thu Jun 24, 2004 2:36 am
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Looking for good neuro in Western Ky. or Tennessee area
Replies: 2
by
CCmom » Fri Apr 30, 2004 5:04 am
First post
Hi! I've recently fired my 16 year old son's neuro, and we're seeking another doctor for him. I know I shouldn't have gotten rid of him before...
Last post
You can also try your nearest MS Society chapter . Ask for their referral person. You'll get a list of neuros, and often some informative commentary....
- 2 Replies
- 2304 Views
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Last post by willysnout1
Mon Jun 21, 2004 3:56 pm
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Did you know?
Replies: 15
by
OneEyeBlind » Tue Mar 23, 2004 9:55 am
First post
Did you know that there is a diagnosis of PRobable or Posible The other day I was surfing the web and I found that there is a such thing as probable...
Last post
Regarding Possible MS / Probable MS or the diagnosis I had for a while demylenating disease - unspecified ....
Actually - This is a nice grace...
- 15 Replies
- 5676 Views
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Last post by seelie
Sun Jun 20, 2004 5:53 am
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- 4 Replies
- 2444 Views
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Last post by finn
Sat Jun 19, 2004 6:14 am
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What do you think?
Replies: 9
by
aeroangel » Mon Feb 09, 2004 6:17 pm
First post
I posted on the introduction thread but was wondering if anyone could give me advice....Back in Aug '03 I was driving home from work and my left side...
Last post
I'm also left side weak/tingly and right handed --- Guess that's a good thing :lol:
Yes - I wish you the best too...Aero and hope you don't have...
- 9 Replies
- 3633 Views
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Last post by seelie
Fri Jun 18, 2004 3:30 pm
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How many people in the US have MS?
Replies: 18
by
Shayk » Mon May 31, 2004 4:22 pm
First post
I'm in the process of reading Montel Williams book Climbing Higher .
In it he asserts that if the number of people estimated to have MS is...
Last post
Arron,
keep it above the belt, guys :)
Will go to the neutral corner and wait for the mandatory count :D
Harry
- 18 Replies
- 6026 Views
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Last post by HarryZ
Tue Jun 15, 2004 6:12 pm
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Oral MS Meds
Replies: 2
by
mscaregiver » Mon Jun 14, 2004 9:59 pm
First post
TEL AVIV, June 14 (Reuters) - Israel's Teva Pharmaceutical Industries (NasdaqNM:TEVA - News; Tel Aviv:TEVA.TA - News) joined the race to develop a...
Last post
Finn,
Teva is obviously having to do something and quickly due to Copaxone recently getting rather lousy comments from MS researchers. Again you can...
- 2 Replies
- 2633 Views
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Last post by HarryZ
Tue Jun 15, 2004 5:43 pm
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future treatments of MS
Replies: 27
by
wilson » Fri May 28, 2004 7:32 am
First post
The news about new and upcoming treatments for MS seems to be sporadic and spread out across this board. I am hoping that if anyone has summary...
Last post
Wilson
That's a great Vitamin D link.
Here's another link that people may find interesting. It's a research update from the Nancy Davis Center...
- 27 Replies
- 7604 Views
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Last post by Shayk
Sun Jun 13, 2004 5:02 pm
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Neuropsych exam
Replies: 9
by
aeroangel » Thu Feb 26, 2004 6:32 pm
First post
I was wondering if anyone has been put thru this test? I am scheduled on March 11th. I have been blessed with facial spasms again and my neuro...
Last post
Hey Steve, nice to hear from you again! :) Check your private message folder on this site. I sent you my e-mail address. Hope to hear from you soon.
- 9 Replies
- 5361 Views
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Last post by willysnout1
Sat Jun 12, 2004 10:08 am
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Thanks for all the info
by
k8jsl » Wed Jun 09, 2004 7:46 pm
Just to let you all know.. This has been the best forum I have ran across on the net yet !!! I start w/ Rebif next week and wish I would have found...
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- 2162 Views
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Last post by k8jsl
Wed Jun 09, 2004 7:46 pm
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- 0 Replies
- 2106 Views
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Last post by janejane
Wed Jun 09, 2004 1:24 pm
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advice
Replies: 3
by rich77 » Tue May 11, 2004 9:56 am
First post
My brother has MS and has been living with me for about 6 months. He had steriod treatment about 5 months ago. He does not take his drugs correctly,...
Last post
I know that when I was first diagnosed, I spent about six months in a haze, just going through the motions. I felt like no one could say the right...
- 3 Replies
- 2985 Views
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Last post by jicepf
Fri Jun 04, 2004 7:24 am
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People with MS
by
wilson » Wed Jun 02, 2004 7:19 am
Last night, I saw on ESPN sports channel that Khi Downey will be playing for the San Francisco 49 ers. He is an OG footbal player with MS
A clip...
