Vitamin D protocol combined with Immune suppressants

[mrtmeo]

I would like to hear from folks that had to be on other immune suppressants (other than Corticosteroids) while they waited for the vitamin D to stop the progression of their disease.
It would seem logical that blocking the immune system would be counterproductive, but D actually modulates the immune system causing genes to express in a positive manner.

My mom's disease attacks her kidneys and she is on cellcept.

[AntonioBR]

I would like to hear from folks that had to be on other immune suppressants (other than Corticosteroids) while they waited for the vitamin D to stop the progression of their disease.
It would seem logical that blocking the immune system would be counterproductive, but D actually modulates the immune system causing genes to express in a positive manner.

My mom's disease attacks her kidneys and she is on cellcept.

My brother never used an immune suppressant. So, I can't talk about him. But almost one year and a half ago the moderators of ''Coimbra Protocol for MS'' group on facebook made a poll to know how many people were still using conventional drugs (immune suppressants). The group had more than 9,500 people at that time. Of course, these facebook polls don't have any scientific standard. It's only to have an idea.

The conclusion was: 80% were using only Coimbra Protocol and 20% were using Coimbra + an Immune Suppressant.

At the beginning, most of these people were using Conventional drug + Coimbra because they still had fear to have another relapse. Then after some months or years, they gradually start to stop using conventional drugs and keep only with Coimbra. Probably because of the side effects of these drugs and also because doctors that follow Coimbra ask for patients stop using conventional drugs (it diminish the action/power of vitamin D).

However, now I'm seeing more and more people starting directly with Coimbra.

Ana Claudia Domene wrote a book talking about her experience with this transition of immune suppressants to the Coimbra Protocol: http://www.thisisms.com/forum/coimbra-h ... ml#p239743

[mrtmeo]

I would like to hear from folks that had to be on other immune suppressants (other than Corticosteroids) while they waited for the vitamin D to stop the progression of their disease.
It would seem logical that blocking the immune system would be counterproductive, but D actually modulates the immune system causing genes to express in a positive manner.

My mom's disease attacks her kidneys and she is on cellcept.

My brother never used an immune suppressant. So, I can't talk about him. But almost one year and a half ago the moderators of ''Coimbra Protocol for MS'' group on facebook made a poll to know how many people were still using conventional drugs (immune suppressants). The group had more than 9,500 people at that time. Of course, these facebook polls don't have any scientific standard. It's only to have an idea.

The conclusion was: 80% were using only Coimbra Protocol and 20% were using Coimbra + an Immune Suppressant.

At the beginning, most of these people were using Conventional drug + Coimbra because they still had fear to have another relapse. Then after some months or years, they gradually start to stop using conventional drugs and keep only with Coimbra. Probably because of the side effects of these drugs and also because doctors that follow Coimbra ask for patients stop using conventional drugs (it diminish the action/power of vitamin D).

However, now I'm seeing more and more people starting directly with Coimbra.

Ana Claudia Domene wrote a book talking about her experience with this transition of immune suppressants to the Coimbra Protocol: http://www.thisisms.com/forum/coimbra-h ... ml#p239743

Thanks for the info.
I guess my mom's problem is that her disease attacked her kidneys and keeping the disease activity down until the D starts working is the gray area I need to work out.
I know that nephrotoxic drugs are a no no on Coimbra's protocol, but my mom is on cellcept which is not nephrotoxic.
However, she is not able to stay on a high enuf dose to quell the disease completely due to side effects.
I am hoping I can do a modified Coimbra protocol, at 10,000 iu's per day with the cellcept to see what happens.
I was hoping to see if others had any insights or experiences doing both.
One thing that is interesting is I gave my mom one dose of 100,000 iu's on the day she got blood work and her iron labs were the best they ever were.
Of course, her calcium rose and I had to stop the D for a while.
Also, I don't know how long it takes for the D to stop the disease process, but Coimbra says around 2 years.