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Last post

Coronavirus (COVID-19): What You Need To Know

Last post by NHE « Mon Aug 03, 2020 1:09 pm
Posted in General Discussion
Replies: 147
by jimmylegs » Sun Mar 15, 2020 4:10 am » in General Discussion
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First post

What You Need To Know About Coronavirus (COVID-19)

What does COVID-19 mean for people living with MS? Many disease modifying therapies (DMTs) for...

Last post

One Man's COVID-19 Death Raises The Worst Fears Of Many People With Disabilities
July 31, 2020 3:29 PM ET

What Melissa Hickson says happened to...
147 Replies

15776 Views

Last post by NHE
Mon Aug 03, 2020 1:09 pm

Topics

Replies

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Last post

TEDx - When Change is not a Choice

Last post by robbie « Tue May 02, 2017 7:51 am
Replies: 3
by jimmylegs » Fri Apr 14, 2017 10:51 am

First post

TEDx - When Change is not a Choice

Last post

if only it was one or two changes and not a lifetime of change without a choice.

3 Replies

2795 Views

Last post by robbie
Tue May 02, 2017 7:51 am
Smart Phones

Last post by NHE « Sun Apr 09, 2017 11:04 pm

by NHE » Sun Apr 09, 2017 11:04 pm

The first segment of this Sunday's episode of 60 Minutes is a must see.
It discusses how smart phones, and their apps, are deliberately made to be...

0 Replies

2240 Views

Last post by NHE
Sun Apr 09, 2017 11:04 pm
hurt myself :S

Last post by jimmylegs « Fri Apr 07, 2017 11:25 am
Replies: 2
by jimmylegs » Mon Mar 13, 2017 6:14 pm

First post

have been gimping around for a week on a painful foot. it was garbage day a week ago, and first thing in the am i heard the truck coming. i tried to...

Last post

hi i called the doc and they said they couldn't give me odds on whether the advice would be to just rest it, if i came in again. i was busy so...

2 Replies

2400 Views

Last post by jimmylegs
Fri Apr 07, 2017 11:25 am
new shellfish record!

Last post by Boudreaux « Thu Feb 02, 2017 5:44 am
Replies: 3
by jimmylegs » Mon Jan 02, 2017 1:38 pm

First post

i finally did it. i am not there with the clam and oyster chowder yet, but i ate clam chowder (at 30% standard clam density) and a single smoked...

Last post

Crack dem oyster shells open and suck dat muscle out, ain't nothing like some fresh raw oysters potna.

3 Replies

2507 Views

Last post by Boudreaux
Thu Feb 02, 2017 5:44 am
anyone like me?

Last post by robbie « Tue Jan 31, 2017 8:06 am
Replies: 4
by cas » Tue Jun 07, 2016 10:02 am

First post

It has been almost two decades. Drugs, no drugs and drugs again. Therapy, therapy and more therapy. Drop foot and though FES gave me hope at one time...

Last post

Its just a pretty grim look, I have a way out I'm was always thinking what if I'm so bad I can't even do it, I've spent the last 23 years adapting to...

4 Replies

2893 Views

Last post by robbie
Tue Jan 31, 2017 8:06 am
Diagnosed in Oct., and wanting to try to have a baby soonish

Last post by jimmylegs « Sun Jan 29, 2017 8:06 am
Replies: 17
by AudRiddle » Fri Jan 27, 2017 7:48 am
1

2
First post

I am 31 and was diagnosised in Oct of 2016. According to my scans with several lesions (only one showing damage) I have had MS for while. I am on...

Last post

if you can get in with a dietitian, someone who can review a 3 day diet diary, they should be able to give you some good advice. also if you are...
17 Replies

4688 Views

Last post by jimmylegs
Sun Jan 29, 2017 8:06 am
A Bill of Mortality for the Town of Salem, for the Year 1782

Last post by jimmylegs « Mon Jan 23, 2017 7:24 am

by jimmylegs » Mon Jan 23, 2017 7:24 am

no daily challenges, just pretty interesting stuff :)

0 Replies

2081 Views

Last post by jimmylegs
Mon Jan 23, 2017 7:24 am
Trying to cope

Last post by jimmylegs « Tue Jan 10, 2017 1:16 pm
Replies: 1
by jkang » Mon Jan 09, 2017 12:10 am

First post

Hi everyone,

I was diagnosed with ms almost exactly a year ago at the age of 25. And there have been many changes within this year. I think the...

