CCSVI - Aussie Action!

[hwebb]

yeah - my hubby was watching "Sunday Night" current affairs, on channel 7 at 6.30pm tonight. He said they did a quick preview on a storey coming up. He thought the storey would be on the 6 o'clock news tomorrow (Monday night) ...which seems a bit weird. Maybe it was a preview for the "Sunday Night" episode on 18th April ?

[kezzcass]

Prof. T intends to consult with neurologists at the end of the pilot clinical trial.....could take quite a while to put together a joint research proposal - and very challenging to structure it!! I can't imagine many people would be stepping up to be controls! I can appreciate fully why further trials needs to occur, but it's going to be difficult to wait!

Regards.......Smokey

I reckon there would be many family and friends who would volunteer to be controls!!!

[dialed_in]

Hey Kerri, you were on my tv last night here in Canada. One other Aussie too by the sound of his accent. They used bits from your youtube videos for the story on W5.

http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5

[smokey]

Prof. T intends to consult with neurologists at the end of the pilot clinical trial.....could take quite a while to put together a joint research proposal - and very challenging to structure it!! I can't imagine many people would be stepping up to be controls! I can appreciate fully why further trials needs to occur, but it's going to be difficult to wait!

Regards.......Smokey

I reckon there would be many family and friends who would volunteer to be controls!!!

Ah, yes Kerri, I'm sure family would step up too.

When I wrote the above, I meant in many clinical medical trials people with the same condition are randomised to different treatments. I'm sure there wouldn't be many people with MS who would want to be randomised to 'no CCSVI procedure' or 'sham CCSVI procedure'......

There are many ethical issues here - if the CCSVI treatment has already been shown to have beneficial effects with very little risk, then withholding treatment could become a dilemma.

I just hope that the powers that be can fast track CCSVI, just as medication trials have been fast tracked.

[kezzcass]

Hey Kerri, you were on my tv last night here in Canada. One other Aussie too by the sound of his accent. They used bits from your youtube videos for the story on W5.

http://www.ctv.ca/servlet/ArticleNews/s ... ?s_name=W5

Yes - that other Aussie was Mr Don Calder

[Opera]

For any one who is intererested and was not aware, there is a post of a meeting between Dr Godley from Canada who is dedicated to assist MS sufferes and MS patients. This is at

The relevant thread is" CCSVI Meeting in Vancouver and On-line. "


Dr Godley during his interview highlights the fact that there is a force that is out to shut down CCSVI treatment - there is specific discussion in that forum about this aspect.

[nico]

yeah - my hubby was watching "Sunday Night" current affairs, on channel 7 at 6.30pm tonight. He said they did a quick preview on a storey coming up. He thought the storey would be on the 6 o'clock news tomorrow (Monday night) ...which seems a bit weird. Maybe it was a preview for the "Sunday Night" episode on 18th April ?

Channel 7 NEWS made mention of a big medical breakthrough special report that going to run tonight, MONDAY 12 Apr. Don't know if it's about CCSVI but l guess we'll all be glued to our TVs anyway....

cheers, Nico

PS Hope everyone's feeling better after their procedure too.

[Downunder]

I feel really blessed to have had proff T preform the procedure on me and shame to all that want to close him down.I am sure he won't be going without a fight, hopefully my results and all the others will help fight to keep Proff T help so many others.
Cheers Elaine

Elaine, did you hear for a fact that they are trying to close Prof T down?

[Downunder]

Best Wishes to those having their procedures over the next couple of days.

And how did Don go last week?

[kezzcass]

HI Everyone, this is what I think many of us have been waiting for:

The National Multiple Sclerosis Society and the American Academy of Neurology (AAN) will hold a live 90-minute Web forum for journalists and the general public on the topic of chronic cerebrospinal venous insufficiency (CCSVI) and what it could mean to people living with multiple sclerosis. The event will cover what is currently known about CCSVI and what yet needs to be determined in order to establish what its relationship to the MS disease process might be and whether surgical intervention can improve the disease course. The live Web forum will feature the following panel:

Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy
Dr. Robert Zivadinov, Associate Professor of Neurology at the University at Buffalo, State University of New York
Dr. Andrew Common, Radiologist in Chief at St. Michaels Hospital, University of Toronto, Ontario, CA
Dr. Aaron Miller, Professor of Neurology and Director of the MS Center at Mount Sinai, New York, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society

Register at:

http://www.nationalmssociety.org/resear ... index.aspx

[friday_fc]

YOU LITTLE RIPPA!!!!!!!!!!

HI Everyone, this is what I think many of us have been waiting for:

The National Multiple Sclerosis Society and the American Academy of Neurology (AAN) will hold a live 90-minute Web forum for journalists and the general public on the topic of chronic cerebrospinal venous insufficiency (CCSVI) and what it could mean to people living with multiple sclerosis. The event will cover what is currently known about CCSVI and what yet needs to be determined in order to establish what its relationship to the MS disease process might be and whether surgical intervention can improve the disease course. The live Web forum will feature the following panel:

Dr. Paolo Zamboni, Director, Vascular Diseases Center, University of Ferrara, Italy
Dr. Robert Zivadinov, Associate Professor of Neurology at the University at Buffalo, State University of New York
Dr. Andrew Common, Radiologist in Chief at St. Michaels Hospital, University of Toronto, Ontario, CA
Dr. Aaron Miller, Professor of Neurology and Director of the MS Center at Mount Sinai, New York, member of the AAN Board of Directors, Chief Medical Officer of the National MS Society

Register at:

http://www.nationalmssociety.org/resear ... index.aspx

[nico]

does this mean it's on at 2am our time? cheers, nico

[kezzcass]

does this mean it's on at 2am our time? cheers, nico

That's what I get when I do the calculations. If you register but don't attend the forum you should be sent a link to the broadcast so you can watch it in the morning at a more reasonable hour! As for me I am setting my alarm...

[nico]

does this mean it's on at 2am our time? cheers, nico

That's what I get when I do the calculations. If you register but don't attend the forum you should be sent a link to the broadcast so you can watch it in the morning at a more reasonable hour! As for me I am setting my alarm...

thanks very much, have already registered, cheers, nico

[elaine]

Hi Downunder
maybe i was a bit harsh in saying "trying to close him down" Proff did tell me that the neuros at the hospital wanted him to stop what he was doing and cancel his appointments.
Elaine