CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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scorpion
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Post by scorpion »

costumenastional wrote:Since a friend asked me via pm how I am doing I thought I might let you all know that I am actually doing well.
I have been accused for preaching in the past. And it's true. I preached and I would do anything in my power to motivate people to look into spinal cord health simply because trauma can and does cause "MS". Same way I did for CCSVI (for those who "know" me) because it can and does cause "MS".

So, now that we caught your attention, there is not much left for me to do here. I always read the posts in this thread, I deleted my blog and I continue my life the best way I can. It ‘s time for me to take it easy and give nature a chance to do its thing. If you are still wondering how I am doing please read this paragraph again. Of course I ll let you know if something changes for better or worse.

No need to mention that I do not take MS drugs of any kind, I give some laughs to Dr Koontz cause I know in advance whether I need an adjustment or not and I talk with Dr Flanagan because not only he saved my life, but also because he is the coolest person I have ever known. Period.

Please remember that autoimmunity comes second in most of our cases and please do not take whatever neurologists tell you for granted. The bets are that they are clueless and wrong.

I am sorry for all the times I insulted Lyon, Scorpion and others but hey! I am who I am. I hope I have been of some help. I for one have been helped a great deal from you people. We are all together in this.

I wish you all my very best.
See you around hopefully with good news.
Hey no hard feelings costumenational. I wish you the best luck and I hope you occasionally check in here! Thanks for all you have added to Thisisms and please take care! Scorpion
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Ruthless67
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Post by Ruthless67 »

costumenastional said,
I am who I am.
and I'm so glad that - you are, who you are!

Thanks for everything, costumenastional. Go have a full life, read our dribble if and when you get the chance and please come back once in awhile and say "Hi".

I've been on Tim's for a year now, and I miss those who have moved on before you, just as I'll miss your interesting posts.

All the best to you,
Lora
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NZer1
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Post by NZer1 »

Dr. F the adjustment used on my Atlas was called Toggle Recoil, I used Johns light board and will load the photos of my xrays tomorrow.
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Billmeik
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Post by Billmeik »

Hey there:
So I've been reading the good doctor's work for a few months now I think. I remember last summer some fascinating papers analyzing ccsvi from a chiropractor/anthropologists pov.Hope it's the same stuff. a because that guy was into upright mri's and this good doce is called uprightDoc.
Since this thread is now 25 pages long it might be a good idea to edit one of the first posts to include links to this background material. Didn't see it in the first few pages....Sound like there's a book too...
So my sister has parkinson's. I saw her yesterday. She can't talk or walk but she throw's these amazing parkinson's research fund raisers every year. raised over a million dollars.
There were three of us, my sister a brother and I who all got sick. For years Ive thought it was an environmental toxin of some sort at our childhood home.
Jamie died of lymphoma, in 91, my sister has parkinson's and I have ms. Everything pointed towards faulty immune systems caused by the toxin? but now I see congenital link to venous issues might be something?
Is there womething that can be done for parkinson's patients like my sister?
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NZer1
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Post by NZer1 »

For a few days now I have been wandering around with a thought. Is it possible that when a person has a back injury, that its not the spine alignment the happens first. Is it possible that an injury to the cord such as a tear or stretch injury to a nerve exit from the cord, and the body tries to accommodate that and in the healing process the disc space increases around the injured area to give room for the inflammation that occurs as a clean up process. The 'realigning' may or may not occur after the repair process is over because of our sedentary modern life style and or repeating the position that caused the problem. I am thinking from the MS BBB breach point of view it 'could' be reason for RRMS disease form.
The reason why I have this pondering is that I have had some spine problems over the years and never really knew what caused the problem, although the injury's identified by the medical people such as disc bulges and disc prolapse would take some effort to create.
The MS MRI investigation found small lesions in my brain but most importantly a twenty mm lesion at C2, an area that would be the most susceptible given my injury history and my work postures. So my theory would be that the injury's I have had throughout life may be associated with the tear, stretch injury of my cervical cord that over my lifetime have caused the de-generative disease form of MS, PPMS.
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blossom
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ccsvi

Post by blossom »

nzer1, that is such a good question. i can't wait to hear dr. flanagan's response. thanks for posting it.
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NZer1
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Post by NZer1 »

Hi Dr I have posted my xrays on;

http://www.facebook.com/album.php?aid=5 ... 1636357984

Hope they are readable? John has some pencil notes on them.
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NZer1
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Post by NZer1 »

