Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
http://csvi-ms.net/en/content/american- ... 7-apr-2010
- cheerleader
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- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
Welcome, Hockey Dad-
thanks for the link to the meeting...lots of CCSVI information will be presented. I'd write more, but I just scrolled up and looked at NHE's new pic, and I think I'm started to seize

take care,
cheer
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Re: skeptical neurologist
Hi hotmama,1hotmama wrote:I asked my neurologist about Dr. Zamboni's research and he called it, "Zamboni's Balogna". I felt very patronized and was disappointed with his whole attitude. He was more concerned with talking me into trying tysabri which I turned out to be allergic to. He also suggested a !#$%! shrink because my headache never goes away.
Has anyone encountered this type of disbelief from our so called "educated" neurologists in the US?![]()
Not only in the US here in Ireland my granddaughter (a First Class Honours Graduate) got the same response but we will have the last laugh when they all have to eat coke!!!
harryp
- Saskatoongal
- Getting to Know You...
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- Joined: Thu Mar 18, 2010 3:00 pm
CCSVI testing
Re: CCSVI testing
I've been there, had the scans, and can recommend it.Saskatoongal wrote:I am wondering has anyone received any testing or has knowledge of the CCSVI testing at the False Creek Health Clinic in BC. I have been doing research and sounds like an interesting place to see if one meets the criteria of CCSVI.
Best of Luck!
- Saskatoongal
- Getting to Know You...
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- Joined: Thu Mar 18, 2010 3:00 pm
BC testing

- kevin4apenny
- Getting to Know You...
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- Joined: Sat Mar 06, 2010 3:00 pm
Cheerleader and 1hotmama, I totally agee re the patronising

I have written to my GP insisting on a 'dianosis for VENOUS BLOCKAGE which would be dangerous'so that if they deny me this right I will SUE the HEALTH BOARD. The doc listened to my jugular vein..??could she tell which DIRECTION it was floweing in



Akl the best guys
Kev
CCSVI Liberation Treatment
However, the doctor has informed us that he cannot accept any referrals.
He did however say that if a nuero referred a patient when everything else has failed he would of course be willing to go forward with the treatment.
My wife my the way is very happy and her quality of life has improved greatly.
I believe in going local its faster but not without its problems, we have been lucky. We had local MRVs that were inconclusive, and were referred to Stanford for additional MRVs. These showed blockage. Based on Standfords MRV we were able to get the angioplasty.
I have written you a private message about the kinds of action a group of people are taking in the UK...kevin4apenny wrote:
I have written to my GP insisting on a 'dianosis for VENOUS BLOCKAGE which would be dangerous'so that if they deny me this right I will SUE the HEALTH BOARD. The doc listened to my jugular vein..??could she tell which DIRECTION it was floweing in![]()
Is there anyone else here from the UK that has just joined in the last month or so? Please come and see what we are up to... at
http://www.facebook.com/ms.ccsvi.uk
We also have a website:
http://www.ms-ccsvi-uk.org
We are a pressure group trying to change things in the UK but we need many more people to join us to have a real voice here. We especially need many people to join from Scotland. Although we are a web based group we can't seem to reach the Scots. Don't know why... as I am married to one and have a half Scottish daughter with MS, so feel very connected to MS Scots.
Please get in touch with me, email address is below
I can't get an appointment, never mind soon. I know I have CCSVI from Doppler test results.
It's just torture not being able to sleep (spasms), eat (I choke) or walk (paralysis).
I can't handle long travel. Albany, NY (where Dr Siskin is located) is far enough for me.
Thnak you sooo much.
I appreciate your help,
Sofia K
http://www.springerlink.com/content/p4w0271q176247t0/
So it was well known but kept under cover until Zamboni finally ripped the lid off .
Read more: http://www.cbc.ca/health/story/2010/06/ ... z0rP1Y6DDx
<shortened url>
There's all sorts of stuff about iron pre-Zamboni.
- cheerleader
- Family Elder
- Posts: 5359
- Joined: Mon Sep 10, 2007 2:00 pm
- Location: southern California
You're right---iron has been studied in MS brains for over 30 years. Dr. Mark Haacke writes about this on his site---the thing is, there has never been a good explanation as to why the iron is deposed in the thalamus and along the venous structure of the brain, until Dr. Zamboni's work.concerned wrote:I don't think anyone denied iron deposits in MS patients.
<shortened url>
There's all sorts of stuff about iron pre-Zamboni.
http://www.ms-mri.com/presentations.php
cheer
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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