- 0 Replies
- 2341 Views
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Last post by wilson
Wed Jun 02, 2004 7:19 am
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I live in the MS-Belt. Is it dangerous to continue?
Replies: 9
by
wilson » Sun May 02, 2004 5:23 pm
First post
Hi all,
I was ds in January which came as quite the shocker.
I have been living in Denver, CO for the last 12 years. I have been told that Colordo...
Last post
The head of the ms center at Dartmouth has told me that the rates of ms for northern NH and Vt are the highest in the country. Could it be that we...
- 9 Replies
- 6339 Views
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Last post by willysnout1
Mon May 31, 2004 7:10 pm
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Hello....
Replies: 2
by
k8jsl » Mon May 31, 2004 3:54 pm
First post
Hello all,
Just stopped by to say hi :D ..
Was browsing the hostpc.com forums and happen to see this one listed...
A little history: Aftr 18...
Last post
Hello, sorry that you are here because of your new dx. Hope you have the proper meds to keep you on a good path.
Just wanted to say welcome! (even...
- 2 Replies
- 2325 Views
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Last post by maybelater
Mon May 31, 2004 4:13 pm
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MS and Hodgkins Disease
Replies: 2
by
Cathy » Tue May 25, 2004 11:38 am
First post
May 18, 2004 -- Two diseases that frequently strike young, affluent adults may share similar causes. A new study shows that multiple sclerosis (MS)...
Last post
My niece has had Hodgkin's and has ms. The ms diagnosis came two years after the cancer.
Peter
- 2 Replies
- 3395 Views
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Last post by Ptwo
Thu May 27, 2004 4:15 pm
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Fatigue & Treatment
Replies: 34
by
VirtuallyFine » Mon Mar 01, 2004 10:52 am
First post
:?:
I was wondering who has fatigue as their worst symptom, and if you are taking any medication to help with it. I am seeing my Neuro in two weeks...
Last post
I'm new to the board and finding my way around. I've been following MS research for some 40 years and my wife has SPMS.
Just a few comments on...
- 34 Replies
- 13525 Views
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Last post by HarryZ
Wed May 26, 2004 5:00 pm
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Aids for Visually Impaired
by
mswp » Sun May 23, 2004 6:33 pm
G'Day All :)
I am wanting to find out all sorts on the issue of Visual Impairment.
I myself am dealing with decreasing vision and have started to...
- 0 Replies
- 2274 Views
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Last post by mswp
Sun May 23, 2004 6:33 pm
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I'm In the Study
Replies: 19
by
fightingms » Fri Mar 19, 2004 6:21 am
First post
My MS Clinic called yesterday to let me know I am in the study....the ACT study. I go next month to find out which arm I was randomized into and I...
Last post
Wow...all I can say is you are very lucky to have him as a neuro. It's always nice to know they're on their toes so to speak, when it comes to your...
- 19 Replies
- 7320 Views
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Last post by 2gentle
Sun May 16, 2004 2:18 pm
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Painful Facial Twitch
Replies: 6
by
Andy » Sat Mar 20, 2004 8:55 am
First post
Hi there, :) :?: I've been having a painful facial twitch on the right hand side of my face and ear for a few months now and it's really starting to...
Last post
Hi all :) I just wanted to say thank you for all your replies to my post.
It does sound like I have that TN and I'll be mentioning it at my next...
- 6 Replies
- 3443 Views
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Last post by Andy
Tue May 04, 2004 1:36 pm
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Excellent story on ESPN today
by Xenova » Sat Apr 03, 2004 6:46 am
It is about a collegiate football player who will be entering the NFL this month. Teams are shying away from him because he has MS. The story shows...
- 0 Replies
- 2366 Views
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Last post by Xenova
Sat Apr 03, 2004 6:46 am
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- 0 Replies
- 2241 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:55 pm
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- 0 Replies
- 2408 Views
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Last post by VirtuallyFine
Thu Apr 01, 2004 7:52 pm
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freud was wrong about transference
Replies: 5
by
VirtuallyFine » Mon Mar 15, 2004 5:59 pm
First post
so...tomorrow i go to see my neuro. i am so excited to see him again. it has been several years; however, we do bounce e-mail to each other. of all...
Last post
May I Say It AGAIN?
I LOVE MY NEURO!!
- 5 Replies
- 2967 Views
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Last post by VirtuallyFine
Sat Mar 20, 2004 7:54 am
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Disney and Segway scooters
Replies: 3
by
Niko » Mon Feb 09, 2004 8:38 am
First post
I just came across a news story just posted this morning on CNN.com
Disney turns away visitors on Segways
Apparently, Disney does not allow...