Last post

hi :) if you are willing to put in some effort, at a minimum there should be some ways to improve diet and lifestyle, with possible benefits to your...

1 Replies

2243 Views

Last post by jimmylegs
Tue Jan 10, 2017 1:16 pm
Walking Boots For People With Footdrop ??'s

Last post by NancyBlues « Thu Dec 01, 2016 3:00 pm
Replies: 7
by harry1 » Tue Sep 06, 2011 8:31 am

First post

I'm curious if anyone on here with weak ankles along with foot drop wears some type of walking boots to help support your ankles and keep the feet...

Last post

Hi, I broke my back in 1981 and the only shoes/boots that work for me and make me as mobile as possible are women's tactical boots that I buy at Big...

7 Replies

10909 Views

Last post by NancyBlues
Thu Dec 01, 2016 3:00 pm
Those with writing/drawing problems

Last post by ElliotB « Mon Nov 21, 2016 3:51 am
Replies: 7
by MSyborg » Tue Nov 15, 2016 5:23 pm

First post

Is it common to lose your ability to write or draw with multiple sclerosis since its possible? If you had that kind of bad luck, how do you deal with...

Last post

Medicaid is a federal program.

Here is a link to Social Services in Missouri, they can assist you further:

If you are unable to make phone calls...

7 Replies

2474 Views

Last post by ElliotB
Mon Nov 21, 2016 3:51 am
Potential New Symptoms

Last post by littlestbabie « Thu Sep 08, 2016 12:37 pm
Replies: 8
by littlestbabie » Thu Sep 01, 2016 1:26 pm

First post

I've been having a helluva time lately. I've been on Tecfidera for months now - probably about four, and it's only recently that I've been...

Last post

Thank you Lyndacarol!! I appreciate all of your input throughout this thread. I’m planning on keeping up with my 10,000 IU/day vitamin D dosage,...

8 Replies

3095 Views

Last post by littlestbabie
Thu Sep 08, 2016 12:37 pm
Muscle Fatigue

Last post by LizardKing « Fri Aug 12, 2016 6:33 am
Replies: 1
by Boudreaux » Sat May 14, 2016 2:48 pm

First post

So I've noticed lately that along with the pain in my left arm and leg that my muscles seem to get fatigued really fast lately. Holding something...

Last post

I am not diagnosed but it doesn't take long for me to get that fine muscle burn.
Best I can find it is called exercise fatigue and I have been...

1 Replies

2535 Views

Last post by LizardKing
Fri Aug 12, 2016 6:33 am
Anonymous survey for my master's thesis

Last post by Celinou « Wed Jul 20, 2016 6:55 am

by Celinou » Wed Jul 20, 2016 6:55 am

Hello Madam, Sir,

My name is Céline, a French-speaking student in final year of Executive Secretariat medical option. (Sorry for my Engels)

My...

0 Replies

2191 Views

Last post by Celinou
Wed Jul 20, 2016 6:55 am
I made a movie with other MS people

Last post by lyndacarol « Sun Jul 03, 2016 11:17 am
Replies: 2
by Miia » Fri Jun 24, 2016 1:13 am

First post

I wanted to show people MS does not have to stop you living. You can still live and do things even though you're retired or sitting in wheelchair...

Last post

I wanted to show people MS does not have to stop you living. You can still live and do things even though you're retired or sitting in wheelchair...

2 Replies

2414 Views

Last post by lyndacarol
Sun Jul 03, 2016 11:17 am
B6 vitamin high

Last post by Stillhaha « Wed Jun 29, 2016 10:35 am
Replies: 1
by shaypay20 » Fri Mar 25, 2016 9:00 pm

First post

Anyone have a high blood work for b6?

Last post

Take notes daily about your symptoms. Having a stack of notecards helps punctuate your claim. Even if nothing changes among them, that demonstrates...

1 Replies

2672 Views

Last post by Stillhaha
Wed Jun 29, 2016 10:35 am
Big Data

Last post by NHE « Wed Jun 15, 2016 1:46 am

by NHE » Wed Jun 15, 2016 1:46 am

Some time ago I discussed problems with Facebook . However, Facebook is just a symptom of a much larger issue.