Dr F can you please indicate what I should expect to see after treatment if I had another xray?
One other question please, would there be any way a Chiropractor could tell if there are upper cervical alignment issues. My friend with MS 25 yrs(SPMS) goes to the same Chiropractor (I have started with,) monthly for a tune up, I have been talking about your blog and book with her and she wonders if her atlas has been 'out' the whole time and without xrays would anyone know?
Thanks Dr, regards Nigel
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uprightdoc
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Post by uprightdoc »

Billmeik wrote: my sister has parkinson's...There were three of us, my sister a brother and I who all got sick. For years Ive thought it was an environmental toxin of some sort at our childhood home...Jamie died of lymphoma, in 91, my sister has parkinson's and I have ms. Everything pointed towards faulty immune systems caused by the toxin? but now I see congenital link to venous issues might be something?
Is there womething that can be done for parkinson's patients like my sister?
Parkinson's is a more involved topic that I will cover in future posts and on my new website, which should be ready in about a week.

In brief, primary PD, in my opinion, is caused by decreased CSF flow most likely due to decreased venous drainage of the brain. I believe PD patients can be helped by chiropractic or surgical intervention. Secondary PD, on the other hand, has many toxic and chemical causes. Neurotoxins such as pesticides are one of many. Alcohol and heavy metals are other examples. The list is long.
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uprightdoc
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Post by uprightdoc »

NZer1 wrote:Dr F can you please indicate what I should expect to see after treatment if I had another xray?
One other question please, would there be any way a Chiropractor could tell if there are upper cervical alignment issues. My friend with MS 25 yrs(SPMS) goes to the same Chiropractor (I have started with,) monthly for a tune up, I have been talking about your blog and book with her and she wonders if her atlas has been 'out' the whole time and without xrays would anyone know?
What I would like to see is improvement of your lateral view more than anything else. You have a flexion strain position well forward of the gravity line. Flexion strains can cause deformation of the brainstem and pull it up against the front rim of the foramen magnum. On top of that you head and atlas are in extension counter to the flexion strain in the rest of the neck. You have considerable arthritic degeneration in your lumbar spine and disc compession in the lowest disc as well as the upper lumbar spine. You also appear to have an anomoly in your lumbopelvic spine and may have a partial extra lumbar segment due to a sacral segment that failed to fuse. It's hard to tell from the film. But extra lumbar segments create instability.

All types of misalignments of the spine can be roughly determined by postural and range of motion analysis. The upper cervical spine however is a complex area and there is nothing like having specific x-rays and methods to analyze and correct it.

In this regard, I was taught toggle recoil. Does your chiro do toggle recoil on a knee chest table or with you lying on your side?
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NZer1
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Post by NZer1 »

Morning Dr, the toggle recoil is done with me on my right side and on a table that has two sections one for the body that drops on compression at shoulder region, the head section also drops independently and on compression.
Would you recommend my friend has xrays?
Would you recommend that I have xrays once John is satisfied with my treatment?
Thanks again Dr.
Nigel
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NZer1
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Post by NZer1 »

Hi Dr. would MRI lateral view show the position and condition of the cord and any effect the alignment is having or created?
The sacral section could possibly due to being kicked impacting the tip of my tail bone when I was about 9-10 in a playground bullying incident, very painful at the time!
Thanks Dr,
Nigel
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uprightdoc
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Post by uprightdoc »

NZer1 wrote: would MRI lateral view show the position and condition of the cord and any effect the alignment is having or created?
The sacral section could possibly due to being kicked impacting the tip of my tail bone when I was about 9-10 in a playground bullying incident, very painful at the time!
On closer look the sacrum is fine but the L5/S1 disc is nearly gone. You have compressed discs in your neck as well.
A cervical MRI would show the affect on the cord but an upright MRI would be much better.
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NZer1
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Post by NZer1 »

Morning Dr. My next question, from my understanding of positioning of the skull ontop of the spine and the effects on flows after reading your work and this site, I would put myself in the highly likely cohort, that MS has occurred after injury. Would this be your observation?
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uprightdoc
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Post by uprightdoc »

NZer1 wrote:My next question, from my understanding of positioning of the skull ontop of the spine and the effects on flows after reading your work and this site, I would put myself in the highly likely cohort, that MS has occurred after injury. Would this be your observation?
Absolutely. Your particular case history or Rugby injuries, mechanic injuries, lifting things with your head, high speed boat jarring etc., are probably the cause of the of the compression and degeneration of the cartilage and connective tissues in your low back and the foward tilt of your neck and and the compression of the discs in you lower neck. Where are the lesions on your previous MR scans?
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