MS or Hughes Syndrome? Misdiagnosing.

omg · Post by **omg** » Tue Aug 22, 2006 11:11 am

I think the need for people to raise the profile of the ties between the 2 is the most important thing see the link below

http://www.timesonline.co.uk/article/0, ... 86,00.html

Mr Simper had lived with "MS" for 26 years!!

If articles like this can mean that that 2% (or 5% depending on which statistic you believe) can be correctly diagnosed with Hughes then its truly not about false hope but giving people their live back. The fact that so few doctors have heard of Hughes and that it not routinely screened for is awful.

But just imagine being part of that 2% and not knowing.

My mother was diagnosed 20 years ago based on an MRI alone you can bet your life that I’m going to make sure she’s tested for antiphospholipid antibodies!!

Post by **Arron** » Tue Aug 22, 2006 11:27 am

hi omg, welcome to the site

bromley · Post by **bromley** » Tue Aug 22, 2006 12:37 pm

The UK MS Society has posted the following on the Hughes Syndrome issue. The general view is that misdiagnosis of MS is very rare.

http://www.mssociety.org.uk/go.rm?id=18183

Lyon · Post by **Lyon** » Wed Aug 23, 2006 2:51 pm

CureOrBust · Post by **CureOrBust** » Thu Aug 24, 2006 1:44 am

I think that hughes also can show up on an MRI. The following pubmed article talks of the differences.

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