Here's an interesting documentary...

0 Replies

2251 Views

Last post by NHE
Wed Jun 15, 2016 1:46 am
So, what is the most affordable treatment for MS?

Last post by Stillhaha « Thu Jun 02, 2016 6:51 pm
Replies: 23
by Netbe » Tue Dec 11, 2012 5:45 pm
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2
First post

Hey all, recently made a longer post about this in the introductions thread, but to make a long story short, my wife has been suddenly been diagnosed...

Last post

Inclined Bed Therapy is the most affordable treatment for MS. Search for it on YouTube or Facebook. It involves a one-time investment.
23 Replies

12382 Views

Last post by Stillhaha
Thu Jun 02, 2016 6:51 pm
Horrible Spasticity

Last post by lyndacarol « Wed May 18, 2016 2:06 pm
Replies: 4
by natashap » Wed May 18, 2016 6:45 am

First post

I've been dealing with horrible spasticity since April and has gotten worse. I don't sleep much anymore at night and I work full time. My MRI shows...

Last post

I've had numerous bloodwork and vitamin deficiency tests (even very recently), and all comes back completely normal .

…

My current vitamins are as...

4 Replies

2859 Views

Last post by lyndacarol
Wed May 18, 2016 2:06 pm
Natural help for bladder issues

Last post by Vivianne766 « Thu Mar 24, 2016 1:55 pm
Replies: 1
by kw202 » Tue Jan 05, 2016 12:36 pm

First post

I've developed what is for me a mostly-annoying heightened sense of having urine in my bladder. It's like my bladder muscle says hey guess what, you...

Last post

Good info. Tnx.
Also stay away from sugar.
Corn syrup is bad and it's everywhere. :(
Artificial sugar is poison.

1 Replies

2707 Views

Last post by Vivianne766
Thu Mar 24, 2016 1:55 pm
MS and goofing around with it with friends

Last post by ElliotB « Sat Feb 27, 2016 4:41 am
Replies: 2
by nomisz » Fri Feb 26, 2016 7:08 pm

First post

Hello guys,
I wanted to know if some of you let your friends joke around with your MS. Well, I let my friends do it at first after I got diagnosed....

Last post

I would not tolerate it but it is likely that they don't mean any harm and are perhaps trying to cheer you up and/or don't really know how to respond...

2 Replies

2712 Views

Last post by ElliotB
Sat Feb 27, 2016 4:41 am
oh boy new old learning curve

Last post by jimmylegs « Fri Feb 26, 2016 6:31 pm

by jimmylegs » Fri Feb 26, 2016 6:31 pm

i have been haphazardly rehabbing a reconstructed ACL and torn MCL since about this time 2013 and most recently got into the local rock climbing gym....

0 Replies

2385 Views

Last post by jimmylegs
Fri Feb 26, 2016 6:31 pm
Bladder issues?

Last post by miri « Fri Feb 12, 2016 1:20 pm
Replies: 9
by NiftyBunny » Sat Sep 22, 2012 5:41 am

First post

Hi all,
I'm a little concerned. I have never had bladder issues (except when I was pregnant of course). But last night, while I was sleeping, I peed...

Last post

D mannose powder helps prevent UTIs better than cranberries pills or juice

All D-mannose did for me was cause me bad headaches - ditto re:...

9 Replies

5103 Views

Last post by miri
Fri Feb 12, 2016 1:20 pm
MS has changed me

Last post by Jaded « Thu Jan 21, 2016 8:41 am
Replies: 10
by Jaded » Mon Jul 06, 2015 1:05 pm

First post

I realised this today. Ok so I knew it all along - all life events do this. But I am a shadow of my former self.

I have no shine, no bubbles left....

Last post

Thank you for your replies.

I have fleeting moments when I remember how I felt before - and that makes me sad. But I don't give up. Because you...

10 Replies

3877 Views

Last post by Jaded
Thu Jan 21, 2016 8:41 am
Accommodations at work

Last post by NHE « Sat Jan 16, 2016 10:44 pm
Replies: 7
by beera » Wed Nov 04, 2015 4:49 pm

First post

Hi, I'm new here, but found this forum years ago and remembered it now.

