CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Robnl
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Re: CCSVI and CCVBP

Post by Robnl »

Hi Myst,

Health insurance will pay for foreign medical things if it is part of your treatment , so your neurosurgeon has to be convinced about the need for upright mri.
Pressure differences between supine and upright,fluïd flows......its quit logical.
But you know dutch docs.....maybe prof grotenhuis is sensitive for this??
Last edited by Robnl on Sun Aug 30, 2015 9:53 am, edited 1 time in total.
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uprightdoc
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Re: CCSVI and CCVBP

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Hello Mystery,

You need and upright MRI to carefully check the upper cervical muscles, ligaments and dura mater for tears and degeneration, as well as alignment. You also need upright MRI and cine blood and CSF flow to check for cerebellar tonsillar ectopia and obstruction to flow when you are upright (vertical).

You could try contacting Dr. Smith's office for suggestions. Tell Dr. Smith about: 1) your history of head and neck trauma, especially the motor scooter injury; 2) the herniated disc in the thoracic spine and stenosis which I suspect was caused by the accident and hyperflexion of the cervical and thoracic spine, 3) your symptoms including dizziness and loss of consciousness when you are upright and 3) the large syrinx. He might be able to convince your neurologist why you should get and upright MRI and Cine flow study.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Robert,

Is a durch doctor the same as a Dutch doctor?
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Robnl
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Re: CCSVI and CCVBP

Post by Robnl »

uprightdoc wrote:Robert,

Is a durch doctor the same as a Dutch doctor?
Yes, most of the time :mrgreen:
(Or i should pay more attention to the ipad keyboard while i'm typing, instead of watching tv ar the same time)
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Re: CCSVI and CCVBP

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Thanks. I wasn't sure if durch was the Dutch way of spelling Dutch or a particular dialect from your neck of the woods. Keep your eye on the Ipad while you are typing.
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Robnl
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Re: CCSVI and CCVBP

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uprightdoc wrote:Thanks. I wasn't sure if durch was the Dutch way of spelling Dutch or a particular dialect from your neck of the woods. Keep your eye on the Ipad while you are typing.
I had to check 'neck of the woods'....who invented that expression :mrgreen:
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Robnl
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Re: CCSVI and CCVBP

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Hi doc,

George says you are near the George Washington bridge...

Btw, 450miles driven on monday pffff.....pain in the back of my neck, strength down, energy down....but recovering
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Robert,

I don't know who invented the term. It could have been the English or the Knickerbockers but don't get your knickers in a twist trying to figure it out.

We used to live north of the GW bridge in some of the oldest Dutch towns in the country. I am much further north now.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Robert,

Apparently the expression comes from the Brits not the Nicks.

http://www.phrases.org.uk/bulletin_boar ... /1252.html

http://www.quora.com/Stomping-grounds-a ... -originate


I had to interview a distributor of craft beers for the restaurant, which are becoming very popular in this country. The distributor carries many fine tapestry beers from your neck of the woods.

Can you explain how Dutch monks (men of the cloth) got started in the business of brewing beer?
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Robnl
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Re: CCSVI and CCVBP

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Probably to get drunk :lol: :smile:

No, i will look into it...
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Robnl
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Re: CCSVI and CCVBP

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Monks brew beer to make money as other sources of income ran dry
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Robnl
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Re: CCSVI and CCVBP

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http://www.ncbi.nlm.nih.gov/pubmed/26344031
. C1-C2 X-Ray assessment of misalignment parameters in patients with Chronic Cerebra-spinal Venous Insufficiency and Multiple Sclerosis versus patients with other pathologies.
Mandolesi S, Marceca G, d'Alessandro A, Desogus A, Ciccone MM, Zito A, Manconi E, Niglio T, Mandolesi D, d'Alessandro A, Fedele F.
Abstractin English, Italian
PURPOSE:
The complete compression of the internal jugular veins, in front position, shows a prevalence of 48% and it is equally distributed in the various segments of these veins in patients with Chronic Cerebro-Spinal Venous Insufficiency (CCSVI) and Multiple Sclerosis (MS). The aim of this search is to identify radiological dislocation of C1-C2 as specific markers in patients with CCSVI and Multiple Sclerosis (MS).
METHOD:
We investigated 386 patients suffering from CCSVI and Multiple Sclerosis and a control group of 156 patients without MS.
RESULTS:
The assessment of Anterior Intrusion shows the following average values: in the group with CCSVI and MS: 4.29 ±1.48 mm while in the control group: 3.78 ±1.45 mm (p = 0.0008).The evaluation of the Right Laterality shows the following average values: in group with CCSVI and MS: 2.31±1.41 mm, in control group: 1.97 ±1.28 mm (p = 0.0426). We found also that a longer duration of the disease corresponds to a higher severity of the pathological condition (p <0.0001).
CONCLUSION:
Data analysis of C1-C2 X-Ray parameters shows statistical significance of severe anterior intrusion and right laterality misalignment in the people with CCSVI and MS, that are two to three times more frequent as compared to controls. Considering the novelty of this work and the total absence of scientific similar works able to confirm this data, it is necessary to continue these studies in order to improve the clinical management of these patients and to perform therapeutic strategies based on venous decompressive treatments both surgical that manipulatives.
KEY WORDS:
CCSVI, Multiple Sclerosis, Venous Compressive syndrome, X-Ray C1-C2.
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Robnl
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Re: CCSVI and CCVBP

Post by Robnl »

Hi doc,

appointment with neurologist was cancelled.....flooded hospital :mrgreen:
23 sept new appointment.

Btw, i heard that there is a new neurologist at the VU, with interest in new approaches...
i'll check it out...
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Robnl
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Ligaments and tendons

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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Robert,

Do you mean that they neuologist's office is flooded (overwhelmed) with work, or are is the office flooded due to heavy rains or a leaky dike?

If my next paper is published in time you can take it with you to the neurologist.

If the monks needed some money why didn't they just bake bread instead of brewing beer?
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