CCSVI and CCVBP

[Robnl]

Hi doc,

Did you receive your cc of my mail to dr smith??

rgds,

robert

[uprightdoc]

No. I did not receive the CC of the email to Dr. Smith.

[Robnl]

ah, thought so...

send the mail via my second account, just sent it via the mail account i used before....

[uprightdoc]

I got it. Let me know when Dr. Smith gets back to you.

[Robnl]

Hi doc,

Dr Smith reacted and wants to help me, he is familiair with you and your work.
I will get an email from his PA with costs and booking dates.


I'll keep you posted!

Robert

[Robnl]

Hi doc,

Well, its gonna happen...(see mail)
5/6/7 October I will be in London, cervical flexion/detraction, cine and ccj.
When i have the cd i send it to you by mail.

i want to have:
- Dr smiths opinion
- Your opinion
- Dr Harshfields opinion (can you arrange that?)

Tonight i'm going to 'enlight' the neurologist at the VU...sept 9th appointment

Rgds

Robert

[uprightdoc]

Thanks Robert. I look forward to seeing your scans. I will see if I can get Dr. Harshfield's opinion as well. The scans should be very interesting.

[Robnl]

Flight booked, hotel booked...i'm ready for it!

[uprightdoc]

I don't know how they found us but we just had a young Dutch couple stay overnight in our Inn. They liked it so much they will be staying tonight as well.

[Robnl]

The dutch are everywhere ....

[uprightdoc]

They were wonderful guests. If the trend continues I will have to learn to speak Dutch.

[Robnl]

Hi doc,

no news, just to mention that the contact with dr. smith is great
i'll see George each week now until london. (btw George is still looking for you when he happens to be in New Jersey, calls you the mystery man )

mpression is that i can stand better and longer on Tuesday at the fysio when i saw George on Monday

That would support the case, wouldnt it?

[uprightdoc]

Hello Robert,

I am glad to hear the contact with Dr. Smith has been good. I look forward to seeing his report and the scans. He should be able to contact Dr. Harshfield directly for you and send the images electronically if you want a second opinion.

Standing better for longer periods is definitely a good sign that the treatment is helping. I like to test muscles for strength before and after treatment. Has the discomfort and cracking sounds in your neck gotten better since you started seeing George?

George is looking in the wrong place. The most northern and closest part of New Jersey is about four hours south of here.

I have been working on some requested revisions to my paper by the publisher. I have to resubmit the paper with the revisions by next Wednesday 9/2. If all goes well, it should get published soon.

[Robnl]

Well, the last months I've been to George only a few times, nausea and cracking still there...
I will send a mail or call dr smith's PA about dr harshfield, good point.

[mystery1980]

Hello Dr. Flanagan and everyone else.

Just a short message, at sunday a have a "normal" MRI to see if the syrinx is shrunken and if the hernia is complete gone in order from the neurosurgeon.
At monday I first have a appointment with the physician assistent neurology, because my general practitioner don't know what medication he have to give for my sensory disturbances, the one I take at the moment don't do enough and also for the other complaints which do not belong with the syringomyelie and thoracic hernia.
After that I have a appointment with the eye specialist because my sight becomes worse.
And after that I have a appointment with the neurosurgeon to look at the MRI and see how it is with my complaints after the surgery.

In connection with the upright MRI, I ask with my health insurance, this will be not reimbursed so I can't pay it

Do you or anyone else have advice for me what I can do?

Kind regards mystery

p.s. the neurosurgeon is not open to the thinking of the patient unfortunately