My DH has MS. He was diagnosed in 2009. He'd worked in the same industry...

Last post

I believe it might be best to apply for SSDI now, rather than to wait. You should seek the advise of an attorney.
Agreed. SSDI works on a point...

7 Replies

3220 Views

Last post by NHE
Sat Jan 16, 2016 10:44 pm
Husband is not supportive whatsoever

Last post by StaryNight « Sun Jan 10, 2016 7:46 pm
Replies: 5
by michellemart » Tue Mar 10, 2015 8:54 am

First post

:cry: Okay so I'm new to this site, and haven't ever posted on any kind of forum before but I don't know what else to do.
I'm 27, married with an...

Last post

I agree with maybe bringing him to a good doctor that can explain it all to him. Very sad that he is not supportive but I wonder if maybe he's...

5 Replies

4193 Views

Last post by StaryNight
Sun Jan 10, 2016 7:46 pm
Stiffness in right leg

Last post by aplkwst1 « Sun Jan 10, 2016 3:26 pm
Replies: 15
by limpyboy » Tue Oct 20, 2015 9:49 am
1

2
First post

Hi,
I am a new one here as a user, so please accept my apologize if i am doing something wrong.
I have MS since 2006, so almost ten years. A couple...

Last post

I can jog and that does help with tightness I feel in my right leg knee down. I feel it during my jog but stretching before improves it greatly. I...
15 Replies

5708 Views

Last post by aplkwst1
Sun Jan 10, 2016 3:26 pm
I am wondering how much MS will limit my future

Last post by aplkwst1 « Sun Jan 10, 2016 3:13 pm
Replies: 7
by skinnyscarecrow » Fri Oct 24, 2014 2:50 pm

First post

I'm in my early 20s and I'm afraid I won't be able to do what I want to do. (whatever that may be). I am afraid for my future and I no longer have...

Last post

Oh also just thought about another. Neil Cavuto of Fox News is the VP of the network and he has MS....

7 Replies

4080 Views

Last post by aplkwst1
Sun Jan 10, 2016 3:13 pm
Sleep Problems

Last post by aplkwst1 « Sun Jan 10, 2016 2:59 pm
Replies: 7
by buygirl » Mon Jul 07, 2014 3:51 pm

First post

I was wondering if their was anything natural to help me with sleeping thru the night.
I do take Magnesium at night but I am not sure that helps at...

Last post

In my experience the only thing that has worked for me is Sleep Aid gels, they are non addictive and my Dr. is fine with me taking it every night....

7 Replies

3813 Views

Last post by aplkwst1
Sun Jan 10, 2016 2:59 pm
Symptoms worse during menstruation?!

Last post by aplkwst1 « Sun Jan 10, 2016 2:51 pm
Replies: 7
by Jevoni » Mon Mar 24, 2014 10:42 pm

First post

I'm relatively new to this MS thing (February 9th start).

I have only ever had one period, since the symptoms started.The last period, I was in the...

Last post

I do experience some symptoms that do not appear otherwise during the first week prior to my period (infrequently). My Dr. previously had me on bio...

7 Replies

8267 Views

Last post by aplkwst1
Sun Jan 10, 2016 2:51 pm
Who to tell? What to tell? How much to tell?

Last post by aplkwst1 « Sun Jan 10, 2016 2:35 pm
Replies: 6
by Trevvian » Mon Aug 26, 2013 3:29 pm

First post

Just diagnosed 6 weeks ago & I pretty much blurted to everyone I know. Well, that's exaggerating, but I told 4 people at work, 4 at church, a support...

Last post

I have only told my family and a few very close friends and my husband. I don't have any noticeable symptoms so I can still get away with not telling...

6 Replies

3960 Views

Last post by aplkwst1
Sun Jan 10, 2016 2:35 pm
Happy Holidays!

Last post by NHE « Tue Dec 22, 2015 10:07 pm

by NHE » Tue Dec 22, 2015 10:07 pm

0 Replies

2462 Views

Last post by NHE
Tue Dec 22, 2015 10:07 pm
Please help my research !