Last post
hi vikki,
i'm glad u enjoyed your time at the Mouse house lol, and i definitely agree that no one should let MS interfere with their vacation trips,...
- 3 Replies
- 2719 Views
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Last post by guest
Wed Mar 10, 2004 3:13 pm
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Brusing
Replies: 5
by
dawny » Sat Mar 06, 2004 5:30 pm
First post
Hi, I've been on rebif since Jan. and my questions is does anyone else bruise bad after the shot (we use the auto injector) I had one in my stomach...
Last post
Diane, Thank you for the information.
VirtuallyFine, I also have the red welts my husband has tried to keep the injecter away form my skin and it is...
- 5 Replies
- 3232 Views
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Last post by dawny
Mon Mar 08, 2004 9:31 am
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Anyone out there in this Study???
Replies: 2
by
fightingms » Fri Mar 05, 2004 6:14 pm
First post
Hi All... Here is some info for you. I guess I am the controlled Study. I am about to enter the ACT Clinical Trial Study.
It is a two year double...
Last post
Hi Sharon,
It is my understanding that it is national. I guess I am just nervous because I have never been in a study before.
Methotrexate.....my...
- 2 Replies
- 2892 Views
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Last post by fightingms
Mon Mar 08, 2004 5:55 am
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Does anyone have trouble sleeping?
Replies: 8
by
kinch52 » Tue Jan 06, 2004 9:47 am
First post
:?: I have a alot of trouble with chronic pain & it wakes me up every night! I am a side sleeper & just can't learn to sleep on my back. So, I try to...
Last post
Thanks Sharon. :wink:
I always thought I would buy direct from the factory. There is a Sleepy Hollow here that sells Tempurpedics.......I guess I...
- 8 Replies
- 4705 Views
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Last post by fightingms
Wed Mar 03, 2004 5:43 am
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Has this ever happened to you...
Replies: 4
by
OneEyeBlind » Mon Mar 01, 2004 9:44 am
First post
My Specialist feels that I probably have MS. ??The good one.?? Mild in frequency. He told me that if I chose I could start on medication but he...
Last post
Just some more food for thought...in Canada (and I believe other countries) there was a push by the Dr's to have the interferons approved to PREVENT...
- 4 Replies
- 3469 Views
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Last post by VirtuallyFine
Tue Mar 02, 2004 4:14 pm
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Great Website
by
MAUNTIE » Sat Feb 21, 2004 5:07 am
:lol: Great site to visit for information, humor, coping, etc.
Multiple Sclerosis sucks.com
I have used it and passed it to my friends and family...
- 0 Replies
- 2476 Views
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Last post by MAUNTIE
Sat Feb 21, 2004 5:07 am
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Not Much Going On
Replies: 6
by
crispy » Sun Feb 01, 2004 10:27 am
First post
Hi all, :D
I've been checking the forum on and off all day (Sunday) but there's not much going on. I keep being told there are (up to 13) guests...
Last post
Hi Niko, :D
The site is about three months old and it's popularity grows each day.
It certainly does, and the more family members recommend it to...
- 6 Replies
- 3346 Views
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Last post by crispy
Tue Feb 10, 2004 6:52 am
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Devic's syndrome
Replies: 3
by Karla » Thu Feb 05, 2004 6:59 am
First post
Can anyone tell me anything about Devic's? Do you know anyone who has had it? Treatment? etc.
Last post
Hi again Karla, :D
Thanks for coming back to tell us about things, so often things are just left up in the air.
Let's hope that any diagnosis was...
- 3 Replies
- 3160 Views
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Last post by crispy
Sat Feb 07, 2004 6:20 am
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no drugs question
Replies: 14
by
jdcolette » Mon Dec 15, 2003 3:36 pm
First post
i have had RRms for 10 years. i tried betaseron for 2 yrs. didnt seem to make a difference. I have 2 or 3 attacks a year. I am very skeptical of the...
Last post
As far as I know, there is no way we can tell, no litmus test.
I have PPMS after being DX with RRMS at first, and a now an MS Ambassador (public...
- 14 Replies
- 5842 Views
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Last post by mswp
Fri Feb 06, 2004 3:35 am
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Which ONE Symptom Would You Love To Do Away With?
Replies: 22
by
Bonnie » Mon Dec 29, 2003 9:47 am
First post
For me, it would be FATIGUE! If I was just exhausted I could handle it, but there is nothing like MS Fatigue to knock me off my feet.
But running a...
Last post
Hi Aikika. :D
I sympathise with your problems - I can't come up with a solution for your guitar playing, but the creative writing should still be...
- 22 Replies
- 8376 Views
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Last post by crispy
Fri Feb 06, 2004 3:32 am
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Do You Remember To Check The Other Forums?
