CCSVI treatment available in the U.S.!
Re: was given the balloon angio on May 6th
HEY DEVIN! Wonderful! When it happening??devinhubbard wrote:on both jugulars and my azygous. No more brain fog or fatigue. No more double vision. Feel so good! I want this for everyone.
patience, patients, you shall receive THE call.
Got mine today from Dr. Mandato. Great guy, answered all my questions and seemed pretty confident. He has seen some amazing improvements in patient symptoms. Is is psychosomatic or real? he asked, "We don't know but time will tell." although he indicated that the sx improvement were so dramatic he doubted that it was psychosomatic in origin.
Even after talking to him, I'm looking at a week or two before I get called about booking an appointment and as late as November if I want to be treated in the (cheaper) ambulatory center vs. the hospital. Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.
guess that means I *still* have to keep my phone glued to my hip. Oh well.
Got mine today from Dr. Mandato. Great guy, answered all my questions and seemed pretty confident. He has seen some amazing improvements in patient symptoms. Is is psychosomatic or real? he asked, "We don't know but time will tell." although he indicated that the sx improvement were so dramatic he doubted that it was psychosomatic in origin.
Even after talking to him, I'm looking at a week or two before I get called about booking an appointment and as late as November if I want to be treated in the (cheaper) ambulatory center vs. the hospital. Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.
guess that means I *still* have to keep my phone glued to my hip. Oh well.
dx RRMS Jun. 2009...on Copaxone and LDN and waiting for my turn to be "liberated"<br />
Any idea why it is a big maybe?MS_mama wrote:Hospital pts may possibly (BIG MAYBE according to the dr) be seen as early as late this summer/september.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
I contacted CCP the same night as CECE but i didnt call them until about 10 pm central time and the good Dr called today. Should get a call in 3-4 weeks for scheduling. Estimate of late August at the earliest for treatment. This is assuming all goes smoothly.BooBear wrote:I am also on Central Time in the great state of Illinois.
I can't wait I can't wait I can't wait I can't wait!
Hope that helps ease the nerves.
I Have A Date!!
Just got the second call. I have been scheduled for July 12th!!
For those who were wondering about how bmk1234 got such an early date (June 16th) I believe it was due to a cancellation.
Now please excuse me while I go cash in my frequent flier miles...
For those who were wondering about how bmk1234 got such an early date (June 16th) I believe it was due to a cancellation.
Now please excuse me while I go cash in my frequent flier miles...