Last post by valhala « Sun Nov 29, 2015 4:19 am

by valhala » Sun Nov 29, 2015 4:19 am

The survey is closed now, thank you so much for your participation :)

Hi everyone :)
I am a student at the Open university, and for my project I...

0 Replies

2661 Views

Last post by valhala
Sun Nov 29, 2015 4:19 am
Disabled welfare in your country

Last post by Algis « Mon Oct 26, 2015 10:31 pm
Replies: 2
by Algis » Sat Oct 24, 2015 6:55 am

First post

Hi Fellow MS'ers

I am not new here nor with MS (Dx 1998 MSSP actually EDSS ~8~)
I reside since almost 30 years in a country (Taiwan) where the...

Last post

Thanks Buddy, pretty informative :)

2 Replies

2681 Views

Last post by Algis
Mon Oct 26, 2015 10:31 pm
Facebook?

Last post by NHE « Sat Sep 26, 2015 5:13 am
Replies: 14
by NHE » Mon Jun 21, 2010 12:02 am

First post

Time magazine ran an interesting article on Facebook. It turns out that Facebook is an advertising company in disguise. It's members share and they...

Last post

Facebook's members are the product that Facebook sells. So, what are you worth to Facebook? The average member in North America is worth about...

14 Replies

8620 Views

Last post by NHE
Sat Sep 26, 2015 5:13 am
Using a catheter

Last post by Quest56 « Thu Aug 27, 2015 6:06 pm
Replies: 2
by whiteflag » Fri Dec 13, 2013 4:03 pm

First post

Hi guys,

This question is directed to those who use or have ever used (even if just once) a catheter for urinary issues.

I'm a 41-yr old guy and...

Last post

Reason is this: I'm r.r.m.s but I have chronic urinary hesitancy as well as retention. It takes me ages to start and before two hours I have to go...

2 Replies

3536 Views

Last post by Quest56
Thu Aug 27, 2015 6:06 pm
UTI TMI

Last post by jimmylegs « Sun Jul 12, 2015 8:45 am
Replies: 7
by jimmylegs » Sat Jun 13, 2015 4:24 am

First post

so, i just had a few days of increasing urinary frequency and issues w urgency. it was interfering with my day to day activities and i didn't take...

Last post

haven't tried that myself, although it makes sense that it would do something.

i'm still muddling along with zinc and selenium and things still seem...

7 Replies

3191 Views

Last post by jimmylegs
Sun Jul 12, 2015 8:45 am
Out of control drug costs

Last post by NHE « Mon May 18, 2015 10:33 pm

by NHE » Mon May 18, 2015 10:33 pm

MS drugs are expensive and getting more so every year. However, the problem of out of control drug costs is not limited to just MS drugs. It's a...

0 Replies

2448 Views

Last post by NHE
Mon May 18, 2015 10:33 pm
The thrill is gone

Last post by NHE « Sat May 16, 2015 12:07 am

by NHE » Sat May 16, 2015 12:07 am

Chairman of the board B.B. King has died at the age of 89.

0 Replies

2326 Views

Last post by NHE
Sat May 16, 2015 12:07 am
abstract accepted!

Last post by Fayruz « Sat May 09, 2015 10:39 am
Replies: 8
by jimmylegs » Sat Apr 11, 2015 7:32 am

First post

headed to an international conference to present later this year :)

Last post

Congrats! :)

8 Replies

2598 Views

Last post by Fayruz
Sat May 09, 2015 10:39 am
Fatigue and cleaning the house... Any tips?

Last post by Fayruz « Sat May 09, 2015 10:38 am
Replies: 8
by desmalia » Sun Jun 24, 2012 4:40 pm

First post

I've been taking stock of what my daily tasks are and how I can best prioritize them so that I don't overdo it so badly anymore. This has come about...

Last post

I made a little pact with myself regarding cleaning...on days that I am tired I decide to order food in and in that time that takes them to deliver...

8 Replies

5064 Views

Last post by Fayruz
Sat May 09, 2015 10:38 am
Insurance being a poop

Last post by younglady « Tue Apr 07, 2015 12:52 pm

by younglady » Tue Apr 07, 2015 12:52 pm

Hi, how do you guys deal with your insurance being a giant poop monster? :crazy:
I'm undiagnosed by my neurologist who says it's probably MS we just...