Replies: 3
by
Bonnie » Wed Feb 04, 2004 6:15 am
First post
I just realized how often I forget that this board is broken up into different forums for specific issues.
I will have to make a conscience effort...
Last post
Okay.
On the main page forum page ThisIsMS.com Forum
Just above the listing of all the forums you'll see to the *left* the time/day of your...
- 3 Replies
- 3253 Views
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Last post by Niko
Wed Feb 04, 2004 1:37 pm
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no ejaculation
Replies: 1
by paul32 » Tue Feb 03, 2004 8:51 am
First post
Yes its the MS and sex thing again. I have had MS for 13 years and I'm now at the stage where I can take an erection and maintain it ok but seem to...
Last post
Hi paul32,
I have a similar situation, but rather than a medication to cure the problem, mine is caused by taking a medication to relieve frequent...
- 1 Replies
- 2923 Views
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Last post by crispy
Tue Feb 03, 2004 9:33 am
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Board rules questions
Replies: 5
by
Ptwo » Sat Jan 03, 2004 2:21 am
First post
Maybe I've missed it but I don't don't see any link to what the rules of this board may be. Is everything fair game? Can we post links to other sites...
Last post
Sorry, but *LOL* - Love it....
pafo#1
(pa from OZ#1)
- 5 Replies
- 3757 Views
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Last post by mswp
Sat Jan 31, 2004 5:55 pm
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I like the journal feature on this site...
Replies: 2
by
susannah » Wed Dec 24, 2003 10:17 pm
First post
Hi. Just wanted to feedback that i think the journal feature on this site is excellant! I only recently asked my sister how i could go about setting...
Last post
I stumbled on to the journal page a couple of days ago too. How cool!!! I didn't realize it could be public or private though, so thanks for the...
- 2 Replies
- 2694 Views
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Last post by Bonnie
Thu Dec 25, 2003 3:58 pm
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An unbiased forum a refreshing change!
Replies: 2
by
susannah » Thu Dec 18, 2003 7:37 pm
First post
Hi my name is Susannah, i am 33 years old and i have rrms. It is awesome to be able to post on a board that is not being monitored by the drug...
Last post
Hi Elaine! It is a small world. Good to get an unbiased view of ms, without the agenda of the drug companies being present! Aussies have always had a...
- 2 Replies
- 3198 Views
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Last post by susannah
Fri Dec 19, 2003 5:34 pm
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I like what I see here!
Replies: 1
by Guest » Fri Dec 19, 2003 7:18 am
First post
Just found this site!
Hope to see a lot more activity on this
board in 2004!
Cheers! :D
Last post
Hi Guest, I like what I see here too! :lol:
I also hope it picks up and stays busy. It is different from most MS boards, some added features I...
- 1 Replies
- 3147 Views
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Last post by Bonnie
Fri Dec 19, 2003 1:05 pm
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Hughes Syndrome mimics MS ...
Replies: 3
by
pinpricks » Tue Mar 31, 2009 10:16 am
First post
HI
You may, some of you, take a look at this and ask your doc, unless you had a really clear diag.
Also
Some peoples have been misdiagnosed...
Last post
wow that sounds like me. 2 times they thought I had a pulmonary embolism and another time DVT , all due to my bloood. I have a high D-Dimer count and...
- 3 Replies
- 2113 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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The problem with all the MS-pregnancy press
Replies: 2
by
Punchy » Tue Mar 31, 2009 9:41 am
First post
I need to rant! Too many people are reading about damn MS and pregnancy.
So now everyone thinks it goes away completely when you're pregnant and...
Last post
there was some girl a year or two ago that was in one of the forums. She had relspase after relapse during her pregnancy. I never followed up to see...
- 2 Replies
- 1375 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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Numb patch
Replies: 10
by Guest » Mon Feb 09, 2009 1:58 pm
First post
My last attack a year ago I had a numb spot above my left knee. I could feel the skin but the muscle underneath felt numb, that sensation comes and...
Last post
It's gotten better, gone away now
Actually my name is Petdakitty, I forgot to type in the d when I registered. it's my gaming name. I play warhammer...
- 10 Replies
- 2279 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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My MS Mis-Diagnosis please read!!!
Replies: 59
by
pegs » Tue Mar 25, 2008 3:31 pm
First post
I will get tested for Lyme disease....it makes sense to me because all my symptoms of MS started again when I stopped taking antibiotics(for acne)...
Last post
P-Kitty:
Sorry for more questions, but why did the CDC get involved? I can understand if you tested positive on a standard lab's Western Blot, then...
- 59 Replies
- 13851 Views
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Last post by Guest
Wed Dec 31, 1969 4:00 pm
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