CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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uprightdoc
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Post by uprightdoc »

Coach,
I have treated and trained many athletes. It would be wise for both you and your daughter to get your spine checked, especially your upper cervical spine. I am surprised neither of you have complained about symptoms or seen a chiropractor yet.

Athletes do well with chiropractic care. All sports eventually take their toll on the body. Bicycle accidents are never good. I have had a bunch myself and treated many athlete road and single track cyclists, as well as stunt bikers. The learning curve is lousy. Catchers take a lot of abuse. Personally I don't think female soccer players should be heading the ball due to thinner skulls and smaller neck muscles. Basketball players also have their share of collisions and hard falls on wood floors oftentimes on the buttocks.

Because you both had optic neuritis, my recommendation is that you see a certified upper cervical chiropractor.
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Drury
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Post by Drury »

Dr. Flanagan,

Thank you very much for all your help and support. Epidemiologial studies versus MR physiological studies is most interesting I will keep you posted of any developments regarding my daughter's case.

Also I have been looking into the SORSI Chiro's in NYC and wondered if you were familiar with Michael Gindrich?

Drury
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NZer1
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Post by NZer1 »

Have done some research, there is ONE Upper Cervical specialist in NZ and that person is in Wellington.
Thats 7 hours drive away for me. So I have booked on Monday for Xrays and consultation with a local Dr. John Funnell who runs a group of Chiropractors at a Family Chiropractic Center.
He may run a mile when I talk about my case and leave him Dr. F's book with page notes and my 'file' of xrays and MRI's to read!
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uprightdoc
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Post by uprightdoc »

Drury,
I checked out Dr. Michael Cindrich. He is highly qualified in SOT doctor so he should be good with analysis of pelvic misalignments. Just make sure he knows your daughter is dealing with a personal injury case. In addition to chiropractic analysis your daughter also needs standard orthopedic tests of the lunbar spine, pelvis and legs. (I assume a good neuro exam has already been done). Standard tests should include; station and gait, toe and heel walking, all standing ranges of motion, supine straight leg raising, Fabere Patrick, Ely, Hibbs, Nachlas as well as others. The iliolumbar, sacroiliac and sacrotuberous ligaments should all be check for tenderness as well as the origins, insertions and bellies of all the assoicated muscles and their relative strength. She need a thorough going over and complete documentation.
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uprightdoc
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Post by uprightdoc »

Nigel,
Have mercy on the doctor. You have a big head start on CCSVI and CSF flow. Most doctors don't know much about either subject.
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NZer1
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Post by NZer1 »

Thanks Dr. I have decided to let the appointment happen and talk about my interests if I get a good feeling about the Dr.. I have calmed down already and realized I would rather learn how I am first and talk later, maybe at a second appointment about your work.
Have you met with Dr. Haacke?
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Drury
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Post by Drury »

Dr. Flanagan,

Thank you once again. Will keep you posted.

Drury
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uprightdoc
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Post by uprightdoc »

Hey Nigel,
Dr. Woodfield and I with Drs. Haake, Mehta and Dake. It was a good introductory meeting but much more needs to be done. Dr. Haake is turning out to be a real asset for Dr. Woodfield who was already in the process of setting up an MR facility in Seattle Washington.

Woodfield and I will be sending Haake citations to support our position. I would also like to meet with Mehta again to give him my book and papers I wrote on MS as well as the aging brain and dura mater. Dr. Dean Falk of the University of Florida is in the process of digging out her 1986 physical anthropology paper on Evolution of Cranial Blood Drainage for me to use as well. If possible I am going to offer to do a presentation for the vascular surgeons on upright posture and relevant anatomy to cranial blood and CSF flow and drainage and their role in neurodegenerative diseases.
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NZer1
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Post by NZer1 »

Brilliant and well done. The timing was right and you knew your theory well. Excellent news, I don't think many will realize how important this meeting of minds has been.
Thank you, Nigel
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ConstableComfortable
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Post by ConstableComfortable »

Dr Flannagan

Just a quick question. If I had an atlas problem which caused a misalignment of my pelvis and therefore 'leg length'. Would wearing a lift in my shoe, on the shorter side, feed back up the spine the correct position to the atlas? An atlas adjustment from the bottom up, as it were?
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tzootsi
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Post by tzootsi »

I'll throw this out to Dr. Flanagan, and whoever else may have some input -
what is your take on Noel Batten?
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blossom
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ccsvi

Post by blossom »

dr. flanagan, congradulations on your successful meeting!!
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HappyPoet
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Post by HappyPoet »

Hi Cece,

It's great that you're a regular reader of the "CCSVI and CCVBP" thread!

If I may, I'd like to correct a wrong impression that might be forming (sorry if this was already posted):

Our sweet and caring Cece is not against chiropractic medicine -- she's talked before about the successful chiropractic care her infant son received -- but she is against those who spread misinformation.

Cece, I'm pretty sure that you can lower your defcon alert status because I think Drs. Flanagan and Koontz have proven they're not here to harm us or trick us -- they're here to explain theories and treatments, to answer questions, and to help us find doctors.

I know you're concentrating on CCSVI (congratulations on your diagnosis!), but it wouldn't be a bad idea to look at all angles, most especially because of your car accident. If you have your X-rays, I'm sure the doctors will evaluate them for you.

:)
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Post by Cece »

What's that, HP? It is hard to hear over the defcon alert.... :)

Yes, I see chiropractic care as among our options or total care package as a pwMS. What my infant son had was physical therapy for torticullis, not chiropractic care directly, but I did years later have him checked by my chiropractor as well.
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uprightdoc
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Post by uprightdoc »

ConstableComfortable,
I have got to learn to use the quote function on this blog, but anyway using a heel lift is not the way to correct an upper cervical misalignment or pelvic misalignment. Classic misaligned segments are stuck by definition. The frame of the body is much more complex than a simple leaning structure built from the ground up. The frame is also suspended form the top down by paraspinal ligaments and muscles. The curves of the spine are also complex.

The affect of a lift is altered by the joints of the ankle, knee and hip and has only a fractional effect on the pelvis. It is further altered by the curves of the spine. I used to use Dr. Barge's method of heel lifts along with 14x36 x-rays for scoliosis and other conditions for years. I used permanent rubber lifts and disposable cork ones of all different sizes. I also had them built into custom made orthotics. In my opinion their long-term impact is negligible as they fail to correct pelvic or upper cervical problems. But it's actually a lengthy academic discussion that deserves much more time and space than I can provide here.
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