0 Replies

1995 Views

Last post by younglady
Tue Apr 07, 2015 12:52 pm
I'm looking for friends

Last post by Erik « Fri Mar 20, 2015 4:14 am

by Erik » Fri Mar 20, 2015 4:14 am

Hi everyone! I live in Russia. I have multiple sclerosis for 9 years. I learn English and I'm looking for friends in different countries. I'll be...

0 Replies

2237 Views

Last post by Erik
Fri Mar 20, 2015 4:14 am
C/D = Pi

Last post by NHE « Fri Mar 13, 2015 10:53 pm

by NHE » Fri Mar 13, 2015 10:53 pm

Pi Day: Circle Your Calendar -- Once-in-a-Century Day Coming This Weekend

This Saturday at 9:26 AM and 53 seconds a once in a century event will...

0 Replies

1849 Views

Last post by NHE
Fri Mar 13, 2015 10:53 pm
woot woot!!

Last post by jimmylegs « Mon Jan 19, 2015 10:43 am
Replies: 8
by jimmylegs » Fri Jan 16, 2015 1:32 pm

First post

just scored a big ass chunk of funding. it's been a long time coming. yessss!!

Last post

thank you :D

8 Replies

2282 Views

Last post by jimmylegs
Mon Jan 19, 2015 10:43 am
Tysabri costs vary dramatically.

Last post by odin1243 « Wed Dec 31, 2014 2:34 pm

by odin1243 » Wed Dec 31, 2014 2:34 pm

Have you found that the costs of Tysabri can vary dramatically , depending on insurance coverage and/or location?

0 Replies

2072 Views

Last post by odin1243
Wed Dec 31, 2014 2:34 pm
Lasic eye correction

Last post by Jimpsull « Sun Dec 28, 2014 2:56 am

by Jimpsull » Sun Dec 28, 2014 2:56 am

I've always wanted to get my vision surgically corrected. At the consultation the surgeon said MS precludes me from lasic because I may move during...

0 Replies

1838 Views

Last post by Jimpsull
Sun Dec 28, 2014 2:56 am
Flu and then??

Last post by vesta « Tue Dec 02, 2014 8:34 am
Replies: 2
by TonyNZ » Wed Nov 26, 2014 10:30 pm

First post

Hi There,

PPMS sufferer

I recently got the winter flu bug that was doing its rounds here in NZ. Boy did it work a number on me! Literally took my...

Last post

Greetings:
Viruses trigger muscle cramps which impede fluid flows which is enough to cause blood refuxes into the central nervous system (CCSVI) as...

2 Replies

1843 Views

Last post by vesta
Tue Dec 02, 2014 8:34 am
Weather the storm..

Last post by TonyNZ « Fri Nov 21, 2014 12:15 pm

by TonyNZ » Fri Nov 21, 2014 12:15 pm

Hi There,

Going through these pages it is a relief to see that other people have the same curious problem as do I. Namely, that whenever the weather...

0 Replies

1676 Views

Last post by TonyNZ
Fri Nov 21, 2014 12:15 pm
Something positive

Last post by THX1138 « Fri Sep 12, 2014 3:09 pm
Replies: 7
by Punchy » Fri Sep 12, 2014 5:47 am

First post

All I do on here is vent or complain, and love that I van do that here, but for once I can post something positive.

I received results from my...

Last post

The problem with this is that there is really no way of knowing what actually causes someone to improve.
I see your point.
I think that is all too...

7 Replies

1999 Views

Last post by THX1138
Fri Sep 12, 2014 3:09 pm
I need a pair of glasses but I cannot adopt them

Last post by lyndacarol « Fri Sep 12, 2014 2:32 pm
Replies: 3
by dibidibi » Mon Aug 18, 2014 1:00 pm

First post

Hello,

I have been diagnosed MS 14 years ago and using betaseron for 13 years. One of my first attacks was from my right eye and at first minute I...

Last post

Hello, dibidibi.

Your vision problem may not be related to your MS diagnosis at all.

From page 50 in the book, Could It Be B12? An Epidemic of...

3 Replies

1923 Views

Last post by lyndacarol
Fri Sep 12, 2014 2:32 pm

New Topic

399 topics

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